Parents of Children with Hairloss

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Parents of Children with Hairloss

Here you can talk amongst other parents about treatments, highs, and lows.

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Latest Activity: Apr 17

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Children with alopecia in New Zealand

Started by MummyWendy Apr 17. 0 Replies

Hi all My daughter (aged 8) has recently been diagnosed with alopecia, and has lost almost all her hair very quickly. It's been tough and she's been a bit up and down about it, but in general she's…Continue

Need help with wig advice for 9 yr old girl..pls!!

Started by agarshu. Last reply by Tennessee Mom Mar 29. 2 Replies

Dear Moms and DadMy daughter was recently diagnosed with AA and in the last 3 months has lost quite a bit of hair. It is time for us to start looking for the right wig solution of her but I am very…Continue

Itching and pain with alopecia universalis

Started by Joleen Weber. Last reply by agarshu Mar 27. 3 Replies

My 7 year old daughter has recently been diagnosed with AA which quickly turned into Universalis. She has lost about 90 percent of the hair on her arms, legs and back. She has been complaining a lot…Continue

8-yr-old daughter diagnosed with AA in Dec 2013

Started by agarshu. Last reply by german mama in NY Mar 11. 2 Replies

Hello Moms and Dads,My 8 yr old was diagnosed with AA in Dec 2013. Started out as 3 patches, one in the front and 2 on the sides. It has been 3 months now and she has been losing rapidly. The…Continue

A young diagnosis does not mean continued hair loss issues

Started by Lynn AKA Mom of 2 w/AA. Last reply by Laura B Mar 1. 8 Replies

Hi everyone! At ages 8 & 9 - both of my kids were diagnosed with A.A. For a few years they treated with creams - and then about two years of Kenalog injections. They have now been A.A. free for a…Continue

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Comment by Janice on January 30, 2014 at 5:51pm

So today was the day that my daughter decided to share with her class that she has alopecia. I was there early to pick her up to go get some blood work done. I got to see her tell her class. She did a great job explaining it. Now she says that she will not feel like she has to hide it at school. Today was a great day! There have been a lot of not so great days-  but today was a good one! Just had to share! Very proud!

Comment by Janice on January 27, 2014 at 12:01pm

My daughter is using head bands right now to cover her spots. I am wondering what hats etc are best for using after the headbands are not longer doing the job?Yes she knows she has Alopecia. We talk about it with her. She is getting ready to tell her classmates, but is not there yet. So just wondering what works best.

Comment by Mystery mom on January 23, 2014 at 11:49pm
Hello parents just wanted to share my story and see if anyone has a similar one. My daughter as as an infant lost her hair and eyebrows around 5 months of age and her regrowth took long to come in. The regrowth was dark and wiry and coarse but her eyebrows are spare. Her hair is pretty thin but you couldn't tell because it is so "puffy" because of the texture and sticks up all over the place. We get lots of stares and sometimes comments. We met with the amazing ped. dermatology group at Columbia Presbyterian and also met with Dr.Christano. We are awaiting a diagnosis..but it is leaning towards Marie unna Hypotrichosis and most cases report complete loss of hair in the first decade of life. Has anyone ever heard of Marie unna?? I hate not knowing what will happen to her.
Comment by Janice on January 15, 2014 at 7:30am

Hi My daughter was diagnosed at 2 with AA. She is now almost 7 and has been lucky that she has only had a few patches here and some bigger and most the size of a quarter. Usually she has been sick with a cold and that is usually when the patches show up- until now. Right now she has lost alot of her hair on the top and right hand side of her head to her ear. And spots on the back of her neck. No sign of a cold or flu. if worries me that she has had no cold or I guess reason for her hair to fall out. it has never been this bad before. Now just wondering if anyone else has had this happen. I am also looking for help on preparing her to tell her classmates. My daughter knows she has it and is for the most part has accepted it pretty well. As she has been pretty much spot free she has had no need to tell her classmates. I am trying to help prepare her to tell her class- but wondering if anyone has any tips to make this as stress free for her. Her teacher is amazing and supports us 100% so I know if there is any hurtful comments they will be dealt with. Also wondering if anyone lives on or near PEI, Canada with AA?

Comment by HSchram on November 4, 2013 at 2:33pm

Hello, my son is 15 years old and was diagnosed with AA in May.  I am looking for others who may have children or teens who are dealing with AA.  I hear about support groups but am uncertain if there are any with just children or teens. I would think they would be more comfortable sharing with others in their age range than in a group with all  adults.  I live in Northern NJ (Morristown, Morris County area).  I posted this on New Jersey group as well.

if you have any information or any ideas please reply. Thanks!

Comment by Annette on October 21, 2013 at 3:11am

Hi - I am a mother of 4 children (13, almost 12, 9½ and 5 years old) - three of my children have alopecia:

My daughter got one spot 3½ years ago (1 cm) - it is still the same size and she didn´t get any other spots (she was 8 when I discovered her spot and she never get a treatment).

My oldest son (now 13) got 3-4 spots when he was 7 years old - and they were pritty big. He got a kind of light-therapy and all hair came back within a half year. About one year later he got 2 spots again - but no treatment - and all hair came back anyway. Right now he has got all his hair.

My youngest son (9½) got 1 spot 8 weeks ago (ca. 1 cm big) - he is loosing some hair but you can´t really see any difference.

(My sister in law has alopecia universalis).

I really hope that we are lucky and that my children "just" have alopecia areata and not totalis/universalis..... But WHO knows??

Comment by Deeann on October 19, 2013 at 3:22am

Hello everybody.  I'm not active in this group, as I am an adult with alopecia, even though I was diagnosed at age 7.  I am currently AU, and am writing a book about inspiring people and their stories.  I have an entire section dedicated to kids and how they react to it, and are fully living their lives.  My own experience was not as positive as I wished, and I am hoping to hear from kids who have made a difference in order to encourage others. 

I've just finished my website for "Head-On, Stories of Alopecia" and it's up and running. Please check out www.baldgirlsrock.com to get in touch with me, or contact me directly at alopeciaoutlook@gmail.com.  Feel free to "like" me on Facebook if you have an account.  My page is "Head-On, Stories of Alopecia".

I'm looking for additional stories to add to the growing number of phenomenal ones I have so far. 

The alopecia community has always been so supportive of one another, and my hope is that word of this project will spread like wildfire. I look forward to hearing your story.

Comment by MychildhasAT on March 15, 2013 at 2:45am
Is there a support group in Las Vegas, NV?
Comment by Angie on February 7, 2013 at 3:03pm

If anyone knows of someone who lives in the DC or NoVA area and would like to join our alopecia group, please visit our Facebook page and request to join the group.

http://www.facebook.com/groups/canaaf/

Comment by Iris Mendez on February 6, 2013 at 10:42pm

today i feel :(

 

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