Minter
  • Female
  • Albany, NY
  • United States
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Latest Activity

Minter commented on Celia UK's group Frontal Fibrosing Alopecia
"Brooke, that is interesting and thank you for sharing- I have given up on taking anything orally for FFA as I seem get every side effect that is listed, but a topical is something that might work for me- I am going to speak to my Dr about tacrolimus…"
Aug 6
Minter replied to Halfbakedwho's discussion Officially diagnosed now in the group Frontal Fibrosing Alopecia
"What happened to my post!? I just saw that only the first letter appeared- grrrr. Anyway, I had written a reply to you Halfbakedwho- saying Vent Away! I have done more then my share and it helps a lot, as trying to explain what we are going through…"
Aug 3
Minter replied to Halfbakedwho's discussion Officially diagnosed now in the group Frontal Fibrosing Alopecia
"V"
Aug 1
Minter replied to pauliegirl's discussion Please reply if you have used sunblock prior to FFA diagnosis. Having an aha moment! in the group Frontal Fibrosing Alopecia
"I am 52 and I do not have any other autoimmune issues other then my hair that I know of, I have used sunblock for years and years and the last few years I have been using the spray coppertone sport SPF 50 on my face/neck/arms/legs all summer long.…"
Jul 18
Minter replied to Agneta's discussion Biological medicin towards FFA? in the group Frontal Fibrosing Alopecia
"That is great you are getting out and hiking, this stupid disease can take over your life if you let it. "
Jul 12
Minter replied to Jess's discussion Vitamin D Deficiency? in the group Frontal Fibrosing Alopecia
"Coincidentally, I just went for my yearly physical and apparently I am vitamin D deficient also- well being from the northeast I think all of us up here are somewhat vitamin D deficient, but anyway he wants me to take the regular vit. D supplements…"
Jul 12
Minter replied to Agneta's discussion Biological medicin towards FFA? in the group Frontal Fibrosing Alopecia
"Yay!!!! I am so happy for you! It is amazing how a great haircut can make all the difference in the way you feel- I also went 2-3 inches shorter a couple of weeks ago, it is still a bob and I have to pin it over my ears when I "go out in the…"
Jul 8
Minter replied to Agneta's discussion Biological medicin towards FFA? in the group Frontal Fibrosing Alopecia
"illustr8r, good luck with your haircut today, I am sure it will come out wonderful!  Sad in Chicago,  I feel so bad that you have to deal with all these clips and tapes, it sounds like a nightmare :-( this disease is so unfair.  I am…"
Jul 7
Minter replied to akb's discussion How many people have additional forms of alopecia? in the group Frontal Fibrosing Alopecia
"Same here, I have the FFA receding on my front hairline and also definite thinning at the top-   hoping for good news for you from the dermatologist & by the way, I like your short hairstyle in the photo, very cute!"
Jul 7
Minter replied to Halfbakedwho's discussion Denial, or up and down in the group Frontal Fibrosing Alopecia
"Haha! You have very helpful friends Thomas! Love your pic :-D & Halfbakedwho, that is crazy that your husband has alopecia too! It is great that he "doesn't care a whit" I am trying very hard to get myself to be that way too- but…"
Jul 3
Minter replied to Agneta's discussion Biological medicin towards FFA? in the group Frontal Fibrosing Alopecia
"I am taking burn out to mean that the FFA has "burned itself out" so I guess that that means for me that my FFA is still burning away! I am with you Sad in Chicago, no meds- I seem to be losing hair at a steady pace along the front and…"
Jul 2
Minter liked Halfbakedwho's discussion Feeling better
Jul 1
Minter liked Beez's discussion random thoughts
Jul 1
Minter replied to Beez's discussion random thoughts in the group Frontal Fibrosing Alopecia
"First, I can definitely vouch for Wunderbrow! Funnily enough, I just got it off of Amazon 2 days ago and it is great, my brows are very thin and it thickens them up and it stays on, I mean it really does stay on until I wash it off. As far as…"
Jun 30
Minter replied to illustr8r's discussion Short Pixie haircut then a super short Buzz cut- has anyone done it? in the group Frontal Fibrosing Alopecia
"Well after all this talk about haircuts ;-) I made an appointment at an upscale salon for a cut and maybe color- I am fully aware that this may very well be my last summer with my own hair and the future will include helper hair (I have my topper…"
Jun 25
Minter liked illustr8r's discussion Short Pixie haircut then a super short Buzz cut- has anyone done it?
Jun 25

Profile Information

Relationship Status:
It's Complicated
Do you have alopecia?
Other type of alopecia
Are you age 18 or older?
Yes - I am 18 or older

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At 1:55pm on August 5, 2016, babycc said…
Hi my daughter is 14 and has total hair loss any success in finding a cure to regain hee hair ???? Please message me thanks.
 
 
 

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