"Hi Jessica,
Auto immune neutropenia is where white blood cells called neutrophils are attacked and killed by the immune system. Neutrophils are the white blood cells that make the body better when we are ill, fortunately we also have another type of…"
Alopecia World
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Donna
- Female
- Hampshire
- United Kingdom
- Blog Posts (1)
- Discussions (10)
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- Groups (3)
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Donna replied to Ms. Aries's discussion Autoimmune clusters in the group Hashimoto and Alopecia"Hi MB
I have had alopecia since childhood, I also have auto immune thyroid disease and auto immune neutropenia! I'm not aware of any research or predictions that will help these conditions."
Donna replied to Mary Anne's discussion exercising"Hi Mary Anne,
I go to the gym at least 5 times per week and I wear a bandana, sometimes I wear a baseball cap on top of it and sometimes without. Once you go for the first time without your wig you will be wondering what you were worried about.…"
Donna left a comment for Frank"Hi Frank,
Thanks for your comment on my poem :) Your pics are really good, love the whale tail."
Donna commented on Alopecia World's group Alopecia Universalis"Hi Scott, I'm really sorry to hear about your sister :(
Thanks for your comments too Sandy, I have thought about pursuing the issue but although I have these auto immune conditions I appear to be very healthy and I am seldom ill."
Donna commented on Alopecia World's group Alopecia Universalis"Hi James, Funny you should say that! I have been blood tested twice for Lupus and both times my blood results came back to suggest there could be a problem, but my doctor had always said he thinks i test positive because of my other auto immune…"
Donna commented on Zoe's group Hashimoto and Alopecia"I have been AU/AA/AT since the age of 8yrs. I am currently AU, I was diagnoised with Hashimoto's about 3-4 years ago at age 33yrs. I have also been disgnoised with auto immune neutropenia at the same time. 6 months after my thyroid diagnoisis…"
Donna joined Zoe's group
Hashimoto and Alopecia
This group is for people who have the autoimmune disease Hashimoto and alopecia.
Donna replied to 3wwasha's discussion Do you wish you have your hair back ? in the group Alopecia Universalis"When I was little I would have gladly cut off a limb to have my hair back. Today 28 yrs later I'm good with who I am! Sometimes I find myself hoping it never comes back because I struggle so much with the whole process of losing it again."
Donna commented on Alopecia World's group Alopecia Universalis"I was first AU at age 8. I've been AU/AA/AT all my life, have currently been AU for just over a year. I also have autoimmune thyroid disease and auto immune neutropenia too, guess I'm just lucky :)"
Donna joined Alopecia World's group
Alopecia Universalis
Join today to meet, support and share information with others who are also living with all loss of hair on their bodies.
Profile Information
- Relationship Status:
- Married
- About Me:
- I am 36 years old, happily married mum of 2 gorgeous kids. I am Scottish but have lived in England for the last 10 years. Love to excercise any way I can, love music and reading too.
I am currently planning a fund raising cycle From John O Groats (Scotland) to Lands End (England) next year. The route is just over 1000 miles long and will take almost 2 weeks to complete. I hope to raise public awareness and also some funds along the way.
My long time relationship with alopecia started at the age of 8yrs. I was trapped in a house fire and within 3-4 months I was AU. My hair then grew back partially at age 15yrs and the doctors seemed to think that puberty had a hand in that. From the age of 15yrs to 22yrs I had a considerable amount of hair and it was not obvious at first glance that I was AA, I managed to style it well and coped really well. At age 22yrs after the birth of my son, within a few months I was AT. I have to say that was the hardest time for me and i think i struggled to come to terms with it more then than at any other time possibly because my hormones were all over the place. At age 25yrs my hair then returned almost completely except for a few patches which were not that obvious and it remained that way until I was almost 30yrs when I became really bad AA to the point where I had to bite the bullet and visit the barber shop, the agony of waking up day after day to the hair on my pillow was too much. I did acheive partial regrowth again about a year later but now at age 36yrs have been AU again for a little over a year.
