Renee
  • Female
  • Pennsylvania
  • United States
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  • Miss April
  • Royalty
  • Jess (Jordyn's Mom)
  • Nicole
  • Linda
  • LeslieAnn Butler
  • Maria, Mia's Mom
  • kastababy

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Relationship Status:
Married
About Me:
I'm a mother a beautiful BRAVE 5 year old who developed alopecia areata 2 months after donating her hair to locks of love.
Do you have alopecia?
I do not have alopecia
Are you age 18 or older?
Yes - I am 18 or older

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Renee's Blog

hmmm

Posted on March 3, 2010 at 12:58am 1 Comment

How come my daughter's hair grows back in the summer? And as soon as the summer comes and goes so does her hair! Any input? THANKS

Should I be aggravated?

Posted on November 13, 2008 at 5:24pm 9 Comments

I wrote a letter to my 5 yr old daughters teacher to see if it was possible to come in and talk to the class about her AA. My daughter has been asking us for a little while now. So the teacher said she will talk to the principal and get back to us. She got back to us today and said the principal denied the request and said we can send the information to the school nurse to review and she will talk to the class about it. The school nurse in my opinion does not have the knowledge I have on her… Continue

Thank you to all who responded to my last blog, now I've got another question I hope you can help me on.

Posted on October 23, 2008 at 2:57am 4 Comments

My daughter Juliana is 5. She recently had quite significant regrowth, but as soon as it came in it all fell out again. My husband and I spoke to her to see if she would like us to talk to her class about her AA. She came to me the other day and said "Mommy, are you going to come and talk to my class about my alopecia?" I said, "Sure sweetie." Now my question is, does anyone know where I can get a video of some kind that will simple, on a kindergarten level for them to understand, or should I… Continue

AM I A CRAZY PARENT?!!!!!!

Posted on October 9, 2008 at 11:32pm 3 Comments

HI everyone! My name is Renee. My daughter Juliana was diagnosed with AA in 09/07. She just started Kindergarten. She is such an inspiration in my life. She is so strong. But my question is would it be crazy to seek people willing to come to her school and talk to children and parents about AA to raise awareness? She is only 5, she is kind of aware of her situation and totally cool with it but I just want to make other children, parents and teachers aware. I got a paper sent home from the… Continue

Comment Wall (11 comments)

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At 3:41pm on March 4, 2010, Sara (Ryan's mom) said…
Aw darn, I was hoping you were closer. We are in Easton,PA so like 2 hours away...
At 11:42am on March 2, 2010, Sara (Ryan's mom) said…
Hi, where are you from in PA?
At 10:14am on November 17, 2008, Trina said…
Hi Renee,

I have a 9 year old with AA and I have had AU for the last 15 years. I see you are using shampoos. Biotin based shampoo really works as it stimiluates hair folliciles. My daughter has been in remission for several months and I still find myself looking to make sure there are no spots. It does take time to grow back and even know for someone with extremely long hair she still has areas where it is not as long because it is growing back. these children are such inspiration ans I was a nervous wreck for her.
At 10:34pm on October 2, 2008, Lynn AKA Mom of 2 w/AA said…
Hi again! By changing her diet, I meant did you start giving her a daily multi-vitamin if you had not done so before? Maybe your family has always been pretty healthy eaters ~ so there might not be a need for a change in diet? We pretty much avoid all junk foods ~ no McDonalds, etc. I used to take the kids at least once a week when they were younger for McDonalds, etc., pre-AA. I think you are making the wise decision to avoid the injections with your daugther, and only consider doing so when she regains all of her hair, then only if at some point small spots appear. My kids' spots are small, so we feel the injections are the best treatment option. If anything, you could consider the Roggaine and Cortio-steroid (spelling?) cream. I know what you mean by hassels with insurance! Every four weeks we face the $25.00 co-pay per kid, then there is the percentage the insurance does not cover. For what I pay per month for the kids to receive the shots treatment, I could almost make a car payment. However, I would most certainly drive an "Old Betsy Bomb" if necessary, for my kids to continue receiving treatment!! When we treated with the Roggaine & cream, we took my daughter to the derm. every five to six weeks for check ups, which was much more afforadable, but the hair loss was rapid, and it took so many months to get the hair back! Well, I'd better go now as it is my turn to be in the "Kitty Trap." Kitty Trap means: We have a fat lazy cat, and during the evening time, each family member takes turns letting her sit on our laps ~ or she will meow at each family member, and it is like she is yelling at us :o)
At 5:03pm on October 2, 2008, Lynn AKA Mom of 2 w/AA said…
Hi again Rene! Thanks so much for the information regarding the products you are using. My kids are 10 & 11, so they shower on their own. I think I'll shop on the internet for the shampo and conditioner, to see if I can get a better deal than the health food stores. Once I bought sea kelp tablets from the health food store, for my daughter (the last & first time she had AA - age 8), but before I gave those to her, I learned they can cause thyroid problems, so I did not give her any. Sorry your daugther has had extensive hair loose, but I am so glad she is experiencing regrowth. Have you taken her to the dermatologist ~ or just a regular M.D.? Have you adjusted her diet at all? How long did it take her to loose it all? Did it start off as spotty AA? My kids are tolerating the shots & their AA is still naturally concealed. My daughter has been treating longer and has regrowth. I really think Roggaine works, as it along with a steroid cream brought back the 1/4 scalp hair my daughter lost in four months, the last time around. Take care & I hope to hear back from you soon!
At 9:53am on October 1, 2008, Lynn AKA Mom of 2 w/AA said…
Hi there Rene! I hope you and the family are doing well. I read in one of your posts "I've been using tea tree oil shampoo and conditioner to wash her hair, after her bath or whatever while her pores were still open I would apply Lavender oil, Rosemary oil, Red Thyme oil and tea tree oil." How did you decide to use these items? I'd appreciate the names of items, and more information, when you have time. Thanks!
At 6:43pm on September 5, 2008, LeslieAnn Butler said…
Good! Keep up the good work!
At 5:57pm on September 5, 2008, LeslieAnn Butler said…
Renee, your daughter and her puppies are adorable!
How are you and your little girl doing?
LeslieAnn
At 11:57am on September 3, 2008, Linda said…
Hi Renee, welcome to AlopeciaWorld! What a cutie your little girl is! Are you anywhere near Harrisburg?
At 11:27am on September 3, 2008, rj, Co-founder said…
Hi, Renee. Welcome to Alopecia World! This is a great place for great people, so be sure to make your positive presence known. :-) - rj, Co-founder
 
 
 

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