Kathy in Denver
  • Female
  • Denver, CO
  • United States
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Kathy in Denver's Friends

  • StephD
  • Leni
  • Minter
  • KarenD
  • Kikibob
  • denvergal
  • Wyobalance
  • DeniseC
  • Lo
  • Lynn
  • Joy
  • sallylwess
  • MG1
  • Judy
  • Rebecca Strobel

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Kathy in Denver's Page

Latest Activity

Agneta replied to Kathy in Denver's discussion FFA burnout stories in the group Frontal Fibrosing Alopecia
"Hi Dragon@Fox, I have been a member in Alopecia World for a few month, I was diagnsed with FFA last May 2016. I have a very slow progression but I´ve lost aprox 3 cm in on my temples and 1 cm on my forehead. How many month did you take…"
Mar 9
Airam-FFA replied to Kathy in Denver's discussion FFA burnout stories in the group Frontal Fibrosing Alopecia
"Wow! Your eyelashes are so long. xOx"
Mar 6
SCS replied to Kathy in Denver's discussion FFA burnout stories in the group Frontal Fibrosing Alopecia
"I cannot tell for sure that mine burnt out. But I do not take any prescribed medications, and stopped using the Clobetasol solution, dumped it out and mixed: tea tree, levander, rosemary oils with apple cider vinegar. Works really well if you do not…"
Mar 5
Airam-FFA replied to Kathy in Denver's discussion FFA burnout stories in the group Frontal Fibrosing Alopecia
"I noticed my re-ceding hair line about 2-2.5 years ago but this was dismissed by the GP!!! Last Easter I insisted that I be referred to a specialist in hair loss. The referral took over 6 months when they then diagnosed the FFA and since Nov 2016 I…"
Mar 1
Christi Q. replied to Kathy in Denver's discussion FFA burnout stories in the group Frontal Fibrosing Alopecia
"I was diagnosed 4 months ago.  I have already lost about 3/4 of an inch along my hairline.  I had super thick hair to begin with, but that doesn't matter when your forehead is slick to the scalp.  I have been put on Dutesteride…"
Mar 1
Robbie replied to Kathy in Denver's discussion FFA burnout stories in the group Frontal Fibrosing Alopecia
"Thanks Airam. So far so good with eyebrows and arms. The hair on my arms is quite light but it always has been. I suppose I am hoping to hear similar stories that if caught early you can stop or at least slow the progress. Im wondering if anyone…"
Mar 1
Airam-FFA replied to Kathy in Denver's discussion FFA burnout stories in the group Frontal Fibrosing Alopecia
"Hi Robbie Good news. :) Have you lost any hair on eyebrows, arms etc? xOx"
Mar 1
Robbie replied to Kathy in Denver's discussion FFA burnout stories in the group Frontal Fibrosing Alopecia
"I have just been diagnosed with FFA and I am feeling lucky that I can still disguise the lost hair. My Derm says its been caught early and seems to think she has it under control with Doxycycline after 3 months. Has anyone had success with halting…"
Feb 28
Airam-FFA replied to Kathy in Denver's discussion FFA burnout stories in the group Frontal Fibrosing Alopecia
"Hi Denise Really positive - thank you for this post. Awake with itchy scalp and looking at rapidly diminishing hairline and eyebrows. They used to be so thick and naturally dark - now patchy and sparse. On here to ask where I can find a specialist…"
Feb 27
Joy replied to Kathy in Denver's discussion FFA burnout stories in the group Frontal Fibrosing Alopecia
"I am right there with you!"
Feb 26
DeniseC replied to Kathy in Denver's discussion FFA burnout stories in the group Frontal Fibrosing Alopecia
"I feel for you. The thing is - almost certainly most people who come to this forum do so because they are feeling the same sort of things as you so clearly are. Obviously not everyone - but I think it is a fair assumption that those for whom the FFA…"
Feb 26
Nina Jones replied to Kathy in Denver's discussion FFA burnout stories in the group Frontal Fibrosing Alopecia
"Hello everyone - I have only really felt after 8 years of having this FFA horrible diagnosis, that perhaps I should finally submit to the inevitable, that this is a progressive, flipping condition. Or is it? That's the problem, isn't…"
Feb 26
Terri replied to Kathy in Denver's discussion FFA burnout stories in the group Frontal Fibrosing Alopecia
"My Dermatologist prescribed Betamethasone Dipropionate 0.05% to be applied to my hairline and eyebrows. This lotion has decreased the red and itchy patches where I have hair loss."
Feb 23
Joy replied to Kathy in Denver's discussion FFA burnout stories in the group Frontal Fibrosing Alopecia
"Mine has burned out for the most part - I say that as I continue to have about a three inch area across my forehead at the hairline that is always slightly swollen and that is not even a good word - around the hair follicles - there are a couple…"
Feb 18
Airam-FFA replied to Kathy in Denver's discussion FFA burnout stories in the group Frontal Fibrosing Alopecia
"I wonder if your Dr is in touch with the research team at Guys's in London? They are also doing a study. Would be good for them to share their research ..."
Feb 14
Minter and Kathy in Denver are now friends
Feb 11

Profile Information

Relationship Status:
Single
Do you have alopecia?
Scarring alopecia
Are you age 18 or older?
Yes - I am 18 or older

Kathy in Denver's Blog

New member...

Posted on November 24, 2016 at 1:00pm 0 Comments

Hi, everyone. I just found out I have FFA. Going through all the emotion that you all know about. Looking forward to connecting with this community. Wondering if there is anyone else out there from Denver. 

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At 2:02pm on December 2, 2016, StephD said…

Hi Kathy, I've reached out to a couple of others locally who seem to be active on here, but no response yet. So far it would be just us, but it's a start, and I'd love to grow a wider circle that includes all the hair loss types. The more the support the better. I'll send you a msg with my info so we can figure out a date/time. Looking forward to meeting you!

 
 
 

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