Parents of Children with Hairloss

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Parents of Children with Hairloss

Here you can talk amongst other parents about treatments, highs, and lows.

Members: 611
Latest Activity: Jul 23

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Started by aweiss. Last reply by aweiss Jul 23. 4 Replies

HiMy 12 year old has been losing hair on the side of his head which we were sure was caused by him pulling it, which he was.  Now, however its clear he is losing by the fistfull every day. He has…Continue

Vaccines

Started by wclawvs. Last reply by tracieB Jul 11. 7 Replies

My five year old lost all her hair in August. She just recently lost her eyelashes and eyebrows. She  needs her kindergarten shots. We followed the recommended vaccine schedule so far. However, now…Continue

My 5yr old daughter was diagnosed with alopecia and Dr. pretty much gave me no hope

Started by JEANETTE. Last reply by CMG2 Jun 25. 16 Replies

Once he gave me diagnoses i started to ask for treatments however he pretty much advised me on wigs.To be honest i didnt know what questions to ask can their be alternatives etc? her father has…Continue

Tags: and, all, advice, Any, her.

How to deal

Started by bluesky. Last reply by Debra (twin mom) Jun 10. 3 Replies

How did your kids deal with this at first and how are they dealing with it now? And about yourself, how did you deal with it? My son is almost 4 and he doesn't yet understand but doesn't want his…Continue

Kids head covers?

Started by Lori-akaMimi. Last reply by patty from NJ Apr 30. 17 Replies

Hi All! My six year old granddaughter is rapidly heading to AT  :-(  I have been searching for child size scarves, turbans and/or knit caps - with little luck. Right now, I'm specifically looking for…Continue

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Comment by MummyWendy on July 22, 2015 at 6:52pm

Hi Mama Rissa and Aweiiss

Hope you and your children are doing ok. My 9 yr old daughter has AT - her hair fell out about a year ago. It's tough hey? Just thought I'd pass on a beautiful quote I saw online today - " I am not this hair, I am not this skin, I am the soul that lives within". Also - buying lots of hats & headscarfs have helped turn it into a bit of a positive for my daughter as she loves fashion and sees these extra shopping trips as a bonus of alopecia ;) ! 

Comment by mama rissa on July 22, 2015 at 2:33am

Hello everyone

my daughter is 7 i just found out a month ago my daughter has alopecia her hair just kept coming out we thought it was caused by rubber bands but that wasn't the case unfortunately this is so hard for me living it the kind of world we are in today everyone is so judgmental she believes having no hair is ugly because of the kids around her I let her know she's beautiful everyday and I even cut my hair bold to support so has my mom and sister this brakes my heart my little girl has to deal with this she get's so embarrassed when kids stare at her or ask her what's wrong with her hair but i'm working on that because i want her to be able to tell them with confidence and be able to be proud of who she is.   

Comment by aweiss on July 12, 2015 at 11:54pm

Hi All

Not sure if I am in the right place, I saw there was an area for parents.  My son is 12 and is losing large areas of hair now on the side of his head - it happened rather slowly, and we thought it was triciliomania, since he was pulling it. Now however it is coming out in clumps. I am trying not to alarm him, but it seems to only be speeding up. We see new dermatologist tomorrow and he is on a steroid creme, but I just want it to stop and it seems to be only getting worse.  I hope the creme is not making it worse.  However, he does seem to be getting new growth in the places that were lost already.  He has bright red curly hair so it seems even more obvious with him.  Could use some words of encouragement.  Thanks

Comment by MummyWendy on June 24, 2015 at 3:36am

I wondered if anyone has any experience of travelling internationally through Customs with alopecia. My daughter's passport photo was taken a couple of years ago before her hair fell out. However, we are travelling from NZ to Australia soon and she has chosen to travel without her wig. I just had a terrible vision of being stopped at customs and them not believing her identity! If anyone has any experience or advice I'd love to hear it. Thanks!

Comment by Alayna's dad on May 27, 2015 at 12:45pm
  • Hello, My daughter is now 12 with AU. I prefer to follow the advice of those that have been "suffering" with AA for here entire lives into adulthood. What I discovered. Most treatments are fruitless and painful. Those that  have had temorary success with, pounding needels ,cemical burns and  drug therapies are let down years latter.
  • Everyone's responece is defferent to treatment. But one thing children have in common is the need for acceptance, particularly from family. I like the idea from the CAP foundation. Growing selfestem not hair. That is what it is all about. 
  • I like the new trend that is happening the world over. That is acceptance. More and more people are comming out and exposing AA.

Comment by carolyn on April 6, 2015 at 12:01pm

Hello Trusting in God

DPCP is typically prescribed by a dermatologist that SPECIALIZES in  AA or AU & filled at a pharmacy capable of mixing the compound.  We use Cleveland Clinic. my daughter has had little to no scalp irritation, no blistersor other side effects been using treatment nearly 2 years.    General info:  http://dermnetnz.org/treatments/diphencyprone.html

Comment by Trusting in God on April 4, 2015 at 12:39pm

Carolyn Thank you for your post.  My 4 yr old has had AU for a year now and it seems every time their is a little tunnel of hope his Dermatologist crushes it.  I am going to talk to his PCP to see if he can help me by prescribing DCPC.  He is on vacation and will not be back for the next month so hopefully he does this and does not try to talk me out of it.  Do you know what exactly DCPC is?  Is it like a steroid or something totally different?

Comment by MummyWendy on March 25, 2015 at 6:33pm

Hi Felicia. We have chosen not to give our daughter (9) the injections. She seems too little to go through the pain! We'll let her make her own decision on that when she gets older. In the meantime we have had a wig made for her, and are trying to build her confidence that she is beautiful with or without hair. She now chooses to go without the wig quite often, and is comfortable with that. We've tried turning the alopecia into a positive (of sorts!) by showing her what a great choice it gives her - Go bald, wear a wig, or decorate - she has an amazing collection of headscarves and hats, and we recently had a Henna Crown done for her by an amazing lady (check out Henna Heals online, they are global). This got her lovely bald head a lot of very positive attention and did a lot for her acceptance of it. Good luck.

Comment by Igotluckey on March 25, 2015 at 2:27pm
I don't know if accupuncture will help but I'm wiling to give it ago! Has anyone tried this?
Comment by Felicia on March 25, 2015 at 2:15pm
My daughter is 10 with Alopecia she is losing more and more hair . She was receiving the injections but now she doesn't want them anymore because they hurt. My heart is breaking and I don't know what to do. I don't know know if I should have get injections, get a wig or what. Any advice or guidance would be greatly appreciated. Thank you !
 

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