chris_s
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chris_s's Discussions

HC017AA - drug for pediatric alopecia areata granted Orphan Drug status

Started this discussion. Last reply by Hope4mySON Feb 12. 3 Replies

hello,I came across this in a different alopecia forum. I don't know much about the drug, but it sounds relevant to my interests so I thought I'd post the information up hereOrphan Drug status is one…Continue

clinical trial of PF-06651600 And PF-06700841 selective JAK inhibitors

Started this discussion. Last reply by bekind Feb 8. 13 Replies

I recently saw an ad for a local trial for the two jak inhibitors listed in the topic. These are not xeljanz or jakafi, they are selectively jak3 and jak 1 inhibitors respectively. My son is not…Continue

Narrowband UVB phototherapy treatment for alopecia

Started this discussion. Last reply by chris_s Oct 10, 2017. 4 Replies

I wasn't able to find much about narrowband UVB treatments on this forum so I thought I'd post our experience for the record, in case anyone else is looking at it. I think there is some older…Continue

the ATI-50001 and ATI-50002 thread

Started this discussion. Last reply by chris_s Nov 21, 2017. 8 Replies

ATI-50001 is another selective JAK inhibitor being developed by Aclaris Therapeutics. Aclaris is developing and testing an oral and topical version called ATI-50002. The oral version is currently in…Continue

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Latest Activity

chris_s replied to ErikaJane23's discussion Study alert! ATI-50002 (JAK1) Topical Solution Study
"the trial that started in january is actually phase 2 https://clinicaltrials.gov/ct2/show/NCT03354637 phase 1 trials are giving the treatment to healthy subjects to make sure no one grows a third arm or something. phase 2 trials are actually…"
Wednesday
chris_s replied to ErikaJane23's discussion Study alert! ATI-50002 (JAK1) Topical Solution Study
"ATI-50002 is not yet an FDA approved drug. there's no specific timeline on development phases and it depends a lot on the results of each phase. Aclaris might be able to provide some information but probably not.  Hope4mySON is speaking…"
Wednesday
chris_s replied to chris_s's discussion Tofacib - commerically available topical xeljanz Tofacitinib cream
"Not surprisingly the website is gone and they have gone silent "
Wednesday
chris_s replied to ErikaJane23's discussion Study alert! ATI-50002 (JAK1) Topical Solution Study
"I've been watching this one for a while, the current trial is scheduled to end in May 2018 (soon!)  https://clinicaltrials.gov/ct2/show/NCT03354637 I'm skeptical of a dermatologist already claiming people are "growing hair like…"
Tuesday
chris_s replied to kevin's discussion Interleukin 2 low dose THE CURE
"Hi Kevin, I saw in another post you mentioned you were finished the study. did you find out if you were on the placebo track or the treatment track?  how was your experience? "
Feb 17
Hope4mySON replied to chris_s's discussion HC017AA - drug for pediatric alopecia areata granted Orphan Drug status
"yes they told me to contact them in a few years.  HC017AA, which is in the injection granted ODD status for the FDA is currently in pre-clinical trial. THEIR focus is pediatrics. they are very optimistic"
Feb 12
chris_s replied to chris_s's discussion HC017AA - drug for pediatric alopecia areata granted Orphan Drug status
"even age 7 is aggressively young compared to the age requirements on a lot of other drugs used to treat alopecia.  Did you inquire about participating in a trial? "
Feb 12
Hope4mySON replied to chris_s's discussion HC017AA - drug for pediatric alopecia areata granted Orphan Drug status
"Hi Chris i reached out to them and they said my child was too young. Only 7 and older. "
Feb 12
Mashloum left a comment for chris_s
"Hi Chris_s's unfortunate the hair-up is nothing, it is just to waste time and money, it seems the Xeljanz is the only solution so far, and I am preparing to start the medication for my son (9 years), but I am searching for the doctor…"
Feb 10
Mashloum and chris_s are now friends
Feb 10
chris_s posted a discussion

HC017AA - drug for pediatric alopecia areata granted Orphan Drug status

hello,I came across this in a different alopecia forum. I don't know much about the drug, but it sounds relevant to my interests so I thought I'd post the information up hereOrphan Drug status is one of a number of different FDA programs used to help speed testing and development of drugs that treat diseases that don't currently have viable treatmenthttp://www.prweb.com/releases/2018/01/prweb15083010.htm…See More
Feb 9
chris_s replied to chris_s's discussion clinical trial of PF-06651600 And PF-06700841 selective JAK inhibitors
"Hey Bekind; how did your january checkup go? growth still progressing? "
Feb 4
chris_s replied to chris_s's discussion New JAK inhibitor - CTP-543 by Concert Pharmaceuticals
Feb 4
Sephardigirl66 replied to chris_s's discussion Topical Xeljanz
"Anna, slow deep breaths. a few yoga stretches. focus in something beautiful. if you can get outside and walk make yourself do it. Chins up. The xeljanz has worked for AA. I will look for research on AU and the med. Prayers, Leah"
Jan 30
Football fan replied to chris_s's discussion Topical Xeljanz
"Xeljanz pill and topical did not work for me.Any one try ruxolitnib topical and work.They both seem to work great on rats maybe humans need a better delivery to the hair folical"
Jan 30
Anna replied to chris_s's discussion Topical Xeljanz
"Hi Leah - No, I had not tried Xeljanz before the topical. I only just last week got a prescription for it, and have just started. I am continuing the topical as I have it, but so far absolutely nothing. I am trying to stuff down my terror that…"
Jan 30

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At 2:25pm on February 10, 2018, Mashloum said…

Hi Chris_s's

unfortunate the hair-up is nothing, it is just to waste time and money, it seems the Xeljanz is the only solution so far, and I am preparing to start the medication for my son (9 years), but I am searching for the doctor will be a sponsor for the case

At 3:08am on May 5, 2016, Pat said…

My Doctor today is willing to write a script for Topical Xeljanz however she doesn't know where I can buy it from. Is everyone buying the tabs and getting a compounding chemist to prepare it or can I purchase it as a cream without having to buy tabs first and find someone to prepare it for me? Any help would be appreciated. I live in Australia.

This site is great.

At 4:16pm on March 21, 2015, LeslieAnn Butler said…

Hello and welcome! 

How are you and your son today?

Leslie Ann

 
 
 

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