chris_s
  • winnipeg, mb
  • Canada
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chris_s's Discussions

HC017AA - drug for pediatric alopecia areata granted Orphan Drug status

Started this discussion. Last reply by Hope4mySON Feb 12. 3 Replies

hello,I came across this in a different alopecia forum. I don't know much about the drug, but it sounds relevant to my interests so I thought I'd post the information up hereOrphan Drug status is one…Continue

clinical trial of PF-06651600 And PF-06700841 selective JAK inhibitors

Started this discussion. Last reply by bekind Feb 8. 13 Replies

I recently saw an ad for a local trial for the two jak inhibitors listed in the topic. These are not xeljanz or jakafi, they are selectively jak3 and jak 1 inhibitors respectively. My son is not…Continue

Narrowband UVB phototherapy treatment for alopecia

Started this discussion. Last reply by chris_s Oct 10, 2017. 4 Replies

I wasn't able to find much about narrowband UVB treatments on this forum so I thought I'd post our experience for the record, in case anyone else is looking at it. I think there is some older…Continue

the ATI-50001 and ATI-50002 thread

Started this discussion. Last reply by Zach May 4. 18 Replies

ATI-50001 is another selective JAK inhibitor being developed by Aclaris Therapeutics. Aclaris is developing and testing an oral and topical version called ATI-50002. The oral version is currently in…Continue

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Latest Activity

Xeljanzmiracle replied to chris_s's discussion New JAK inhibitor - CTP-543 by Concert Pharmaceuticals
"Kevin, when I said that I used to eat half a stick of butter, I don't mean literally putting butter in my mouth all by itself.  I meant that I was cooking with it and using it too liberally on my food.  Don't call individuals…"
Sunday
Xeljanzmiracle replied to chris_s's discussion New JAK inhibitor - CTP-543 by Concert Pharmaceuticals
"I forgot where u live Mtran.  I'm able to fly out directly from Oakland.  Did u ever start Xeljanz?"
Sunday
mtran2000 replied to chris_s's discussion New JAK inhibitor - CTP-543 by Concert Pharmaceuticals
"Uh Huh"
Sunday
Xeljanzmiracle replied to chris_s's discussion New JAK inhibitor - CTP-543 by Concert Pharmaceuticals
"Don't be jealous Mtran, lol!  I haven't gotten any Xeljanz in a year.  I'm not even signed up on the hardship program anymore.  As I said, Norwegian Airlines prices are SO LOW from where I live that anyone can afford…"
Saturday
kevin replied to chris_s's discussion New JAK inhibitor - CTP-543 by Concert Pharmaceuticals
"she really weird that woman"
Saturday
mtran2000 replied to chris_s's discussion New JAK inhibitor - CTP-543 by Concert Pharmaceuticals
"I hope you are not selling the Xeljanz you get for free to finance your trips as you have tried to do in the past."
Saturday
Xeljanzmiracle replied to chris_s's discussion New JAK inhibitor - CTP-543 by Concert Pharmaceuticals
"Here are some pictures.  First I had my hair braided (corn rows), then I weaved in the extensions.  I used to do my own hair for 15 years before I went AU.  So I was REALLY excited that I had enough hair to braid, lol!"
Friday
Xeljanzmiracle replied to chris_s's discussion New JAK inhibitor - CTP-543 by Concert Pharmaceuticals
"I had to discontinue Xeljanz until my cholesterol goes down. I know it was high from eating half a stick of butter a day, not the Xeljanz, lol! So I switched to olive oil. My hair did grow long enough to braid and put in some extensions. I will post…"
Friday
singh replied to chris_s's discussion New JAK inhibitor - CTP-543 by Concert Pharmaceuticals
"Hey am ok thanks. How are you doing ?  How your hair growth coming along ? And how is sunny SAN Francisco?  Kind regards "
Friday
singh replied to chris_s's discussion New JAK inhibitor - CTP-543 by Concert Pharmaceuticals
"Thank you Jackie ! Any updates in the future please do post. yeh same I think this is great for even non-responders to xeljanz. i have heard in past that FDA drugs that have been fast tracked have been approved within 3 years but not sure if…"
Friday
jackie replied to chris_s's discussion New JAK inhibitor - CTP-543 by Concert Pharmaceuticals
"below is the update Concert Pharmaceuticals Completes Enrollment in Phase 2a Trial of CTP-543 in Alopecia Areata Topline Phase 2a Data from the 4 mg and 8 mg Cohorts Expected in Fourth Quarter of 2018 Additionally, a Phase 2b clinical trial is…"
May 17
Xeljanzmiracle replied to chris_s's discussion New JAK inhibitor - CTP-543 by Concert Pharmaceuticals
"Hey Singh! How are u?"
May 17
singh replied to chris_s's discussion New JAK inhibitor - CTP-543 by Concert Pharmaceuticals
"Any updates on growth with this ctp-543? as it’s been fast tracked by FDA I have researched and seen they have fast tracked and given drugs a licence  within 3 years .. which if all is good with it will be encouraging for us sufferers."
May 16
chris_s replied to kimk's discussion Off Label Use of Oral Jak Inhibitor Cost
"they will sometimes decline it because it's deemed cosmetic. Similarly some people are not able to get wigs or rogaine paid for"
May 14
Zach replied to chris_s's discussion the ATI-50001 and ATI-50002 thread
"Yes. Patchy. I’ve shaved my head since I was 19. "
May 4
Hope4mySON replied to chris_s's discussion the ATI-50001 and ATI-50002 thread
"did  u have patchy? what type did u have"
May 4

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Are you age 18 or older?
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Comment Wall (3 comments)

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At 2:25pm on February 10, 2018, Mashloum said…

Hi Chris_s's

unfortunate the hair-up is nothing, it is just to waste time and money, it seems the Xeljanz is the only solution so far, and I am preparing to start the medication for my son (9 years), but I am searching for the doctor will be a sponsor for the case

At 3:08am on May 5, 2016, Pat said…

My Doctor today is willing to write a script for Topical Xeljanz however she doesn't know where I can buy it from. Is everyone buying the tabs and getting a compounding chemist to prepare it or can I purchase it as a cream without having to buy tabs first and find someone to prepare it for me? Any help would be appreciated. I live in Australia.

This site is great.

At 4:16pm on March 21, 2015, LeslieAnn Butler said…

Hello and welcome! 

How are you and your son today?

Leslie Ann

 
 
 

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