"Oh AnnieMay I am so sorry you have this crappy condition :( I have been diagnosed 2 years now and some days I feel ok but some days not so much. It just sucks.
Now you have a definitive diagnosis you can get some facts though I guess.…"
"Leni, this whole thing is frustrating for sure! I think, I hope as this becomes more well known, that when women or men, present themselves to doctors with these symptoms-that it will be diagnosed earlier and especially with the skin problems get…"
"It's so frustrating looking back on all of this. Perhaps more could have been done and an earlier diagnosis. Had to have extreme circumstances for my dr to finally take a hair sample. I've been treated for the eyebrow loss for many years.…"
"Thanks Jacq, I hope it is getting better for you, it is bad enough on my arms, I couldn't imagine it on the legs, its a horrid feeling!
Leni, yes, I've been diagnosed with lichen planopilaris too- if I had had a decent dermatologist…"
"Did you get diagnosed with lichen planopilaris?? I did. I am thinking there is more to this diagnosis too. There are different versions of this condition that affect skin( not just hair). Lichen plains for instance."
"I've got itchy forearms, for about 2-3 years, my forearms/wrists would itch so badly that I would scratch until I drew blood- tried cortisone ointments, prescriptions steroids, tea tree oil, nothing would help- I couldn't stand to have my…"
"I had itchy thighs and up into hip area - would get small red blotchy spots - slightly scaly. I used a steroid cream to calm it down. It was weird because it usually only happened Jan - April or so. Sometimes I would get it on the inner part of my…"
Do you think it was the sun or suntan lotion? I wonder whether my FFA might have been caused by using the sun lotion that you only apply once per day. That would explain my hair loss over all my body and then just the FFA along the hair…"
"I have also had this. Thighs were affected about 5-6 years ago, then it was abdomen and breasts. I would scratch till I bled. It was an itch that felt deep in the tissue. It wasn't until the frontal hair loss occurred at hat I connected a full…"
"I saw a different consultant on Thursday - I left feeling more dejected than before. I wanted to be referred for a second opinion and he refused, saying that all hospitals would be treating patients with the same medication! I'm not convinced…"
"It's a tough one I guess. I go to my derm looking for answers. She can't give me definitive ones so suggests things that "may work"..... but there is no tried and true results to fall back on. Maybe it's a…"
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