Hope4mySON
  • Female
  • New York, NY
  • United States
Share
  • Blog Posts
  • Discussions (23)
  • Events
  • Groups
  • Photos
  • Photo Albums
  • Videos

Hope4mySON's Friends

  • jags
  • chris_s

Hope4mySON's Discussions

Toddler inflammation

Started this discussion. Last reply by Hope4mySON Dec 1, 2017. 4 Replies

Hi, Are there any anti-inflammatory medications that have been prescribed for a toddler? My son's alopecia is still in the active stage.  Should I remove dairy from his diet?  please give me any…Continue

Two year old with Alopecia

Started this discussion. Last reply by chris_s Nov 10, 2017. 6 Replies

My two year old has aggressive alopecia areata. I am at a loss and trying any sort of treatment possibilities.  Please let me know ANY methods that you have tried on a two year old which have worked.…Continue

Gifts Received

Gift

Hope4mySON has not received any gifts yet

Give a Gift

 

Hope4mySON's Page

Latest Activity

Hope4mySON replied to ErikaJane23's discussion Study alert! ATI-50002 (JAK1) Topical Solution Study
"It is already commercially available but it not covered by insurance. your derm can prescribe it to you"
22 hours ago
Hope4mySON replied to ErikaJane23's discussion Study alert! ATI-50002 (JAK1) Topical Solution Study
"insurance wont pay for it. you have to pay out of pocket its about 300 for a small tub. Make sure to ask for the tub and not the lotion"
yesterday
Hope4mySON replied to ErikaJane23's discussion Study alert! ATI-50002 (JAK1) Topical Solution Study
"the derm prescribed it for us. it is compounded at a pharmacy in philadelphia.  we do have to check his blood every 6 weeks"
yesterday
Hope4mySON replied to ErikaJane23's discussion Study alert! ATI-50002 (JAK1) Topical Solution Study
"We are not on the trial but we are using  topical xeljanz on my son and thank god we are seeing regrowth.  this is interesting because this is a solution. I tried to get the solution for my son but the dr wouldnt prescribe it bc of his age…"
yesterday
Hope4mySON replied to chris_s's discussion HC017AA - drug for pediatric alopecia areata granted Orphan Drug status
"yes they told me to contact them in a few years.  HC017AA, which is in the injection granted ODD status for the FDA is currently in pre-clinical trial. THEIR focus is pediatrics. they are very optimistic"
Feb 12
Hope4mySON replied to chris_s's discussion HC017AA - drug for pediatric alopecia areata granted Orphan Drug status
"Hi Chris i reached out to them and they said my child was too young. Only 7 and older. "
Feb 12
Hope4mySON and jags are now friends
Jan 19
Hope4mySON replied to chris_s's discussion Topical Xeljanz
"pls keep me posted"
Jan 19
Hope4mySON replied to 3ebdie's discussion Topical ruxolitinib from Dr.King
"Any update on any people who have used the topicals?"
Jan 19
Hope4mySON replied to chris_s's discussion Topical Xeljanz
"very  interesting- what made u use the liquid over the cream?  I am applying the cream on my son and he doesnt make any reaction and neither do i.  If u apply it to ur scalp does it hurt.  "
Jan 19
Hope4mySON replied to chris_s's discussion Topical Xeljanz
"HI has anyone on this group used a Topical JAK in liquid form? My son is using the cream I want the liquid.t the pharmacy told me they could make the liquid but my dr wont prescribe it to me"
Jan 16
Hope4mySON replied to Giusep's discussion Turn Xeljanz from a pill form to a topical cream
"Hey how is it going? Are they giving you a cream form or a liquid form"
Jan 16
Hope4mySON replied to Alopecia World's discussion Dr. Phil looking for guests with alopecia
"I actually think that alopecia needs much more publicity. It is just as emotionally devastating as any other disease.  Alopecia is severely underfunded.  If a two year old has a rheumotoid arthritis, the doctors would easily prescribe a…"
Dec 19, 2017
Hope4mySON replied to ac's discussion There still is hope
"thank you for your post. We need more posts like this"
Dec 14, 2017
Hope4mySON replied to Hope4mySON's discussion Toddler inflammation
"its worth a try"
Dec 1, 2017
Patchesforlife replied to Hope4mySON's discussion Toddler inflammation
"I keep drinking turmeric tea.. i removed gluten and take quercitin and fish oil..im not sure if taking turmeric supplements help"
Dec 1, 2017

Profile Information

Relationship Status:
Married
Do you have alopecia?
Parent or guardian of child with alopecia
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall

You need to be a member of Alopecia World to add comments!

Join Alopecia World

  • No comments yet!
 
 
 

Badge

Loading…

Disclaimer

Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.

AlopeciaWorld.com: It's hair loss support at its best!

© 2018   Created by Alopecia World.   Powered by

Badges  |  Report an Issue  |  Terms of Service