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willow's Discussions

Aopecia And Sinus's

Started this discussion. Last reply by Squonk Jun 21, 2008. 1 Reply

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Latest Activity

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Janie commented on willow's photo
yes Willow u & Your husband have a very beautiful daughter, looks like you,
Aug 6, 2010
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willow commented on rj, Co-founder's video
I think they should all shave their heads, take all makeup off, and their push up bras, and apologize to all people who have Alopecia. Making dumb cone head jokes is unacceptable. If we were Quadriplegics' could they make fun of how the look or…
Jul 1, 2010
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willow commented on Alopecia World's group 'National Bald Out'
Sorry to hear Mary, I often say,,,,"sometimes I don't understand some people"!! Sad it caused you so much stress. Blessings
Apr 15, 2010
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It is absolutely beautiful today, sun's rays are warmly saying Spring is coming, yaaaayyyyy!
Status posted by willow Mar 2, 2010
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Photos posted by willow Feb 18, 2010
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Hello to all my friends on Alopecia World
Status posted by willow Feb 18, 2010
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willow left a comment for Mary
wow Mary, what an adventure, looks like a life time experience, Thank you for sharing!
Feb 18, 2010
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willow and Janie are now friends Sep 28, 2009

Profile Information

Relationship Status:
Married
About Me:
I have had alopecia universalis since I was 7 yrs old. After 35 yrs, I finally accepted my beautiful head, put a gorgeous tattoo in the back, and let go my wig. Then I met the most special man, and we were married. Unlike all those around me, his support was in his actions, to shave his head, so we both have a beautiful head. Some days I still feel insecure, but he quickly reassures.
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes

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Comment Wall (36 comments)

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At 8:31pm on August 30, 2009, Tracy and AmandaTracy and Amanda said…
Hi Willow,
How are you?
Tracy
At 11:20am on May 11, 2009, MaryMary said…
Thanks, Willow!

Take care,
Mary
At 6:24am on December 31, 2008, RogerRoger said…
At 12:35am on September 29, 2008, DottyDotty said…
Hello my friend,
Big hugs to you. Nice to hear from you. I know what you mean about the summertime. I didn't have a minute to myself. Thinking of you often though.
Love and Hugs,
Dotty
At 10:17am on July 14, 2008, DottyDotty said…
Hi Willow,
Happy Monday. Just stopping by to say Hi and give you virtual hug. ((((((Willow)))))) Hope you had a good weekend.
Love and Hugs,
Dotty
At 7:49am on July 12, 2008, Rose Marie'Rose Marie' said…
Hi Willow

I just read your last post and thought I might leave a small message here for you. You have said that Vacuum Wigs are not available in Canada. I think that if you were to contact Debbi Fuller or Karen Peterik on this site - they may travel to Canada. I'm not sure but if you are interested it may be worth the phone call.

Good luck.

Rosy
At 7:43pm on July 11, 2008, MandyMandy said…
Awww thanks for the sweet comment. ;o)
At 9:03am on July 10, 2008, MandyMandy said…

At 7:09am on July 9, 2008, CarolCarol said…
Hey Willow,
If all goes well with getting a Canadian organization formed we can hopefully have our own conference. Bring your camera, it'll be like a family reunion! :)
At 7:15pm on July 8, 2008, DottyDotty said…
Hello my friend,
Just checking in. Hope you are doing well and are enjoying the weather. As far as your family is concerned, it's their loss!!!! My family was pretty weirded out when I ditched the wig for tattoos, but then they just knew that it is what "I" needed to do for "ME" and I really didn't need their permission to do so. They all came around eventually and actually think I'm pretty "cool" My husband and children are really the only ones that I actually cared about their opinion, and they were very supportive through everything!!! I hope that your family comes around too, but if not, you have your family here!!!! Hey, did I tell you that I just won a tattoo contest??? I got a $500 gift certificate for a tattoo!!! WooHooo!!! Now I just have to decide what I want next. I really need to find something special and not something random. Every tattoo (other than the flowers used to fill in) has a meaning to me. This one will too. Any suggestions?? LOL
Love and Hugs,
Dotty
 
 
 
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