"http://globalalopeciamission.org/asking-questions-support/"
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btflbaldgrrl
- Female
- Burnaby, BC
- Canada
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btflbaldgrrl commented on Tanya's group Vancouver Alopecia Areata Support Group"Good luck Elizabeth!
We had a great - small - gathering today. Appreciated being able to host. : )
Curious as to the negative reviews, as what I read in Karina's post was concerns about the cost and duplication of testing. Is there a site that…"
btflbaldgrrl commented on Tanya's group Vancouver Alopecia Areata Support Group"Sorry to hear that Karina, as well as for others who cannot attend tomorrow.
Next time! : )"
btflbaldgrrl commented on Tanya's group Vancouver Alopecia Areata Support Group"Honest views most welcome Karina! I could not afford expensive testing myself right now . . .
Thanks for the words on the article. : )
Will we see you tomorrow?"
btflbaldgrrl commented on Tanya's group Vancouver Alopecia Areata Support Group"A bit more of my view, and support for the alopecia community . . .
http://globalalopeciamission.org/asking-questions-community/"
btflbaldgrrl commented on Surraugeny Sanders's blog post 20/20 - Make it stop!"I was pleased to see this second showing of the documentary was titled Medical Mysteries, and not My Extreme Affliction. I was pleased to see Georgia alongside other medical conditions, and not a hoarder and an "owner of many cats." And I…"
btflbaldgrrl commented on Tanya's group Vancouver Alopecia Areata Support Group"In case anyone missed it the first time, ABC's 20/20 is reairing Georgia Van Cuylenberg's interview tonight at 10pm pacific.
We are also getting close to our next gathering. Not sure everyone is using the calendar, so if you are able to PM…"
btflbaldgrrl commented on Tanya's group Vancouver Alopecia Areata Support Group"Yoga update . . .
I had a really affirming and open conversation with the manager of Yyoga Highgate this afternoon. She is committed to the idea of running a workshop - yin for the vancouver alopecia areata community. She is going to explore it…"
btflbaldgrrl commented on Tanya's group Vancouver Alopecia Areata Support Group"Yoga update . . .
I am in the process of scheduling a meeting with the manager of Yyoga Highgate. She is interested. : )
Our next gathering . . .
- my home, Sunday 27 May, 2-6pm (message me if you need address and directions, I am near Edmonds…"
btflbaldgrrl commented on Tanya's group Vancouver Alopecia Areata Support Group"@Tanya - See my post from Tuesday. : )"
btflbaldgrrl commented on Tanya's group Vancouver Alopecia Areata Support Group"Yoga update. My yin instructor is extremely interested in leading a class for us!! Stay tuned. : )"
btflbaldgrrl commented on Tanya's group Vancouver Alopecia Areata Support Group"As this was the inspiration for suggesting a local yoga class and it has now gone live, I thought I would share my friend Robert's website. Too bad we cannot make a roadtrip to the UK. ; )
http://www.toasted.biz/clubalopex/"
btflbaldgrrl replied to btflbaldgrrl's discussion What are you looking for in an alopecia areata support group? in the group Vancouver Alopecia Areata Support Group"http://globalalopeciamission.org/the-truth-about-alopecia-areata/
The above is a very powerful article - be warned - and very honest. I think it is a great voice in terms of what one individual wants - and feels - in relation to AA."
btflbaldgrrl added a discussion to the group Vancouver Alopecia Areata Support Group
Alopecia Areata: Useful Summaries
http://www.dailymail.co.uk/health/article-362256/Alopecia-What-need-know.htmlArticles such as the one above are valuable for our own understanding, and to explain the context of the disease to others.See More
btflbaldgrrl commented on Tanya's group Vancouver Alopecia Areata Support Group"http://www.dailymail.co.uk/health/article-362256/Alopecia-What-need-know.html
I think this is a solid summary of the current state of AA, "even" including the stress element.
Cheers all."
Profile Information
- Relationship Status:
- Single
- About Me:
- I have had alopecia for more years than not, and would like to share the person I have become with those that are experiencing a similar truth. I know I will receive something in return. : )
- Do you have alopecia?
- Alopecia universalis
- Are you age 18 or older?
- Yes - I am 18 or older
btflbaldgrrl's Photos
Comment Wall (6 comments)
- At 5:06pm on February 12, 2012,
Nikks79 said… Hello! Thank you for the add : ) Hope you are doing well!
- At 8:01am on February 11, 2012,
Jennifer Krahn said…
Hello. I don't know what I did wrong with the facebook link for CANAAF...I assumed copy and paste would work (arghhhhhh)http://www.facebook.com/index.php?lh=f0c30a2e691baed46e8ed098f3c5787c#!/groups/138725316179572/ (second try) You can look them up from their webpage perhaps??
As for getting a support group up and running it seems like crickets in my city. I have met a few people with alopecia but most don't want to meet as a group. I was thinking of heading to a couple local wig shops to post informative posters about a meeting but my major issue is that for me a support group is a conflict of interest as I am now a Rep for Freedom Wigs and I don't want to come off as trying to sell a product. What I have been trying to do is see if my clients would like me to hook them up to begin support groups in their area (with their permission of course)or I refer them to CANAAF. I would LOVE to start a group and really get it to fly...there are so many amazing people with alopecia to meet!
- At 4:04pm on February 8, 2012,
Thank you for the request. Love the pictures you have! Your tatoo is fantastic!
- At 11:54am on February 6, 2012,
Sandra Fournier said… Thanks of the friend add!
Cheers - Sandra
- At 5:13pm on September 27, 2011,
JBean said… - Hi! Im from Vancouver too...although I have yet to go to a meeting. I want to, just need to find the time! Hopefully we'll run into each other some time. Good to hear from you!
- At 5:42pm on September 21, 2011,
LeslieAnn Butler said…
- Hello and welcome!
How are you today? I have AU, too.
Leslie Ann
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