• Female
  • Delray Beach, FL
  • United States

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TMB's Discussions

Jak Inhibitor Drugs

Started this discussion. Last reply by hagster Sep 26, 2017. 7 Replies

Has ANYONE out there been involved in any clinical trials in 2017 with XelJanz or any other Jak inhibitor drug? If so what is your feedback?

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Profile Information

Relationship Status:
About Me:
I am a 58 year old female living in Florida for the past 23 years. Formerly lived in New York and never had hair problems there! Looking for a cure....
Do you have alopecia?
Alopecia areata
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall (3 comments)

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At 3:04pm on October 20, 2017, Trina said…

I am new to this site, just joined yesterday. Has anyone else had issues with wigs feeling itchy on your head?  I have been diagnosed with Lichen Planopilaris. I tried on some wigs to see what they feel like when I was first diagnosed with this.  They were so uncomfortable because of the itching, especially on the front. I went to a wig shop and tried these on. I know there are various kinds of wigs. I'm am hoping I can get some information on how to find some wigs that are comfortable and not so harsh to the scalp.

At 1:02pm on October 10, 2017, Lesley said…


I saw your post on My Follea group and I wanted to let you know that there are Follea consultants located all over the country.  On Saturday, October 14th there will be a Beauty Bazar in Daytona and Follea will be there as well.  This may be a great time to stop by and see the pieces.

Otherwise, you can go onto or or peggy and find a consultant to speak with.

At 1:30pm on September 26, 2017, RabidRabbit said…

Thank you for your comment!  I'm getting the impression that many people have their first outbreak as children or young adults and I am older than that. I guess it's possible I might have had small spots before and never noticed but I think my hair stylist would have commented and I see her every 5 weeks. What I have now is much larger than a quarter. I don't see many people with AA mention having allover scalp discomfort, so it makes me wonder if I have AA or possibly something else. I have a lot of research to do on this site!




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