TMB
  • Female
  • Delray Beach, FL
  • United States
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  • Lesley
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TMB's Discussions

Jak Inhibitor Drugs

Started this discussion. Last reply by hagster Sep 26, 2017. 7 Replies

Has ANYONE out there been involved in any clinical trials in 2017 with XelJanz or any other Jak inhibitor drug? If so what is your feedback?

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Latest Activity

TMB and Capelli di Speranza are now friends
Aug 7, 2018
TMB and kimk are now friends
Mar 31, 2018
TMB replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Singh, ere is a good amount of info on the Consort trial: The clinical trial is being conducted by Concert Pharmaceuticals, Inc., to study a new treatment called CTP‐543 in adult patients, age 18 to 65 years, with at least 50% hair loss. The study…"
Mar 11, 2018
TMB replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I can't speak 100% on this but, the clinical trial guidelines are only moderate to severe alopecia areata. Greater than 50% hair loss.  Participants must be between 18 and 65. There have been ongoing clinical trials sponsored by Consort.…"
Mar 11, 2018
TMB replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"You are welcome. You can also go to www.clinical trials.gov and look for clinical trials and locations for CTP-543. Hopefully there is a location near you and you will be accepted. But remember a clinical trial does not always guarantee the drug.…"
Mar 10, 2018
TMB replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi everyone... There is a new clinical trial out there being sponsored by a pharmaceutical company called Consort.  They are sponsoring clinical trials in 35 states around the country to get FDA approval for a drug that will hopefully be better…"
Mar 10, 2018
TMB left a comment for grsultradh
"Has the product helped your hair regrow?"
Oct 21, 2017
Trina left a comment for TMB
"I am new to this site, just joined yesterday. Has anyone else had issues with wigs feeling itchy on your head?  I have been diagnosed with Lichen Planopilaris. I tried on some wigs to see what they feel like when I was first diagnosed with…"
Oct 20, 2017
TMB replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Thanks for the feed back. :)"
Oct 20, 2017
TMB replied to kkategm's discussion Help :(
"Since I live in the US and am not familiar with what a "biologic" is, can you give me more info on what you are referring to?"
Oct 18, 2017
TMB replied to J_s_m's discussion New Patents Approved. Good news ?
"I think we can best find out from a doctor if these new drugs will be available soon or maybe even are already available."
Oct 12, 2017
TMB commented on Madam mim's blog post What works for alopecia areata
"Have you had full regrowth using your recommendations listed above?"
Oct 12, 2017
TMB replied to Halewhy's discussion Alopecia areata worsening after prednisone
"I have also been dealing with AA for almost15 years now. Have had periods throughout those years of hair growth and then hair loss. Unfortunately it is a cycle of good and bad. Have taken kenalog steroid injections on the scalp and in the arm. Am…"
Oct 10, 2017
TMB replied to Peggyknight04@aol.com's discussion Follea Hair in the group My Follea
"Thank you for the information on one on one consultations."
Oct 10, 2017
TMB is now friends with Lesley and Lizzy
Oct 10, 2017
Lesley left a comment for TMB
"Hello, I saw your post on My Follea group and I wanted to let you know that there are Follea consultants located all over the country.  On Saturday, October 14th there will be a Beauty Bazar in Daytona and Follea will be there as well.…"
Oct 10, 2017

Profile Information

Relationship Status:
Married
About Me:
I am a 58 year old female living in Florida for the past 23 years. Formerly lived in New York and never had hair problems there! Looking for a cure....
Do you have alopecia?
Alopecia areata
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall (3 comments)

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At 3:04pm on October 20, 2017, Trina said…

I am new to this site, just joined yesterday. Has anyone else had issues with wigs feeling itchy on your head?  I have been diagnosed with Lichen Planopilaris. I tried on some wigs to see what they feel like when I was first diagnosed with this.  They were so uncomfortable because of the itching, especially on the front. I went to a wig shop and tried these on. I know there are various kinds of wigs. I'm am hoping I can get some information on how to find some wigs that are comfortable and not so harsh to the scalp.

At 1:02pm on October 10, 2017, Lesley said…

Hello,

I saw your post on My Follea group and I wanted to let you know that there are Follea consultants located all over the country.  On Saturday, October 14th there will be a Beauty Bazar in Daytona and Follea will be there as well.  This may be a great time to stop by and see the pieces.

Otherwise, you can go onto Follea.com or locksbylesley.com or peggy knight.com and find a consultant to speak with.

At 1:30pm on September 26, 2017, RabidRabbit said…

Thank you for your comment!  I'm getting the impression that many people have their first outbreak as children or young adults and I am older than that. I guess it's possible I might have had small spots before and never noticed but I think my hair stylist would have commented and I see her every 5 weeks. What I have now is much larger than a quarter. I don't see many people with AA mention having allover scalp discomfort, so it makes me wonder if I have AA or possibly something else. I have a lot of research to do on this site!

 

 
 
 

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