Hi im good thanks for asking, and can i just say your profile pic is brilliant haha very funny my husband put a wig on of mine once and he looked like Frank Gallagher from shameless lol
HI Joe!!!! cool profile picture!!!
How are you doing mate , i hear you got picked to captain your footie team GET IN THERE!!!
See you soon matey i will bring Jack round to have a kick about with you xxx
I am claire from manchester england, im 32 and have had alopecia universalis for about 17 years, I wear wigs and honestly love them,
I love music and going to gigs fave music is Arctic Monkeys, Stone Roses, The Beatles, Happy Mondays, The Enemy, The Jam,Paul Weller loads more.
I get married in 8 weeks time to Dave my long suffering husband to be I have 3 children Alex 11,Jack 8 and baby Alfie 2
I would love to hear from anyone!!!!
I have got years of expieriance on dealing with some of the issues that alopecia can cause and would really like to help anybody and if you think my advice is not so good you can say shut up Claire ha ha I wont mind xx
I have added some pictures of my wonderful friends and family who all support me I dont know if this is the norm on here but i would like people to see them, I will get some of them to join this site, I feel it would be good for them to chat and meet others who have the same condition as me, and maybe speak to other family/friends who have a loved one with alopecia.
Hi Claire...I´m from Argentina...I´m scared cause I can´t stop my hair falling out...my dermatologist affirmed me that is not alopecia but only sress but I´m worried. I want to ask what type of wig do you wear and if it´s comfortable. How do you deal with this issue?
Hiya Claire, haven't been on here for ages (about five months)! It has been crazy at work. We have been soooo understaffed! we lost one due to cancer, one due to stress and the other one just left. We were only a team of seven so as you can probably imagine it has been hard work, so haven't had much time to myself. Plus my hairloss got alot worse, so I guess I was trying not to think about it too much. I went on to Yasmin birth control a couple of months back and it really stabilised my loss, I was absolutely buzzing. However I kept getting migraines, so the doc said that I would have to come off it because of increased risk of stroke grhhhh! typical ay! oh well. So now lodgic is telling me with the tiny amount of hair I have left and the rate it is coming out, there isn't going to be any left soon enough. Do you know though Claire, I have ot to the stage where I can't be arsed worrying about it any more, what will be will be. Last summer I spent wearing casual clothes and baseball caps, which is fine, but as a person I have always liked wearing nice feminine clothes, I can see now my confidence must have been dead low. I think my confidence is still low, but I'm not having it! I'v been out the last few weeks and bought some gorgeous summer clothes that I feel mysel;f in, not a trainer or baseball cap in sight! will keep them for when I'm chillin. On a very positive note, I am off to V Festival in August, Yipee!!! can't wait. Amongst other playing are, Oasis, Snow Patrol, Happy Monday's and the Killers. Anyway how are you doing? See you added some new piccies since the last time I looked, your'e looking lovely, really well. I have avoided piccies since my hair loss excellerated, again though, not having it anymore, so will be posting some shortly. The one I put on is recent, it is me and my flat mate, we were a little bit pissed there to say the least, there were other piccies from that night, although my eye makeup spreads progressively away from my eye's and over my face as the piccies go on (the intoxicated look) LOL. Anyway how you doing? hope all is well. Take care xx
Well, yes I did watch your video and I really liked it. Your pictures are beautiful and you look great. I also have 3 kids, 2 daughters (11 & 9) and my little prince of 5 months.
I had never heard of Alopecia until it happened to me, and it was so fast, I went from having a very full and healthy hair to having nothing within months, but everything happens for a reason and I know God is with me in the middle of all this.
Thank you so much for sharing your story on that video, it has made a big difference, thank you.
Hi Claire, I found out about Alopecia World thru you, I did a search in google and found your youtube video, I loved it. I decided to join and wanted to thank you.
hi hunb, theres nothing i can pinpiont to cause im not really a stressful person let things go over my head altho i am a bit of a thinker.. i went dermatologist on monday waited about 2mths for appointment tho and he just said 50-50 no sign of regrowth bit its really big i cant wear my hair down but can cover it in ponytail.. im just that fed up i just want to shave it hun.. im not to sure on what wigs to but didnt relise there so many options and styles ect lol.. my family and friends ok with it think they find it bit difficult to talk about but i just chack a joke and they seem ok .. ive told ppl in work as if i do have brave days wen i hav my hair down but scrapped back in head band i dodnt want them to see and not know what it was plus if i woke one day and i didnt have any best to get it out of way really ... i watched your video i thought it was fab your very brave and your attitude is fab.. im kinda like that no point in getting worked over something i cant change altho id be lying if i said i didnt have down days ... and i promise if i dont use my wigs you can get first dibs lol .. hunni xx
lol ill have a look at that hun.. ive been looking in that paul hair world in manchester.. im not under any hospital at the moment took them all there time to get me an appointment with dermatologist, he gave me some cream and something to stop the itching, im not sure what to do i just keep thinking at least i can hide it but i feel dead scruffy sorry hun waffling .. x
at the moment i can cover it as long as i have it in a pony tail cant have it down no more.. i just have the one patch its quiet big and my hair has thinned out too.. im thinking of shaving it have going for the wig option. went to dermatologist today no sign of regrowth, ive had it for 4mth's just semms to be getting bigger but no other patches which i find the most frustraing i just wish it would either go or grow if that makes sence lol... dermatologist was no help bless him.. i guess ill just have to wait and see but swaying more to shave it also itchyness is driving me mad tooo x
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