Jacq
  • Female
  • SA
  • Australia
Share

Jacq's Friends

  • Debs

Gifts Received

Gift

Jacq has not received any gifts yet

Give a Gift

 

Jacq's Page

Latest Activity

Jacq replied to AnnieMay's discussion New member, diagnosed yesterday and feeling SO down in the group Frontal Fibrosing Alopecia
"Oh AnnieMay I am so sorry you have this crappy condition :(  I have been diagnosed 2 years now and some days I feel ok but some days not so much.  It just sucks. Now you have a definitive diagnosis you can get some facts though I guess.…"
Apr 9
Jacq replied to Ruth's discussion Face rash in the group Frontal Fibrosing Alopecia
"I can't help with the other but I do feel like my hair is a different texture on top.  In fact I noticed this before I ever noticed the hair loss. "
Apr 2
Minter replied to Jacq's discussion Itchy thighs in the group Frontal Fibrosing Alopecia
"Leni, this whole thing is frustrating for sure! I think, I hope as this becomes more well known, that when women or men, present themselves to doctors with these symptoms-that it will be diagnosed earlier and especially with the skin problems get…"
Feb 14
Leni replied to Jacq's discussion Itchy thighs in the group Frontal Fibrosing Alopecia
"It's so frustrating looking back on all of this. Perhaps more could have been done and an earlier diagnosis. Had to have extreme circumstances for my dr to finally take a hair sample. I've been treated for the eyebrow loss for many years.…"
Feb 12
Minter replied to Jacq's discussion Itchy thighs in the group Frontal Fibrosing Alopecia
"Thanks Jacq, I hope it is getting better for you, it is bad enough on my arms, I couldn't imagine it on the legs, its a horrid feeling! Leni, yes, I've been diagnosed with lichen planopilaris too- if I had had a decent dermatologist…"
Feb 12
Leni replied to Jacq's discussion Itchy thighs in the group Frontal Fibrosing Alopecia
"Did you get diagnosed with lichen planopilaris?? I did. I am thinking there is more to this diagnosis too. There are different versions of this condition that affect skin( not just hair). Lichen plains for instance."
Feb 12
Jacq replied to Jacq's discussion Itchy thighs in the group Frontal Fibrosing Alopecia
"FFA sadly isn't limited to the scalp... the pattern seems to be unpredictable and different for us all so hopefully your scalp is less affected (fingers crossed)"
Feb 12
Jacq replied to Jacq's discussion Itchy thighs in the group Frontal Fibrosing Alopecia
"Oh no Minter sorry to read the itchiness is back.  Hope it is only short lived for you :("
Feb 12
Minter replied to Jacq's discussion Itchy thighs in the group Frontal Fibrosing Alopecia
"I've got itchy forearms, for about 2-3 years, my forearms/wrists would itch so badly that I would scratch until I drew blood- tried cortisone ointments, prescriptions steroids, tea tree oil, nothing would help- I couldn't stand to have my…"
Feb 11
CurlyK replied to Jacq's discussion Itchy thighs in the group Frontal Fibrosing Alopecia
"I had itchy thighs and up into hip area - would get small red blotchy spots - slightly scaly. I used a steroid cream to calm it down. It was weird because it usually only happened Jan - April or so. Sometimes I would get it on the inner part of my…"
Feb 11
Airam-FFA replied to Jacq's discussion Itchy thighs in the group Frontal Fibrosing Alopecia
"Hi Leni Do you think it was the sun or suntan lotion? I wonder whether my FFA might have been caused by using the sun lotion that you only apply once per day. That would explain my hair loss over all my body and then just the FFA along the hair…"
Feb 11
Leni replied to Jacq's discussion Itchy thighs in the group Frontal Fibrosing Alopecia
"I have also had this. Thighs were affected about 5-6 years ago, then it was abdomen and breasts. I would scratch till I bled. It was an itch that felt deep in the tissue. It wasn't until the frontal hair loss occurred at hat I connected a full…"
Feb 11
Jacq replied to Jacq's discussion Itchy thighs in the group Frontal Fibrosing Alopecia
"Really?  How disappointing.  Fancy saying every doctor does the same thing, not true.  Is there another way to get a referral to someone else?  That is very frustrating. :("
Feb 5
Airam-FFA replied to Jacq's discussion Itchy thighs in the group Frontal Fibrosing Alopecia
"I saw a different consultant on Thursday - I left feeling more dejected than before. I wanted to be referred for a second opinion and he refused, saying that all hospitals would be treating patients with the same medication! I'm not convinced…"
Feb 5
Jacq replied to Jacq's discussion Itchy thighs in the group Frontal Fibrosing Alopecia
"It's a tough one I guess. I go to my derm looking for answers.  She can't give me definitive ones so suggests things that "may work"..... but there is no tried and true results to fall back on.  Maybe it's a…"
Feb 4
Airam-FFA replied to Jacq's discussion Itchy thighs in the group Frontal Fibrosing Alopecia
"I agree - the meds seem to be pretty ineffective and have too many potential side effects :/"
Jan 27

Profile Information

Do you have alopecia?
Scarring alopecia
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall (2 comments)

You need to be a member of Alopecia World to add comments!

Join Alopecia World

At 11:06pm on September 15, 2015, LeslieAnn Butler said…

You will find a lot of support here!

At 7:37pm on September 14, 2015, LeslieAnn Butler said…

Hello and welcome!

How are you today?

 
 
 

Badge

Loading…

Disclaimer

Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.

AlopeciaWorld.com: It's hair loss support at its best!

© 2017   Created by Alopecia World.   Powered by

Badges  |  Report an Issue  |  Terms of Service