I have decided after all of this that I'm actually at my happiest when I am AU. It's like I know where I am with that, I really dislike the stages in between. I am now trying to embrace my AU and not be embarrassed about who I am.
- Do you have alopecia?
- Alopecia universalis
- Are you age 18 or older?
- Yes - I am 18 or older
Donna's Blog
Inspiration
Posted on February 18, 2009 at 6:30pm 9 Comments 0 Favorites
I wrote this when I was in a dark place and it helped me a lot, hopefully it might help someone here too x
I used to know a little girl
Folks always used to stare
They wondered bout the little girl
The one who had no hair
She tried so hard to fit right in
Like them she tried to be
Kids laughed and joked and taunted
But her hurt they could not see
She never let her feelings show
She kept them locked away
This carried on… Continue
I used to know a little girl
Folks always used to stare
They wondered bout the little girl
The one who had no hair
She tried so hard to fit right in
Like them she tried to be
Kids laughed and joked and taunted
But her hurt they could not see
She never let her feelings show
She kept them locked away
This carried on… Continue
Comment Wall (10 comments)
- At 7:18pm on February 22, 2009,
Olivia Rusk said… - Donna,
Thank you for your kind words about Olivia. Yes, I am very proud of
her!
Sandy Rusk
- At 11:34pm on February 21, 2009,
Rose Marie' said… - Hi Donna
Your children are gorgeous. Love the piccie of them both laughing. I really enjoyed chatting. Catch you again soon.
Rosy (Narns)
- At 4:27pm on February 21, 2009, Rose Marie' said…
- Hi Donna
Just wanted to welcome you here as well. Catch up with you soon.
Rosy (Narns - AASC)
- At 10:39am on February 20, 2009,
JeffreySF said… - Hi Donna,
I loved all of Scotland. My friend and I would drive to historical sites for day trips. I did get to see Edinburgh Castle lit up at night. Beautiful!!!
I think the best chinese food I ever had was in Scotland. Haha
Jeff
- At 7:47am on February 20, 2009, Olivia Rusk said…
- I am Sandy, Olivia's mom and I manage her profile for her. We would like to welcome you to alopecia world. You are going to enjoy the
people that you meet here. We have friends from all over the world!
Olivia lost all of her hair twice since age two. At age 8 she decided not to wear hats or wigs. Olivia handles being bald, very well. As her mom it took me a while to finally come to acceptance. But on the positive side Olivia has had some amazing opportunities as a result of her condition. She has shared her story in our local media numerous times and is now a Kid Caster on Radio Disney. We just completed a major project where we wrote, filmed and produced a music video about alopecia and bullying. Though Olivia has never been teased or bullied, we know others who have. You can view it on Olivia's profile, just click on videos and then on 'I COULD BE GREAT!' Let us know what you think.
Sandy Rusk
- At 11:58pm on February 19, 2009, JeffreySF said…
- Thanks Donna,
Where is Hampshire? I've been to Glasgow and Edinburgh plus all the little villages inbetween. I have freinds in Eaglesham Village.
Wishing you safe journeys on your Bikeathon.
Hugz,
Jeff
- At 4:39pm on February 19, 2009,
LeslieAnn Butler said…
- Hello and welcome, Donna!
Interesting what you say about AU. I feel the same way. Having gone through all the stages of hair loss, it's like, "well, this is it!"
How are you doing today?
LeslieAnn
- At 11:10pm on February 18, 2009, JeffreySF said…
- Hi Donna,
Welcome to Alopecia World.
I love to excercise too. Aeorbics are my favourite.
Jeff
- At 6:52pm on February 18, 2009,
Cheryl, Co-founder said… - Hi Donna, I wanted to take this opportunity to welcome you to Alopecia World. I have been living with Alopecia Areata since 1991 and know full well the struggle it can be. I look forward to getting to know you. Cheryl, Co-founder
- At 6:02pm on February 18, 2009,
3wwasha said… - Hello,
Welcome to Alopecia World.
Aysha
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