"Hi Rose,
How r u doin? Hows ur day?"
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Treatments of Topical Immunotherapy, PUVA or UVB
Started this discussion. Last reply by Cindy and Samantha Dec 31, 2008. 4 Replies 0 Favorites
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Henrik left a comment for Rose"Hello. I didnt see your answer until just now.. although thats probably partly due to me being rather inactive though :P
I have never been in Lissbon, but If I ever go there Ill be sure to visit that place =D
Hugs / Henrik"
Henrik left a comment for Rose"Hello. I didnt see your answer until just now.. although thats probably partly due to me being rather inactive though :P
I have never been in Lissbon, but If I ever go there Ill be sure to visit that place =D
Hugs / Henrik"
elaine replied to Rose's discussion I would like to know if anyone has done the treatments of Topical Immunotherapy, PUVA or UVB and what are the conclusions! in the group Alopecia Universalis"Hi Rose
I had the PUVA treatment and for me it did not work nor did the Ultra violet lamp. It may work for some but not all. I have even had the cortisone injections into my scalp but again that did not work. Will keep my fingers crossed for you…"
Profile Information
- Relationship Status:
- Single
- About Me:
- Hi. I live with alopecia universalis since I was 11. Everything started very fast and when I realized had no hair. I think that was the worst time to happen because I was starting to be a teenager! Here in Portugal there is not much support and nobody knows this problem! There is much bias! For three years I refused to wear a wig because I always thought that would be ridiculous. But inevitably began to use, coinciding with the change to another school and from there almost only kept this secret with me. It may have been a mistake but when you are 15 years old is a very difficult time to deal with all this. I lived my life as someone else but now, when I'm 25, I understand have to start to change and begin to share this with others, even while continuing to wear a wig. People who will reject me is because will not lack in my life! I wish find here, in this great community, support for a new life!
I visited the website to share information and experiences!
- Do you have alopecia?
- Alopecia universalis
- Are you age 18 or older?
- Yes
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Comment Wall (27 comments)
- At 10:30am on March 23, 2009,
Priya said… - Hi Rose,
How r u doin? Hows ur day?
- At 12:17pm on February 9, 2009, Henrik said…
- Hello. I didnt see your answer until just now.. although thats probably partly due to me being rather inactive though :P
I have never been in Lissbon, but If I ever go there Ill be sure to visit that place =D
Hugs / Henrik
- At 6:25am on January 29, 2009,
Ele said… - Ros Hello!
Siii! Estube in Lisbon but was too peqeña and not the truth and I agree! Jaja
We are very near!
Kisses and happy to meet you!
- At 9:06pm on January 27, 2009,
Leon Johnson said… - Aww...thanks for the comment. You look great with or without hair! I'm a singer and painter. I've not picked up the brush in a while but I'm focusing more on my voice as the money maker. Hope all is well. God bless.
- At 6:11pm on January 26, 2009,
Paula said… - Olá!Também sou portuguesa. Tenho alopécia desde os 18 anos. Agora tenho 26 anos e também uso peruca. Deixo-te aqui o meu e-mail: paulinha_03@hotmail.com.
Bjs
- At 9:36am on January 15, 2009,
Roger said… - Hope you can get together someday with Helga !
Kisses.
- At 5:04am on January 11, 2009, Roger said…
- Olá Rose.
Have you been able to get in touch with Helga from Porto yet?
Hugs, Roger.
- At 12:28pm on January 7, 2009,
Salmezan said… - Hi Rose! Thanks for the comment. I am in UK at the moment, we should meet up if you come here for a visit! It would be real lovely to meet someone who has been through what I have. Take care and Happy New Year!! xx
- At 12:26pm on January 7, 2009, Salmezan said…
- Thank you Rose! :)
- At 7:15pm on January 4, 2009,
nenad said… - hiii
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