My 4 year old son has AA.his hair has been falling slowly from july 2013 thru now he has lost about 40% of his hair He has patches here and their i always try to keep his head bald and he usually wears a hat but somthimes he takes it off and when we are at stores or any public place lots of people stare or whisper to one another point and just look at him like hes not normal I Hate It it makes me stress because i feel like i just wanna do so much for him and i cant relly do anything i wanna think that his hair will come back as he grows into his teen years that way he wont be embarressed Of not having hair. I just wanna know if everyone with AA looses their eyelashes and eyebrows or if theirs anything i can do to avoid it from happening i feel like for girls its a little easier Because of wigs eyelash extentions and make up but for a boy i find it harder...maby i feel like thay becase in my situation my son is the one with the condition.i havent thought about it in a girls situation

Views: 164

Comment by Cheryl, Co-founder on May 2, 2014 at 10:44pm

It took me a while to get use to the stares as well.  Eventually I got to the point that I really don't look to see who is staring any more.  If by chance I catch someones glance, I usually just smile and say hello, usually they just return the smile and say hello back.  I learned that trick from a three year old and it seemed to work great for her ;)   Unfortunately we can not control what other people do, all we can do if find a way to handle it ourselves.

Here is a blog on dealing with peoples glances

And here are some other discussion on dealing with peoples stares that you may want to take a look at.

You may also want to join the "Parents of Children with Hair loss" Group to connect to other parents.

Comment by Aimee on May 3, 2014 at 1:00pm

So sorry your son is going through this.  How is he handling it?  A lot of people with AA do not progress to losing their eyelashes and eyebrows.  It just seems that way because we all congregate on this site ;)

Cheryl offered excellent advice ^^

Comment by Nammer on May 5, 2014 at 10:40pm
I had alopecia since I was 7.. I would wear hats often today I don't since I work in a professional setting unless it's the weekend but when people would stare I would stare at them back or just make them feel awkward or just ask can I help them with something??
I know it's rude of me but it's quite rude of them for staring, I'd rather have them just ask haha
Comment by Rose Marie' on May 6, 2014 at 9:57pm

I agree with all of the above and want to reassure you that you will find your way.  It's difficult when you are mum, but keep communicating around his needs and yours and this will get easier with time.

Rosy

Comment by Jessica Hoschouer on May 7, 2014 at 6:56pm

I was diagnosed with AA at the age of five, and am now thirteen turning fourteen this year. And let me tell ya I still today get the stares. I never have really noticed them my self so maybe your son doesn't notice them either. one thing I can tell you though is that if you make a big deal out of it when he is around he will notice it more.

Comment by BABY CHIKI on May 8, 2014 at 9:19am
Thank you guys for all your advice these couple of days i been more calm i read alot in here and with that i have learned alot and i just pray and thank god that my son is healty he plays eats runs like any other kid hes alive and living a normal life that alot of other kids bbys and adults can not have because of so many other far more worst conditions that do not let them. Good never gives us anything we cannot handel. And im sure their is a reason why were going thru this,i just plan to bring out the best of the situation and always stand by my sons side make him happy and just show him to be comfortable with who he is because we only know what people show us and everyone is unique what you see on the outside is not always what that pearson is about and he is a very healthy sweet happy kid and I always want him to show that.
Comment by kyle ryan on May 10, 2014 at 8:20am

people are scared of different have confidence in what you do and people will want to follow your lead!! i know how the stares and whispers are too man, think of AA in the sense that your different and being different isnt a bad thing!!

Comment by Melissa on May 11, 2014 at 11:11pm
My daughter is 2 1/2 and we also get the stares. She is almost completely bald with the exception of three patches on the back of her head. And she did loose all of it at one point including her eyelashes and eyebrows, which have also come back in patches. I really try not to even acknowledge, think about or do anything about the stares because I don't want my daughter to notice that it bothers me because in all honesty it doesn't seem to bother her at all. Of course at this age she is barely recognizing that she doesn't have hair. We try to teach her that she is blessed in every other aspect of her life. We never try to hide it with hats or headbands because she really doesn't like to wear them. Usually people stop staring when she gives them her million dollar smile and tells them hi.
Comment by Cori on May 12, 2014 at 2:45am
We got all the stares yesterday, it the fake sympathetic smiles that drive me up the wall. She's not sick or contagious. Still getting use to it, trying to have patience. I know people mean well ,it's just frustrating.
Comment by lajos on May 17, 2014 at 9:14am
People are not going to change we live in israel and there eyes are poping out !! And sometime when im really pissed of i ask them what do you what. You have to be strong and we your child gets bigger you have to tell her that shes healty and beautiful.
And that the real freind dont care if you lokk diferent! God bless you

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