Halfbakedwho
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  • France, France
  • France
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  • diana

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diana left a comment for Halfbakedwho
"i started with the autoimmune paleo diet.  you have to avoid a lot of foods for a while then reintroduce one at a time.  please read up on it as i did this my 1st yr for a full year,  i lost a lot of weight too due to the foods…"
16 hours ago
Halfbakedwho left a comment for diana
"Hi Diana I would be interested in hearing more about what diet changes you made, and what you do. Do you have a link? Thank you Cara"
yesterday
diana left a comment for Halfbakedwho
"hi.... i have had this scaring alopecia for about 4 years now.   did not try any meds, foams etc. that dr. prescribed.  thought they would cause worse problems, which we know they do.... how many side effects do most of them have.   i…"
yesterday
diana and Halfbakedwho are now friends
yesterday
Halfbakedwho liked Jess's discussion Advocating for Yourself
yesterday
Halfbakedwho shared Celia UK's group on Facebook
Wednesday
Minter replied to Halfbakedwho's discussion Feeling better in the group Frontal Fibrosing Alopecia
"Glad to hear you are feeling better, keep up the good attitude, it is hard to do sometimes, but we are stronger then FFA!"
Wednesday
Halfbakedwho added a discussion to the group Frontal Fibrosing Alopecia
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Feeling better

After the shock of last week's dx, I was just a mess. Even after meeting with my hair dresser who was so nice and helpful - I wasn't okay. He said something like "wear bright clothes to distract people" - no not okay.I didn't feel better until I went on YouTube and saw the lovely women with alopecia and how they are dealing with their wigs. I'm sure you know of these videos, but this one helped me so much: Thank Goodness for people like her... this is what I have but she makes it Ok:…See More
Wednesday
Halfbakedwho replied to Jacq's discussion Steroid injections for FFA in the group Frontal Fibrosing Alopecia
"I get strange itches too. Mostly exzema that comes out of nowhere - on my forehead, around my lips and especially around my eyes. This has gotten worse in the past couple of months. I am just relieved that I am going to see the only people in this…"
Jun 18
Halfbakedwho replied to Halfbakedwho's discussion Just a mess in the group Frontal Fibrosing Alopecia
Jun 17
Mattsmate replied to Halfbakedwho's discussion Just a mess in the group Frontal Fibrosing Alopecia
"I'd love to see the article (even if Imhave to translate it)."
Jun 17
Halfbakedwho liked Sugar's discussion My story
Jun 17
Halfbakedwho replied to Halfbakedwho's discussion Just a mess in the group Frontal Fibrosing Alopecia
"Yes that info about the grafts is confusing- b/c there's a doctor in Paris who has an article of a transplant he did on a woman in her 60's with FFA. I can link to it but it's all in French. In any case, there's a specialized…"
Jun 17
Halfbakedwho replied to Halfbakedwho's discussion Just a mess in the group Frontal Fibrosing Alopecia
"I suppose I'm going to find our. Meanwhile I need to calm down, but this is upsetting me profoundly. I hope I can start to take it better soon..."
Jun 17
Minter replied to Halfbakedwho's discussion Just a mess in the group Frontal Fibrosing Alopecia
"I am so sorry that you are here with us, this disease just seems to suck the self esteem out of you doesn't it? I have also been to Lucinda Ellery's here in NYC, it is an option, a great option actually and several ladies here have the…"
Jun 16
Mattsmate replied to Halfbakedwho's discussion Just a mess in the group Frontal Fibrosing Alopecia
"I am sorry that you are going through this. I have only known for a short time but I have been losing for several years. Do the hair grafts work? Do you have to wait for it to burn out?"
Jun 16

Profile Information

Relationship Status:
Married
About Me:
51 years old, have Frontal fibrosing alopecia that started 2 years ago, apparently rare. Hair loss only on sides of head and a bit on top, but it's getting more noticeable and my dx frightened me - have other auto-immune issues as well.
Do you have alopecia?
Scarring alopecia
Are you age 18 or older?
Yes - I am 18 or older

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At 8:44pm on June 23, 2017, diana said…

i started with the autoimmune paleo diet.  you have to avoid a lot of foods for a while then reintroduce one at a time.  please read up on it as i did this my 1st yr for a full year,  i lost a lot of weight too due to the foods avoided.  eat real food, no packaged preserved sh*t, organic as much as you can possibly afford.  i also went to naturopath that recommended i be tested for food sensitivities.  i had a long list... gluten,dairy, bananas, yeast and almonds was a big one for me.  along with a few others.    Cara do you have any other issues going on right now?  hoping not.

At 9:32am on June 23, 2017, diana said…

hi.... i have had this scaring alopecia for about 4 years now.   did not try any meds, foams etc. that dr. prescribed.  thought they would cause worse problems, which we know they do.... how many side effects do most of them have.   i did alot of reading for natural help.  read up about leaky gut syndrome which is the cause of most health issues.  hard for most people to understand but this does start with stress.  worth checking it out.  diet help immensely.  i have foods that i must stay away from and feel better.  i use to have the itchy scalp then the hair fall.  not much

anymore.  think of hives... why does anyone get hives? diabetes, insulin/sugar issues, peanut allergy's.... all food related.  the one thing we all do is eat but certain foods affect some of us differently.  my girlfriend gets pain in her leg and left side from gluten and certain other foods.  stays away from it and it's gone...figure that one out.  she also has pain in her ear alot with a loud whooshing noise that goes away if she stays away from those foods..  anyway i can keep going but most people don't believe it..  anyway all the best to you.

 
 
 

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