Alopecia World's Blog (65)

NEW Advertising and Anti-Spam Policy for Members of Alopecia World

Effective immediately, Alopecia World's new advertising and anti-spam policy is as follows:

Alopecia World will not tolerate unauthorized advertising by any business, organization, or anyone affiliated with a business or organization in an official or unofficial capacity.

Every business and organization allowed to maintain a profile on Alopecia World must receive written authorization from Alopecia World before posting any advertisement or promotional material elsewhere on the…


Added by Alopecia World on July 8, 2010 at 12:00am — No Comments

Share your NAAF conference experience on Alopecia World :-)

The 2010 NAAF conference in Indianapolis, IN, is amazing!

Several members of Alopecia World are present and some are even making a positive difference as group facilitators and in various other volunteer capacities.

Cameras are everywhere, too.

Therefore, we encourage each of you in attendance to upload your NAAF conference photos and videos to

We also encourage you to blog about your NAAF…


Added by Alopecia World on June 26, 2010 at 5:00pm — 3 Comments

INTERNATIONAL ALOPECIA DAY is Saturday, July 17, 2010!

In April 2009, Alopecia World member Mary Marshall proposed the idea of a National Bald Out day.

Mary's idea quickly evolved into an international celebration three months later to raise public awareness of alopecia and express our pride in our bald heads.

However, due to a "National Bald Out" trademark claim filed by another member of Alopecia World (see for details), the popular National Bald Out discussion group on Alopecia…


Added by Alopecia World on May 5, 2010 at 4:00pm — 3 Comments

Protect your email address on Alopecia World

The email address associated with your Alopecia World account is private and will remain so unless you choose to share it with others.

Therefore, we caution you to be wary of any request for your email address or any other contact information you have not made publicly accessible via your Alopecia World profile and posts.

You also should NOT join email lists on other sites just because you were asked to do so on Alopecia World!

If a member of Alopecia World wants…


Added by Alopecia World on April 29, 2010 at 1:30am — No Comments

Chat and chat leaders on Alopecia World:-)

There are two ways to access Alopecia World's chat feature.

Simply go to the following web page:

NOTE: This page is also accessible via the navigation menu that appears near the top of every page on Alopecia World.

Or, you can use the chat bar that appears at the bottom of every page on Alopecia World.

Alopecia World Chat Bar

If you would like to become a chat leader on Alopecia…


Added by Alopecia World on April 19, 2010 at 3:30pm — 1 Comment

If you do NOT have alopecia...

If you do not have alopecia, please join the group "Non-alopecians in Alopecia World" and also consider participating in one or more of the following groups:

NAME: Non-alopecians in Alopecia World

DESCRIPTION: If you're a member of Alopecia World and you do NOT have alopecia, you should join this group. Share your unique concerns as a non-alopecian who's truly supportive of alopecians. Let us learn from…


Added by Alopecia World on March 4, 2010 at 12:00pm — No Comments

Keeping safe and protecting your privacy on Alopecia World

Alopecia World strongly encourages all of its members to adhere to the following safety and privacy guidelines:

1. Report all suspicious and inappropriate conduct to Alopecia World:

2. Review your privacy settings at least once a week:…


Added by Alopecia World on March 2, 2010 at 1:30pm — No Comments

10 tips for getting the most out of Alopecia World

Here’s how you can get the most out of Alopecia World:

1. Treat all members of Alopecia World with the utmost dignity and respect at all times.

2. Complete your personal profile and upload a profile photo. You may also upload additional photos and videos that are…


Added by Alopecia World on December 3, 2009 at 2:30pm — 2 Comments

Why are you grateful for Alopecia World?

'Tis the season to be grateful, so we are wondering why you are thankful for Alopecia World? What brought you here? What keeps you here? Why do you tell others about our beloved community? Please let us know in your reply below. :-)

Added by Alopecia World on November 25, 2009 at 1:00pm — 32 Comments

See ya on Facebook and Twitter!

You can now follow Alopecia World on Facebook and Twitter.

Simply click the following link to become a Facebook fan of Alopecia World:

Or, click the following link to begin following Alopecia World on Twitter:

We hope to…


Added by Alopecia World on July 6, 2009 at 5:00pm — 2 Comments

National Bald Out day is next month!

Sunday, July 19, 2009 is the National Bald Out!

