"I've had AU since 2001 and while it hasn't always been fun, it hasn't been that terrible either. I choose to look for the positive. Always remember that you are the same person inside as you were before alopecia. What really matters…"
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Joni commented on Alopecia World's group Alopecia Universalis"Gra C: my body hair and the hair on my head was gone within less than a month once I started shedding. It went really fast. I imagine it's different with everyone."
Joni commented on Alopecia World's group Alopecia Universalis"I've had AU for almost 10 years now and have tried every treatment under the sun with no success, including squaric acid. I finally just came to terms with it and got on with my life. I'm happily married now and my husband loves me just…"
Joni joined Alopecia World's group
Alopecia Universalis
Join today to meet, support and share information with others who are also living with all loss of hair on their bodies.
Joni replied to Husband of woman with Alopecia's discussion I am new and I need some help"Welcome to AW! We're here to help anyway we can. Hang in there and know you're not alone - you have friends here.
Coming to terms with my alopecia was something that happened to me gradually. It can't be rushed but it can be…"
Joni left a comment for BTB (John)"Glad to hear from you! I hope all is well with you, too. Be careful traveling through our fair country. Those tickets are expensive!"
Profile Information
- Relationship Status:
- In a Relationship
- About Me:
- 49 year old single mom, living with AU and trying to keep my sense of humor.
- Do you have alopecia?
- Alopecia universalis
- Are you age 18 or older?
- Yes
Comment Wall (22 comments)
- At 7:48am on June 11, 2009,
BTB (John) said… - Hi not contacted you for a year hope all is well in Omaha and that the meltdown thing has not hit you. Will be in the states on Oct 4th doing another road trip with my mate, got done for speeding last time we went though Omaha. johnxox
- At 8:07pm on February 9, 2009,
Mark said… - Hi, thanks for the welcome. :)
- At 7:07pm on January 19, 2009,
Bob Hershberger said… - Joni..Long time no hear..How ya been?? Hopefully the New Year is going as good as can be expected..Everything OK? Holla if you need anything at all...Bob
- At 8:22pm on December 26, 2008,
Roland said… - It is a statement - the different sense of what is attractive in a woman - that has caused some misunderstanding in my life.
As the years pile up, I realize the compromise is important on the things that don't mean a lot. It is a poor option when it comes to those that are important.
- At 8:12am on October 7, 2008, BTB (John) said…
- Hi we have been to Omaha cant remember why but i was there in 2002 and I am always impressed with how you deal with the whole hair thing John xoxo
- At 5:11pm on August 13, 2008,
tamgirl said… - haha yes i bet they itch, only once weared on as a lil girl and i still can feel it itching if i think about it.
I hope one day you will enjoy the sun withouth a wig to, hehe maybe on a holiday somewhere far away, with just a scarf. I heard that some women tried that and found it very nice.
The only reason when i consider a wig, is when im fed up with the staring, but oh well, once home i get over that and the next day i try it again, heheh
- At 5:04pm on August 13, 2008, tamgirl said…
- Hi Joni
thank you for your sweet comment :D and your invitation.
im not sure if its courage that i dont wear a wig, i think courage is wearing a wig, sometimes i wish i dared to
- At 10:22pm on July 20, 2008,
Wayne said…
- Joni,
How is that sense of humor holding up?
- At 1:29am on June 18, 2008, Bob Hershberger said…
- Hey Joni..Just thought id say hello,and how ya doin?/ Hope all is well..Bob
- At 1:03am on June 10, 2008,
Antoinette Fernandez said… - Hi Joni! Hopping you're ok!! I'm fine, working, taking care of my dauther and trying to stay cool! It's so hot in New York righ now!!
By the way, how many kids do you have?,
I hope you have a wonderful week!!!
We keep in touch!!!
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