Minter
  • Female
  • Albany, NY
  • United States
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Latest Activity

Minter replied to Minter's discussion Lace Front Topper in the group Frontal Fibrosing Alopecia
"I just ordered the Uniwig Claire Remy 5.5 inch topper,  Having the 25% off discount until April 16 it made it well worth it for me as it is a lot under $200, so I got myself a little wig stand and extra clips and upgraded the shipping while I…"
Apr 13
Minter replied to Minter's discussion Lace Front Topper in the group Frontal Fibrosing Alopecia
"I agree!  Granted, I am only about 2.5/3 hours away from NYC- but it is not so simple to get into the middle of Manhattan every 6-8 weeks for the needed maintenance and with the travel expenses of either driving and paying for tolls/gas/parking…"
Apr 13
Airam-FFA replied to Minter's discussion Lace Front Topper in the group Frontal Fibrosing Alopecia
"In the UK Lucinda Ellery have opened a couple more but agree, if they could work with beauticians and hairdressers it would make the system more available for many others. I guess eventually others will provide a similar interlace system so would…"
Apr 12
Dee replied to Minter's discussion Lace Front Topper in the group Frontal Fibrosing Alopecia
"This looks like a great topper.  I'm going to order.   If any of you have others top pieces that you recommend please let us know.   For those of us who do not live in or around New York or LA close to the Lucinda Ellery studios,…"
Apr 12
Minter added a discussion to the group Frontal Fibrosing Alopecia
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Lace Front Topper

 Has anyone used this Uniwig Claire Remy Human Hair Lace Front Topper  41534-upgrade-claire-remy-human-hair-topper.html or a similar…See More
Apr 12
Minter replied to Dragon&Fox's discussion Columbia U Derm Dr's, Dr Angela Christiano and my own, Dr. Lindsey Bordone are starting research. in the group Frontal Fibrosing Alopecia
"Actually, I don't have any "gut" problems that I know of anyway, other then G.E.R.D., but thankfully it is controlled with medication and only flares up badly if I gain a few pounds or eat too much- but maybe that is my…"
Apr 12
Minter replied to Dragon&Fox's discussion Localized spot at hairline/forhead on left side burning non stop (or frost bite burning feeling) also Atophied skin.... in the group Frontal Fibrosing Alopecia
"Oh my gosh you have been through the wars Dragon&Fox!  That scarring does not sound good at all, there must be something other then clobetasol that your doctor can prescribe to sooth your skin? As for me, I find the  tea tree oil…"
Apr 9
Minter replied to AnnieMay's discussion New member, diagnosed yesterday and feeling SO down in the group Frontal Fibrosing Alopecia
"AnnieMay, you aren't alone, we are all here for you.  I am 52 and was diagnosed last summer, though I think this has been happening for some time before I realized that a receding hairline and thinning hair are NOT part of getting older!…"
Apr 8
Minter replied to Dragon&Fox's discussion Localized spot at hairline/forhead on left side burning non stop (or frost bite burning feeling) also Atophied skin.... in the group Frontal Fibrosing Alopecia
"That burning feeling must've had something to do with the acupuncture? That could not have been pleasant at all to deal with Dragon&Fox, it sounds just awful.  I do agree with you about hair keeping one looking good, sigh, never knew…"
Apr 8
KarenD liked Minter's discussion When did/do you decide that you need helper hair?
Apr 6
Minter replied to Minter's discussion When did/do you decide that you need helper hair? in the group Frontal Fibrosing Alopecia
"Thank you for sharing and posting your photo Lo! That's pretty interesting that you cut your own pieces from a hairpiece to fit, I don't know if I could cut a hair piece, but then the more I think of it, the more it makes sense as you know…"
Apr 4
Mima4ever replied to Minter's discussion When did/do you decide that you need helper hair? in the group Frontal Fibrosing Alopecia
"Yes my derm said losing eyebrows totally is sign of FFA. Every hair stylist should be on the alert for these things. Mine just kept saying different ways to fix that didn't work. We sound like identical hairlosing profiles. And my scalp is…"
Apr 3
Minter replied to LVL's discussion What is everyone using to help prevent FFA from getting worse? in the group Frontal Fibrosing Alopecia
"It is beyond words how great it is to have this place to come to! I was just thinking back to when I first joined last summer and I was upbeat and thinking ehhh, this is doable, it is just hair, I can handle this-  to now when I am angry, just…"
Apr 3
Helen M replied to Minter's discussion When did/do you decide that you need helper hair? in the group Frontal Fibrosing Alopecia
"Thanks sallylwess - tomorrow is the big day. Bring it on!!"
Apr 3
Airam-FFA replied to Minter's discussion When did/do you decide that you need helper hair? in the group Frontal Fibrosing Alopecia
"Just seen this: https://www.facebook.com/bbcnews/videos/10154641177415787/ Henna Tattoos to cover hair loss. Would be a cover for partial hair loss too. When the wind blows my fringe, my hair loss would be not so noticeable. xOx"
Apr 3
sallylwess replied to Minter's discussion When did/do you decide that you need helper hair? in the group Frontal Fibrosing Alopecia
"I'm happy to hear about the wig you will be getting.  Our thoughts will be with you as you take this big step."
Apr 2

Profile Information

Relationship Status:
It's Complicated
Do you have alopecia?
Other type of alopecia
Are you age 18 or older?
Yes - I am 18 or older

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At 1:55pm on August 5, 2016, babycc said…
Hi my daughter is 14 and has total hair loss any success in finding a cure to regain hee hair ???? Please message me thanks.
 
 
 

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