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Miranda

Parents of Children with Hairloss

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Parents of Children with Hairloss

Here you can talk amongst other parents about treatments, highs, and lows.

Members: 298
Latest Activity: 1 day ago

My little lady...



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Discussion Forum

Saida Z. (Ariana's mom)

Alopecia and sports 4 Replies

My daughter wants to play soccer for summer, i just don't know how thats going to work being that is a very active sport, not only that but she is going to be around lots of kids. is she going to be…

Started by Saida Z. (Ariana's mom). Last reply by emine hasoglu 1 day ago.

Saida Z. (Ariana's mom)

Wigs for children 19 Replies

Has anyone gotten a free wig from a non-profit organization? I've been trying to contact children with hair loss but had not luck. I like to get one for my 6 yr old that looks natural and that will s…

Started by Saida Z. (Ariana's mom). Last reply by Saida Z. (Ariana's mom) 1 day ago.

Christine & Mya

Alopecialooza 15 Replies

Have any of you been to this?

Started by Christine & Mya. Last reply by Ellie 1 day ago.

Jen Deletto

CAP CAMP 5 Replies

Anyone going to the CAP Camp this summer? We decided to go and are super excited!

Started by Jen Deletto. Last reply by Ellie 1 day ago.

june edwards

going to school 10 Replies

i have a lovely little girl isla who will be five on thursday she has had alopecia since she was two and a half she no hair at all or eyebrows or eyelashes. she starts school in august which she is r…

Started by june edwards. Last reply by june edwards 1 day ago.

Comment Wall

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Ellie Comment by Ellie on March 12, 2010 at 5:35pm
Saida,
My daughter is 5 and we get looks but nothing like your hat incedent. We were at a resturaunt and (my daughter had her wig on) after a while she took it off. we weren't bothered by it but I could feel stares coming form around the place. she want to the bathroom must have been 6 times. A couple with her wig , a couple with out and a couple with a scarf on her head.We got a lot of stares.
Saida Z. (Ariana's mom) Comment by Saida Z. (Ariana's mom) on March 11, 2010 at 1:51pm
Hi everyone i wanted to share something that happened to us at a restaurant. We were eating minding our business next thing you know the waitress comes with a sombrero and puts it on my daughter with out even asking if we were ok with it, maybe she ment well, I just didn't know what to say, there were other kids there my daughter is the only one that got one, so is not something the restaurant does, and of course my daughter takes it off and puts it on her sister who is one yrs. old. I think that people were starting to feel unconfortable like in everywhere we go we get the stairs as if we're aliens or something. I just don't get it if its ok for a bunch of men to walk around with their bold heads why isn't it ok for girls to walk around bold. I feel much better now thank you
Fizza Comment by Fizza on March 2, 2010 at 1:27am
Just wanted to send out a positive vibe. I just came back from a Pro Makeup Show in LA and there was a very good looking young guy with AU working at the show! I would have thought it was a strange place to work but just goes to show AU doesn't mean you can't work in the beauty industry!
margaret and nicole Comment by margaret and nicole on March 1, 2010 at 10:49pm
Wendy that is interesting--Graves is rampant in my husband's family.
german mama in NY Comment by german mama in NY on March 1, 2010 at 7:39pm
Hallo, in my daugthers AA case, my husbands 3th grade cousin have AA, she got it when she was ca. 2 years old, and she is now 28 years and still no hair on the head, she did not loose here other hair, so my daughter " only" the head, so "I" believe it is genetic, like so many other autoimmune diseace!!
Tammy -mom of Ramsey Comment by Tammy -mom of Ramsey on March 1, 2010 at 9:32am
My husband told me he remembers having a huge bald spot when he was young, but it grew back so he never thought anymore of it. I rember a chunk of hair falling out while I was in college (right at the front of my hairline), but again, it grew back, so I didn't worry about. Also my nephew had some bald spots when he was very little. None was ever diagnosed with it though, so I have no cluye if any of us have it. My daughter is doing very well now after suffering for over three years. She has about 95% of her hair.
Wendy Willeroy Comment by Wendy Willeroy on February 27, 2010 at 8:47am
My son is the only one in my family that I know of with AA. His dermatologist and pediatrician both said that most of the time there is someone else in the family tree with some type of auto-immune condition (my mother has graves disease) but not necessarily AA.
Fizza Comment by Fizza on February 25, 2010 at 7:51pm
My brother has alopecia barbarae. No one else that we know of and now my 17month old son.....
Monique (Mom) Comment by Monique (Mom) on February 25, 2010 at 7:48pm
My daughter is the only one in my family as well.
Ellie Comment by Ellie on February 25, 2010 at 5:20pm
My daughter is the only one that I know of in my family.
 

Members (298)

Cindy and Samantha Miranda Jen Deletto Ellie Sara and William BaldGirlsDoLunch.org Nancy Schmelzer Melani Molina Saida Z. (Ariana's mom) Hillary Howard Lillian (Tracy-mom) Angie, Gracie's mom margaret and nicole Debbie Lopas Children's Alopecia Project Alyssa and mom Lori Danielle  & Lilly Siphnaki Tammy -mom of Ramsey Karen( Mom) Monique (Mom) Lara Mommy stacey Christine Messner JOSE CHARQUENO Shay and my girl Kaleigh :) Fizza Lynn AKA Mom of 2 w/AA Pam (Julia's mom)
 
 
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