Where acceptance is all there is!

Parents of Children with Hairloss

Information

Here you can talk amongst other parents about treatments, highs, and lows.

Members: 46
Created By: Miranda
Latest Activity: 23 hours ago

My little lady...

This Song has inspired Madisonsmom and her daughter Madison, of course. I love it too, and so now, it's going to be our "Theme Song"...

"Welcome to Wherever You Are" by Bon Jovi

Discussion Forum

Children's Alopecia Project

My name is Jeff Woytovich and I am the Founder of the Children's Alopecia Project. I have 4 daughters, Helena(11), Madison(10), Sofia(7), and Amelia(3). Madison has had alopecia since she was 5 yea... Continue

Started by Children's Alopecia Project May 7

National Alopecia Registry

So Helen's Mom mentioned to me about the registry. I was contacted today after filling out the short survey. We have been invited to the 2nd Tier. Well, as I was giving her information about Angel,... Continue

Started by Miranda May 7

Hi. I'm new here.
7 Replies

My son, Luke age 4 1/2, was just recently diagnosed with Alopecia Areata. Right before Easter we started noticing some little patches of hair missing from that back of his head and thought someone ... Continue

Started by Lisa. Last reply by Michelle (mom of Sam) May 5.

Sharing Your Child's Aleopica with Others
8 Replies

I am just curious why many parents feel they need to share their child's Aleopica with classmates? I have yet to share it with my daughters classmates and only close friends know of her Aleopica. I... Continue

Started by Cindy Samantha's Mom. Last reply by Michelle (mom of Sam) May 5.

Not sure what to do in some situations
8 Replies

Alyssa has partial hairloss that is noticeable. She doesn't wear a wig or other head coverings unless I make her due to the sun/cold outside. She is turning 8 next week and is in second grade. The ... Continue

Started by Lori. Last reply by Cindy Samantha's Mom May 4.

Comment Wall (15 comments)

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15 Comments

Comment by Branka Carbery on May 8, 2008 at 6:57pm: Hi, I"m Branka and have a 5 year old boy, jack, and 3 year old girl, Ella. Ella was diagnosed w/AA at age 2. It's been a little over a year and she's had patchy loss and regrowth. Last fall/winter, she lost most of the hair on the left side of her head, but there is total regrowth!! unfortunately new spots are forming. It's frustrating to 'wait and see' , but that's all we can do.
We are in the Chicago burbs, and hope to meet others who are in the same situation as us.
I'm so glad that this site exists!!

Comment by Shawna Reed on May 8, 2008 at 10:28am: Hello Everyone, I am new here. My 2 1/2 year old daughter Maya was just diagnosed with Alopecia last week. It was quite the shock for me. I am looking for ideas on how to deal, and how to stay strong for my daughter. Finding this site was such a relief for me, since there is not much info in Canada on this.

Comment by marsha on May 7, 2008 at 3:37pm: Hi, I am new here. My daughter has alopecia areata. Right now she has a lot of spots. She loves school but the kids are asking questions. Is she going to say something NO she is very shy. At the moment we are going to the doctors and the are putting needles in her head. We have good news the hear is growing back. We are so excitied. I have just learned the my friend in high school had it as well. I am glad that this site is here it really helps...........Marsha

Comment by Children's Alopecia Project on April 22, 2008 at 8:47pm: If you have any questions about the Children's Alopecia Project please visit www.childrensalopeciaproject.org

We have information that is done along with the National Institute of Health and it is quite specific that there is no know cause for alopecia. That is the key to research, finding the trigger. I have 4 daughters, 11,10,7 and 3. Only the 10 year old has alopecia, why? She is much more brave then her sisters and her mom and I have treated her no different than her sisters but yet she has an autoimmune disease. Alopecia is cruel and there is no cure so please concern yourselves with building self-esteem and build that wonderful child of yours up to become stronger teens and productive adults. They are the advocates of the future for all forms of alopecia.

I know you all are great parents just by the fact that you are on this and other sites, just don't let the reasons why cloud the direction of your journey. Self-esteem, confidence and beyond!!!!

Jeff Woytovich
Founder
www.childrensalopeciaproject.org

Comment by Children's Alopecia Project on April 22, 2008 at 8:39pm: A new chapter of the Children's Alopecia Project will be starting in the
Missouri/Illinois area this coming Saturday, April 26th.

The Burke family are the facilitators and they were featured this past weekend in the St. Charles Suburban Journals.

Visit the below link -
http://stcharlesjou rnal.stltoday. com/articles/ 2008/04/21/ news/sj2tn200804 19-0420stc- pokin0.ii1. txt

If you are interested in joining us or would like more information
about future meetings of the Missouri/Illinois group please contact us at capkids@charter. net

We now have CAP Kids Meetings in PA, NY, MO/IL and MI. If you have an interest in being a CAP Kid Meeting facilitator let Jeff or Betsy Woytovich know at info@childrensalopeciaproject.org

Comment by barbara on April 17, 2008 at 9:20am: Hello- are there any parents out there with older children with alopecia. My daughter is 20 and has just lost all her hair , last year.

Comment by Cindy Samantha's Mom on April 16, 2008 at 12:12pm: Myself and another mom are meeting in the chat room at 9pm EST time tonight, (WED) if anyone wants to join us..Cindy

Comment by Helen's Mommy on April 12, 2008 at 11:23am: Hi all! My almost 4 year old has had alopecia for about 1 year. At first she was just losing patches and then about 6 months ago she lost it all. She now has alopecia totalis. We have been only wearing hats but now we have been thinking about wigs. Yesterday was the first time a stranger asked me ( in front of her no less) if she was sick and had cancer. I was kind of shocked. One because I thought it was rude. Two because it confirmed what before I just theorized about. I thought people might think she had cancer but part of me just hoped strangers just didn't pay much attention to other peoples kids. That is I thought just seeing her wouldn't make others passing by immediately think something was different about her. Now I "know" that at least some of them do. Maybe we should just get a wig- I don't want others to make quick judgments about her. What does anyone else think? Also, what are the wigs really like? Do they look unreal and still make it look obvious they are wearing a wig? Do they stay on for active kids who turn upside down. Does anyone know about the hip hair hats?

Comment by MONIQUE on April 12, 2008 at 1:43am: HI EVERYONE!! MY SON HAS HAD ALOPECIA FOR ABOUT TEN MONTHS. SOMETIMES HE TALKS ABOUT IT, BUT MOST OF THE TIME HE IS NOT PHASED AT ALL. WHEN HE DOES TALK IT IS ALWAYS VERY SAD AND DRAINING FOR THE BOTH OF US. YESTERDAY WAS THE FIRST DAY A KID ACTUALLY MADE FUN OF HIM..MORE TRAUMATIC FOR ME THEN HIM. HE DIDNT REALLY UNDERSTAND. BUT I DID. I AM DOING THE BEST I CAN TO MAKE HIM COMFORTABLE. BUT ADVICE ON WHAT YOU ALL DO WITH YOUR CHILD WOULD HELP US SO MUCH! I KNOW I CANT CHANGE THIS, BUT I WOULD LIKE TO MAKE IT EASIER IF POSSIBLE.

Comment by marie on April 6, 2008 at 5:32am: hiya all, im marie, mum to oliver hes had aa since he was 3 yrs old...hes now 9.....has lost hair its grown back, sometimes with various treatments, but at the mo,we havent used anything for over a yr.he has 1 big patch and about 4 tiny ones,(just hope the tiny ones stay tiny!!...!)........anyway, lovely to meet you all, take care marie.xxxxxxxxxxxxxxx