"Hi Jacqui, Iv had FFA for 16 months and have tried numerous treatments which havnt really worked. I am taking Hydroxychloroquine 2x daily and steroid foam every other day. I'm going to see my dermatologist today and was going to ask about a…"
"Oh Jo I am so sorry to read this. Yes you are gorgeous dents or not.
My derm only thought I would need one or 2 sets on injections so will interested to see in 6 weeks what we chat about. I must say I had had no discomfort at all, nothing, I small…"
"I did the hydro cortisone injections about 6 times. Sadly for me I now have what appears to be dents in my scalp, yep it reminds me of a worry stone, that same smooth dent that I seem to fit my finger tips in quite nicely. Bummer as of…"
"I get strange itches too. Mostly exzema that comes out of nowhere - on my forehead, around my lips and especially around my eyes. This has gotten worse in the past couple of months. I am just relieved that I am going to see the only people in this…"
"Thank you the information! I waffle back o.and forth from do nothing to try something. right now all I use is Clobetasol but steriod injections have been offered too. I'm just sick of meds and tests I've waited to do more.
I was doing OK…"
"I also got steroid injection treatments about 5-6 different times, but to be honest I have no idea if it slowed the progression down or not and eventually I started worrying about the thinning of the skin and possible "dents or hollows"…"
"Oh thanks for the info. Yes my derm feels helpless that all she can do is throw strong drugs at me so maybe injections and thinner skin is better than some of the drug side effects. Good to see you have results from them :)"
"Yes she mentioned the skin thinning but explained by injecting on "the way out" would help with that. i will only give it a couple of goes for this reason and hey they are injections on your head yikes!"
"Jacqui, I'm glad to hear you started the steroid injections. I have had them for almost 4 years now, and have always been pleased. I get 15 to 20 injections, on average every 2 months. No, it has not totally stopped the…"
"When I was first diagnosed, I had steroid injections every 6 weeks. I did it 3 to 4 times, but discontinued because I had been told by a dermatologist that he didn't think it would help. However, I have a friend recently diagnosed with FFA and…"
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