Kathy in Denver
  • Female
  • Denver, CO
  • United States
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Kathy in Denver's Friends

  • StephD
  • Leni
  • Minter
  • KarenD
  • Kikibob
  • denvergal
  • Wyobalance
  • DeniseC
  • Lo
  • Lynn
  • Joy
  • sallylwess
  • MG1
  • Judy
  • Rebecca Strobel

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Latest Activity

Terri replied to Kathy in Denver's discussion FFA burnout stories in the group Frontal Fibrosing Alopecia
"My Dermatologist prescribed Betamethasone Dipropionate 0.05% to be applied to my hairline and eyebrows. This lotion has decreased the red and itchy patches where I have hair loss."
11 hours ago
Joy replied to Kathy in Denver's discussion FFA burnout stories in the group Frontal Fibrosing Alopecia
"Mine has burned out for the most part - I say that as I continue to have about a three inch area across my forehead at the hairline that is always slightly swollen and that is not even a good word - around the hair follicles - there are a couple…"
Saturday
Airam-FFA replied to Kathy in Denver's discussion FFA burnout stories in the group Frontal Fibrosing Alopecia
"I wonder if your Dr is in touch with the research team at Guys's in London? They are also doing a study. Would be good for them to share their research ..."
Feb 14
Minter and Kathy in Denver are now friends
Feb 11
Minter replied to Kathy in Denver's discussion Hair loss - overall experience? in the group Frontal Fibrosing Alopecia
"Hi Kathy, yes, I am experiencing thinning on my crown also- I was holding a mirror up to the top of my head and was not happy with the amount of shiny scalp that I was able to see. In addition to the nearly 2 inch band at the front of my…"
Feb 11
CurlyK replied to Kathy in Denver's discussion Hair loss - overall experience? in the group Frontal Fibrosing Alopecia
"Christi Q, I have had the same exact feelings as you. Mad at my body for failing me. For doing something to me so devastating that I have NO control over. It took some time, but I finally came to a point of acceptance and stopped striving to fix…"
Feb 11
CurlyK replied to Kathy in Denver's discussion Hair loss - overall experience? in the group Frontal Fibrosing Alopecia
"Hi Kathy! I was diagnosed with FFA last July. I know exactly what you mean about being someone who likes the facts. I wanted to understand what this strange thing happening to my body was all about. To find out there isn't much…"
Feb 11
Dragon&Fox replied to Kathy in Denver's discussion FFA burnout stories in the group Frontal Fibrosing Alopecia
"Well, is the word "Burnout" or is it "remission"?  I was under the impression it's called "Remission."  I take 2.5 mg of Finasteride and apply Clobetsol solution every night and Clobetsol shampoo every…"
Feb 11
ammie replied to Kathy in Denver's discussion FFA burnout stories in the group Frontal Fibrosing Alopecia
"It's so hard to tell. I had my six month check up a few weeks ago and the doctor think my hair has thickened up a little bit since we last saw each other but I honestly can't tell. It's hasn't gotten much worse either. I'm…"
Feb 11
Airam-FFA replied to Kathy in Denver's discussion Hair loss - overall experience? in the group Frontal Fibrosing Alopecia
"Hi Christian Q I feel your pain and anguish. FFA seems to be attacking otherwise healthy people. Stress seems a major factor. People also talk about the AIP - auto-immune protocol diet - not started it yet. I have been taking turmeric in the form…"
Feb 9
Christi Q. replied to Kathy in Denver's discussion Hair loss - overall experience? in the group Frontal Fibrosing Alopecia
"I was diagnosed with FFA a few months ago.  I was hit with a LOT of stress for a about three months straight and that's when it happened to me.  The mounds of hair I had had all my life (everywhere!) was attacked and now the hair on…"
Feb 9
Airam-FFA replied to Kathy in Denver's discussion Hair loss - overall experience? in the group Frontal Fibrosing Alopecia
"Hi Kathy I noticed my hair line receding about 3 or 4 years ago. I kept saying as much to my hair dresser but she didn't seem to think it was too bad. I saw a GP/Dr in Oct 2014 - he said it looked like female pattern baldness. I was in a…"
Feb 8
Kathy in Denver added a discussion to the group Frontal Fibrosing Alopecia
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Hair loss - overall experience?

I am wondering if others have experienced overall hair thinning on the head.I am only a few months into this. I was so shocked when I noticed the front hair line, I do not know for sure if other things like overall thinning on the other parts of my head and hair loss on my arms just happened recently or what. My arm hair seems to be coming back at least somewhat and for now.  In addition to the hairline, it seems I have experienced a fair amount of disperse hairless throughout my head. While…See More
Feb 8
Kathy in Denver replied to Kathy in Denver's discussion FFA burnout stories in the group Frontal Fibrosing Alopecia
"Thank you Sas! "
Feb 5
Christi Q. replied to Kathy in Denver's discussion FFA burnout stories in the group Frontal Fibrosing Alopecia
"I totally agree Airam.  The two "specialists" I've been seeing always just want to stick needles in me or do some drastic testing.  I never feel comforted by them.  I always just feel like they want my money and then…"
Feb 3
Airam-FFA replied to Kathy in Denver's discussion FFA burnout stories in the group Frontal Fibrosing Alopecia
"Thank you Sas Holland for posting your story. I saw another dermatologist consultant yesterday. It always leaves me feeling down after seeing the doctors, as the FFA condition seems so hopeless. The Dr measured my hair loss along my hairline - I…"
Feb 2

Profile Information

Relationship Status:
Single
Do you have alopecia?
Scarring alopecia
Are you age 18 or older?
Yes - I am 18 or older

Kathy in Denver's Blog

New member...

Posted on November 24, 2016 at 1:00pm 0 Comments

Hi, everyone. I just found out I have FFA. Going through all the emotion that you all know about. Looking forward to connecting with this community. Wondering if there is anyone else out there from Denver. 

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At 2:02pm on December 2, 2016, StephD said…

Hi Kathy, I've reached out to a couple of others locally who seem to be active on here, but no response yet. So far it would be just us, but it's a start, and I'd love to grow a wider circle that includes all the hair loss types. The more the support the better. I'll send you a msg with my info so we can figure out a date/time. Looking forward to meeting you!

 
 
 

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