Today i feel like just sleeping all day! I hate getting up taking a shower and running my hands through my hair and coming out with clumps upon clumps of hair falling out! I can't comb my hair or else it just rips out! I also can't really do anything else with my hair but wear it up in a pony tail and put a thick head band on. Sometimes when I am talking to people in class or in public i see there eyes wandering up (or down cuz im really short) to my head and i can tell what they are looking at! That sucks but i can't be mad.... its just human nature to be curious about the unknown. Also when i go to the gym i will sweat just like anyone does at the gym and it makes my hair clump together and my spots are really out there for everyone to see...

worst of all my boyfriend theother day commented like an idiot...." I don't really like bald " .... my comment back to him ... Well sorry your kinda SOL .... its its happening whether you like it or not! That comment really makes you think! ....

I guess when Alopecia you will really realize who your friends are! some people are only skin deep....

Views: 22

Comment by Casee on August 31, 2009 at 10:31am
mine does the same right now...I can only barely cover mine in a ponytail, so I wear like that all the time...and the spots show through until it is totally dry.....are you going to get a wig...I got one last week and put it on standby.....and no that was not a nice comment from boyfriend.
Comment by ana on August 31, 2009 at 3:42pm
i know exactly how you feel. i always put my hair in a pony tail because if i put it down my bald spots are really noticeable. And i dont really like exercising in public because when my hair gets wet you can notice that my hair is really thin. i have good days and bad days ... but we just have to keep on going!
Comment by Karen on September 1, 2009 at 11:08pm
I know exactly what you mean about showering, and combing your hair! Every day I hope less and less will come out. Which lately is exactly the case, thank God! But I have huge areas and I can't wear a pony tail with dignity anymore! The only place I feel comfortable enough to wear a pony is in my house with my family around. They are the only people that I don't catch checking me out! It's creepy!
Comment by Tuesday on September 1, 2009 at 11:23pm
Tccch. Oh, I feel your pain. I have AU. My AU came about rapidly - in a matter of weeks. But I recall clearly going to the gym and showering and blow-drying my hair and being very upset as I stood along side every other woman. Hair falling everywhere and feeling like crying and angry at the same time. I'm not sure what to advise - I guess if I had to go back, I'd have cut my hair shorter earlier to avoid the trauma of the long strands shedding. Wearing beautiful scarves and earrings to hide spots could help too. Just wanted to say I hope it all gets easier for you!
Comment by Ann Laurie on September 2, 2009 at 7:18am
Thank you Karen and Tuesday!.... I really apreciate the advice... I want to cut my hair now! but my family is freaking out! they don't want me to do anything drastic. They still think there is a magic pill or something that is going to cure me! when i know that thre just isn't! I think i am going to go this weekend and get it cut shorter! I am concerned with my working tho! I am a STNA and I don't know if my work place will accept me wearing scarves or not! It sucks! I have to look into that!
Comment by Barbara on September 2, 2009 at 9:12am
I am so sorry! I know what you are going through. 2 days after diagnosis I had ordered a hair piece. I am now on vacation with another couple and covering up as well as I can. I was able to get in the pool - yes wet hair!!! I bought dermatch or dermamatch and used that before going in. I popped a baseball cap on my head when I got out. No one noticed (and my husband gave me a quick check in the pool for baldy-spots showing through. I have a hair piece over the back of my head that I can ponytail, or pony tail under a cap. I put a hair band over the place where I clip it on. Combined with the dermmatch on my temples, I can be somewhat confident. Though when I sit down I am always trying to maneuver myself so no one is talkng to me "from above". I want to make sure their eyes are on my face. insecurities! Hope you come up with a solution that works for you!
Comment by Ann Laurie on September 2, 2009 at 11:30am
yeah im fourt foot nine ... lol so everyone talks down to me... i watch peoples eyes as well! it sucks lol but i am looking around for wigs now and trying to figure out what the best option is!
Comment by Emily Horsley on September 2, 2009 at 1:10pm
I'd had small patches most of my childhood and always covered them by wearing my hair different ways then in my 20's it got worse and worse, i tried expensive hair replacement techniques that worked at the time but as it continued to get worse I just shaved my head one day and bought a wig, it was far less stressful than trying to make my own hair do something it couldn't. Now I've gone without a wig - it's not for everyone, but for me it means that any idiot blokes that 'don't like bald' dont have to aproach me cause its out there for everyone to see. This is the first time i've been single wihout my hair and I've not struggled to get the attention of some lovely blokes, in fact i'm going on a 3rd date with a very handsome bloke tomorrow and he's never seen me anyway other than bald - it's whats on the inside that counts!
Comment by Mary on September 2, 2009 at 1:25pm
Hang in there, Ann. I went through this for a number of months until I couldn't hide the bald spots under my dwindling hair. Then I got a wig and tried to wear it, but just couldn't. I've been going out in public bald for over a year and a half, and it's just "normal" for me now. My prep for the day consists of putting a little brow powder on, and sunscreen on my head. It's very liberating - but I know it isn't for everyone. Good luck and remember what Emily said - it's what's inside that counts.
Comment by John M. on September 4, 2009 at 2:12pm
Believe me, I know the feeling. I had put a "shower" blog out there a few weeks back due to the same bloody frustration. I used to LOVE keeping my hair short, buzzed, and spikey up top. I would rarely go more than 3 weeks w/o getting a haircut . It's been over 2 months now...hanging on to every bit I have!!! Need to, so I can continue my farce of a comb-over to conceal my crop circles. No worries though...chin up, hang in there, and don't forget who you are (with or without your hair). Cheers.

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