Airam-FFA
  • Female
  • Midlands
  • United Kingdom
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Airam-FFA's Friends

  • Halfbakedwho
  • Helen M
  • Terri
  • Liz

Airam-FFA's Discussions

i-grow laser treatment

Started this discussion. Last reply by bibby Apr 19, 2017. 5 Replies

My friend saw this this morning on QVC. Has anyone used this system?xOx…Continue

The contraceptive pill and HRT and FFA

Started Nov 30, 2016 0 Replies

Does anyone know if the contraceptive pill and/or HRT has been implicated in causing/ increasing FFA?Continue

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Airam-FFA's Page

Latest Activity

Airam-FFA commented on Celia UK's group Frontal Fibrosing Alopecia
"Hi Liz Is the Genomes Project the one that they were doing at Guy’s? I didn’t see the BBC News about it. Do they hope to have the results by the end of 2018? If it is the research project at Guy’s, I was hoping for the feed back at…"
Friday
Airam-FFA commented on Celia UK's group Frontal Fibrosing Alopecia
"Hi Halfbakedwho Like you, I thought that my hair loss was caused by stress, and that it would return once I left my stressful job and found something less stressy! I had spoken to my Dr in the Autumn of 2014 after noticing more and more hair loss…"
Friday
Helen M left a comment for Airam-FFA
"Hi Airam - thank you for your kind words. I have replied to your questions on the post. Keep smiling, it is a great tonic and no one can take that away from you. Cheers Helen"
Jan 10
Helen M and Airam-FFA are now friends
Jan 10
Airam-FFA commented on Celia UK's group Frontal Fibrosing Alopecia
"Hi Helen Thank you for sharing your story. It is good to hear about different options, and how people get on with them. I have been thinking about ‘the Lucinda Ellery’ option, but don’t like the idea of the cost and…"
Jan 9
Airam-FFA liked Cheryl, Co-founder's discussion Teen With Alopecia Had Her Mom Paint Her Bald Head For Her Senior Photo Shoot
Jan 8
Airam-FFA replied to smiletome's discussion FFA burns itself out - has anybody reached this stage? in the group Frontal Fibrosing Alopecia
"Hi Lynda I hadn’t heard about Graham Little Piccardi Lasseur Syndrome with FFA - so I looked it up. Interesting that they are prescribing Thalidomide for it (New Zealand Website)- I thought that that drug had been abandoned following the Law…"
Jan 8
Airam-FFA commented on Celia UK's group Frontal Fibrosing Alopecia
"Hi All I have just had a look at the head gear on the two sites you mentioned - definitely a great variety to choose from. Thank you for sharing these sites.  xOx"
Jan 7
Airam-FFA replied to Liz L's discussion Counselling?! We are our own! in the group Frontal Fibrosing Alopecia
"Hi Liz Thank you got your post. I re-call many of the post extracts that you mentioned. This site is definitely a valuable lifeline for us all. I have only been diagnosed with FFA just over a year ago - but have probably had the condition for 4+ -…"
Jan 2
Airam-FFA replied to Jacq's discussion Medication Break in the group Frontal Fibrosing Alopecia
"Hi Jacq I will see if I can find it.   xOx"
Dec 16, 2017
Airam-FFA replied to LVL's discussion Has anyone had/tried cortisone shots to scalp? in the group Frontal Fibrosing Alopecia
"Hi Afraid  It is a cruel situation for us to find ourselves in. Also with little success rate with most treatments available. On a positive, the Doctors at Guy’s will soon be releasing the results of their research.  I am hoping that…"
Dec 13, 2017
Airam-FFA replied to LVL's discussion Has anyone had/tried cortisone shots to scalp? in the group Frontal Fibrosing Alopecia
"Hi LVL For the reasons that Beez gives, I decided not to accept any treatment that would disfigure my head further; damage my eyesight etc etc. I use a scalp shampoo and ointment a couple of times a week to help with the itching and hair loss - but…"
Dec 12, 2017
Airam-FFA commented on Celia UK's group Frontal Fibrosing Alopecia
"Hi Halfbakedwho I think that unless we are really fortunate, none of the treatments give very positive results :(.  I was diagnosed a year ago, although, I believe that I had had the hair loss for a few years before that, but my hair loss seems…"
Dec 10, 2017
NA replied to Airam-FFA's discussion Turn Over of Specialist Dermatologists! in the group Frontal Fibrosing Alopecia
"Hi all, just found and joined this group. I thought I was the only one having to put up with nhs. Had very similar experiences. When sent for 2nd opinion, waited 3 months and ended up with original dr. Then had to wait another 3 months to finally…"
Dec 2, 2017
Airam-FFA liked Donna's discussion Clobestatol
Dec 2, 2017
Airam-FFA replied to Airam-FFA's discussion Turn Over of Specialist Dermatologists! in the group Frontal Fibrosing Alopecia
"Hi Katherine I too had Acupuncture and Chinese Herbs when I was first diagnosed. But I don’t go anymore as I can’t justify the cost at the moment. Dr David Fenton at Guy’s is the specialist who I found to be the most informative…"
Nov 27, 2017

Profile Information

Relationship Status:
In a Relationship
About Me:
Just been diagnosed with FFA after several years of going to the Dr with hair loss concerns. :(
Do you have alopecia?
Other type of alopecia
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall (1 comment)

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At 3:47am on January 10, 2018, Helen M said…

Hi Airam - thank you for your kind words. I have replied to your questions on the post. Keep smiling, it is a great tonic and no one can take that away from you. Cheers Helen

 
 
 

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