Minter
  • Female
  • Albany, NY
  • United States
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Latest Activity

Minter replied to Halfbakedwho's discussion Feeling better in the group Frontal Fibrosing Alopecia
"Glad to hear you are feeling better, keep up the good attitude, it is hard to do sometimes, but we are stronger then FFA!"
Wednesday
Minter replied to ammie's discussion I want my sideburns back in the group Frontal Fibrosing Alopecia
"I was thinking about this after I read your post, as I was applying powder along my hairline the next morning, sigh- I have finally made an appointment next month for a consultation about my eyebrows, I will ask her if this is starting to be done in…"
Wednesday
Minter replied to illustr8r's discussion Short Pixie haircut then a super short Buzz cut- has anyone done it? in the group Frontal Fibrosing Alopecia
"I say go for it! I am starting to veer towards doing it myself- the more I am reading the posts here and other stories online, I think about getting it cut short and having a couple of wigs for when I want "hair" I am so very tired of…"
Jun 18
Minter replied to Jacq's discussion Steroid injections for FFA in the group Frontal Fibrosing Alopecia
"I also got steroid injection treatments about 5-6 different times, but to be honest I have no idea if it slowed the progression down or not and eventually I started worrying about the thinning of the skin and possible "dents or hollows"…"
Jun 17
Minter replied to Jess's discussion Advocating for Yourself in the group Frontal Fibrosing Alopecia
"Interesting information, thanks for sharing Jess- "
Jun 17
Minter replied to Halfbakedwho's discussion Just a mess in the group Frontal Fibrosing Alopecia
"I am so sorry that you are here with us, this disease just seems to suck the self esteem out of you doesn't it? I have also been to Lucinda Ellery's here in NYC, it is an option, a great option actually and several ladies here have the…"
Jun 16
Minter replied to ammie's discussion I want my sideburns back in the group Frontal Fibrosing Alopecia
"I had looked into getting just the side pieces from Lucinda Ellery- they would have been taped in, but the problem is (for me anyway) that it would be too much hair and would look out of place with the rest of my hair, I would end up looking out of…"
Jun 16
Minter replied to AnnieMay's discussion Sorry to vent. .just having a very bad day and need support in the group Frontal Fibrosing Alopecia
"Haha thank you Denise, you are the best at making me feel better about this stupid FFA!  I will wallow a bit this morning while I am getting ready for the day and trying to arrange my hair yet again and then it is off to the gym :-) I was…"
Jun 15
Minter replied to AnnieMay's discussion Sorry to vent. .just having a very bad day and need support in the group Frontal Fibrosing Alopecia
"Good luck with your eyebrows AnnieMay! I am thinking getting my eyebrows done will also my next step, I tint them myself once a week or so, (they are naturally blond) but they are taking longer and longer to fill in with pencil and powder and…"
Jun 14
Minter replied to AnnieMay's discussion Sorry to vent. .just having a very bad day and need support in the group Frontal Fibrosing Alopecia
"Right there with you AnnieMay, every morning seems like a bad hair day now- what used to take no time at all for me to get ready now seems to take for-EVER.  I still have eyebrows (barely, but they are still there) so that takes time to pencil…"
Jun 13
Minter replied to Temmelou's discussion New to FFA in the group Frontal Fibrosing Alopecia
"Jo, I smiled as I was reading your post- I love how you are taking over FFA and not letting it take you over!  I agree with the cost of this stupid disease for "new hair" I have been going back and forth about doing the intralace…"
Jun 3
Minter replied to Dragon&Fox's discussion Columbia U Derm Dr's, Dr Angela Christiano and my own, Dr. Lindsey Bordone are starting research. in the group Frontal Fibrosing Alopecia
"Sad in Chicago,  same from me, don't stop talking about this!  It is, as Airam said, a very real and traumatic thing that is happening to us and we are allowed to be angry about it.  Some days it is the last thing on my mind,…"
May 11
Minter replied to Mattsmate's discussion Legs and arms in the group Frontal Fibrosing Alopecia
"The red blotches are on my forearms when I have an itchy spell too, I get smallish red blotches and you are right illustrat8r, the sweating doesn't help- I have sometimes noticed that if my forearms feel " damp" or if say I washed my…"
May 2
Minter replied to Mattsmate's discussion Legs and arms in the group Frontal Fibrosing Alopecia
"Yes, Yes! The itchiness is nightmarishly bad for me- I just had itch episode the other day and still have the scratch marks (from where I've actually drawn blood from itching to make it go away) it is that bad. It is on my forearms, mostly my…"
Apr 30
Minter replied to Minter's discussion Lace Front Topper in the group Frontal Fibrosing Alopecia
"I just ordered the Uniwig Claire Remy 5.5 inch topper,  Having the 25% off discount until April 16 it made it well worth it for me as it is a lot under $200, so I got myself a little wig stand and extra clips and upgraded the shipping while I…"
Apr 13
Minter replied to Minter's discussion Lace Front Topper in the group Frontal Fibrosing Alopecia
"I agree!  Granted, I am only about 2.5/3 hours away from NYC- but it is not so simple to get into the middle of Manhattan every 6-8 weeks for the needed maintenance and with the travel expenses of either driving and paying for tolls/gas/parking…"
Apr 13

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Relationship Status:
It's Complicated
Do you have alopecia?
Other type of alopecia
Are you age 18 or older?
Yes - I am 18 or older

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At 1:55pm on August 5, 2016, babycc said…
Hi my daughter is 14 and has total hair loss any success in finding a cure to regain hee hair ???? Please message me thanks.
 
 
 

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