Wherever you live, you can take part by organizing an event, getting together with other women with alopecia, and proudly going out in public without a wig or scarf.

Join the National Bald Out group on Alopecia Worldto share ideas for NBO events, find out what's happening where you live, or start a discussion to organize a gathering:

Watch and share…


Added by Alopecia World on June 13, 2009 at 2:00pm — 1 Comment

Authors on Alopecia World

The following list of books were written by members of Alopecia World. Please click the title of each book to learn more about it and to purchase a copy.

If you have an updated profile on and would like your book listed here,…


Added by Alopecia World on April 16, 2009 at 7:30am — No Comments

Share it on MySpace, Facebook and other sites

Whenever you see something in Alopecia World that you would like to share with others, simply click the "Share" link on the page or beneath the item you would like to share.

Doing so will allow you to share the item with your friends on MySpace, Facebook, Twitter and other social networking sites like StumbleUpon, and Digg.

You can also forward Alopecia World content to people on your Alopecia World friends list or send it to regular email addresses.

You are…


Added by Alopecia World on February 27, 2009 at 2:30pm — No Comments

Tell us why you love Alopecia World

Valentine’s Day is this Saturday and what better way to celebrate than with an Alopecia World love fest?

Sweet nothings, heartfelt odes or just a good old-fashioned top ten list, we want to read your love letter to Alopecia World.

All you have to do is write a blog about how Alopecia World stole your heart and tag it “iloveaw” (one word without the quotation marks). You can then search on the "iloveaw"…


Added by Alopecia World on February 11, 2009 at 5:30am — 1 Comment

New privacy options on Alopecia World

Dear Member,

Starting today, you have the option of setting your Alopecia World profile to private.

When you do so, only members of Alopecia World or just the people on your friends list will be able to view your entire profile.

Please note that everyone, including non-members, will still be able to view your main profile photo, name, age, city, state and country. However, they will not be able to see the rest of your profile if you have made it accessible only to…


Added by Alopecia World on January 23, 2009 at 12:00am — No Comments

Policy update: Advertising on Alopecia World

Effective immediately, all businesses must receive written authorization from Alopecia World before posting or uploading any advertisement or promotional material, including marketing videos and products photos, to Alopecia World.

In addition, businesses may not use any feature of Alopecia World to spam its members.

This policy does not prohibit members of Alopecia World from continuing to mention, discuss, recommend, or debate commercial products and services in the larger…


Added by Alopecia World on January 12, 2009 at 11:30am — No Comments

It's now easier to get around Alopecia World

Sample - New submenus on Alopecia World Submenus have been added to the navigation menu at the top of each page on Alopecia World, making it much easier for you to find your way around our beloved community.

Simply move your mouse over each navigation tab to see the additional choices.

You'll find new selections under the following tabs:

* My Stuff (all your personal options are now just a click away!)

* Members (check out the new search page!)

* Blogs

* Photos (be sure to try the…


Added by Alopecia World on January 4, 2009 at 12:30am — No Comments

Wishing you the best year of your life

Happy New Year! :-)

We hope you will continue to fulfill your dreams, pursue your passions, strengthen existing relationships and welcome new ones.

We also thank you for your unique contribution to Alopecia World and encourage you to make an even greater impact on our beloved community in 2009.

With great expectations and appreciation,

richard jones (rj) & Cheryl Carvery
Founders, Alopecia World

Added by Alopecia World on January 1, 2009 at 10:30am — 3 Comments

Happy holidays, Alopecia World!

Dear Members and Friends of Alopecia World,

We are grateful for your presence and participation in Alopecia World and would like to wish you and your loved ones a magnificent and memorable holiday season.

“‘Tis the season to be jolly,” not only because of the gifts we may receive, but also because of the gift of opportunity that is always at every one of our disposal.

Each new moment of our lives is new opportunity to extend our personal gifts, knowledge and talents to…


Added by Alopecia World on December 23, 2008 at 2:30pm — 3 Comments

Don't just join, but join the fun! :-)

A lot of people are looking for you on Alopecia World, but they may not be able to find you.

To make it as easy as possible for other members of Alopecia World to find you, please take time to do the following:

1. Complete your personal profile. Change its look and feel and add all kinds of…


Added by Alopecia World on December 2, 2008 at 6:30pm — No Comments


Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.

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