Nikki
  • Female
  • Nottingham, MD
  • United States
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  • Dana Kozlowski
  • Holly Dixon
  • KATHLEEN B.
  • Jasmine Quintero
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Profile Information

Relationship Status:
Married
About Me:
My alopecia started when I was in high school. However, the patches were so small, and I had such thick hair that it was hardly noticeable. During college, I started having bigger patches of hair loss, but my hair always grew back. At age 23, my hair started falling out like crazy. 2009 was such a hard time for me. I was devastated. My hair went from being thick and beautiful to nothing. I had lost over 50% of my hair, and it was getting harder and harder to hide. I became so self-conscious. I had been getting cortisone shots for an entire year but decided to stop in February 2010. The shots did help somewhat, but I was still losing hair even the areas of re-growth. I purchased my first wig in March 2010. It's hard, but I'm trying to get used to it. I just really miss my hair. It was something that gave me confidence because people always complimented me on my hair. My hair made me feel beautiful. Now I am just trying to learn to be beautiful with my new hair. I hope one day that my hair grows back, but I'm not sure if it will ever be what it was. Acceptance of my alopecia has been hard, but I thank God everyday for my health and the many other things I have in life for which I am thankful. I feel that I have a good support system, but at the end of the day, I never really feel like I have someone who I can really connect with and who understands my struggle.
Do you have alopecia?
Alopecia areata
Are you age 18 or older?
Yes - I am 18 or older

Nikki's Blog

Options for wigs - opinions?

Posted on May 16, 2013 at 11:00am 4 Comments

I haven't been on here in so long, but since I have, I've come a long way with the acceptance of my alopecia. I'm in a much better place, even though it still sucks at times...

I got married last September :) and had a beautiful custom made wig for my wedding. I loved it! I wanted long hair and the guy I go to charged me approx $1250! I know , that's alot of money :( but it was a full cap (and I don't have to wear any tape, which I love, because I HATE using the tape!) I previously…

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To tip or not to tip?

Posted on July 20, 2011 at 11:30am 3 Comments

I just purchased my second wig but this time from a full service salon. My previous wig was purchased at a place that only sold wigs and I didn't even feel like I had to tip when making my purchase (wouldn't have wanted to anyway caused I felt rushed and as though they were forcing styles on me not to my liking.)



Anyway, for the one I recently purchased, which was $800 ($300 more than the last one I bought), I tipped the guy $25 because I felt more inclined to since it was a full… Continue

Needing more support right now

Posted on July 5, 2011 at 12:30pm 4 Comments

Well, I haven't been on here for the longest time, but I find myself needing more support right now since I am very close to losing all of my hair. For a while, I had been experiencing so much regrowth that I was becoming very hopeful that this "worst case" of alopecia was over. The top of my head started growing in pretty thick even though the bottom half of my head was still pretty much bald. However, I was optimistic that I might actually have my own hair for my wedding next September.… Continue

Wig comments

Posted on June 17, 2010 at 9:32am 3 Comments

This past weekend I was at this event, and I wore my wig. I bought my wig back in March so I've been wearing it for a little while now, and alot of people have seen my new "look." Well, at this event, a ton of people I haven't seen in a while (before my wig) were there. Many people I know have been saying over the past couple months how they like my new hair cut and when did I decide to cut it all off, and so on and so on. (I hate these questions – but my hair is so different now from what it… Continue

Family Acceptance Issues - Help!

Posted on June 8, 2010 at 10:32am 6 Comments

Hi Everyone - I've had severe AA for roughly the past 2 years now. I just recently purchased my first wig in March 2010 since I was no longer able to cover up my bald spots, and I was tired of getting painful shots into my scalp. All the while, my future mother-in-law always added her 2 cents and thought she was a doctor by saying I don't eat enough meat, eggs, so on and so on. She even made an exercise comment. I definitely consider myself a healthy eater for the most part. I love fruits and… Continue

Comment Wall (18 comments)

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At 8:48pm on July 10, 2010, Devin said…
Thanks for the add Nikki I hope everything is going well for you!
At 4:15pm on June 28, 2010, Aspen said…
it is doing good... I little spot under my bangs but it is okay How about yours comment me back soon
Aspen:)
At 1:27pm on June 28, 2010, Nicole said…
Hey Nikki, thanks for adding me. I was reading your story. Hope you're doing better. Wearing a wig is not the end of the world. It will get better. Eventually you won't be as paranoid with it. I started wearing them last November. I'm wearing lace now and no one has a clue. It took some getting use to, but I think I've figured it out. Anywho, if you need to talk, feel free to send me a line.
At 3:38pm on June 15, 2010, Dana Kozlowski said…
I just started loosing my hair this March and it is scary. I am slowing getting regrowth and unfortunately I don't have thick hair so any hairloss is apparent. Right now I wear a piece which covers the areas, but I am worried the areas with hair will soon disappear. What kind of wig did you buy?
At 12:55pm on June 13, 2010, Aspen said…
hi i am aspen!!!!
comment me back soon so we can get to know eachother
Aspen:)
At 3:07pm on June 10, 2010, KATHLEEN B. said…
Hey Nikki!... thanks for the add....i can really relate with you... I really had a hard time at first when my AA got really bad too... I felt when I lost the majority of my hair...it felt like i was losing "my identity" and who I was... which in turn...made me feel like i was losing "my sanity." ( then add dating/boyfriends in to the mix..lol...talk about emotional roller coaster ;) )....My hair loss at first was somewhat slow.. and i was able to hide it by using extentions for about 2 years....i just recently purchased a wig ( just like you :) ) and am having a little trouble adjusting and "loving" my wig... but everyday i wear it.. it gets a little better.... took awhile to play around with it a bit.. to get it to "sit" the way i like it... Anyways..i feel like i can relate with you....(especially with the whole boyfriend issues"...msg.. me anytime you want to chat...ttyl...take care!
At 11:18am on June 8, 2010, Jessica said…
hey Nikki,

glad to meet you, thanks for the friend request. so your getting your first wig... lots of things to think about. if you ever need to chat feel free to send a message, chin up girly

lots of love

jessica
At 5:54am on August 21, 2009, Tracy and Amanda said…
Hi Nikki,
How are you?
Tracy
At 2:28pm on June 17, 2009, Daria said…
Hi Nikki! We're neighbors....I live right off Putty Hill!
Bottom line is yes, no doubt, alopecia sucks. And it's really really hard to accept. But I'm here to tell you that there are a lot of wonderful people on this site who will help cheer you up and get you through this. We've all been there...been in that place where it's just starting to happen and life is so confusing. The good news is that for most of us, we conquer that and move on. I still have days where I feel really sorry for myself, but most of the time, I'm really happy. I'm comfortable in my bandanna -- and people really seem to like me in it! That was a big surprise for me. A lot of people just think it looks pretty cool and I've had so many people with hair ask me how to tie it properly b/c they want to wear one, too! Anyway, I've dealt with alopecia for a while now and if you ever want to chat, just let me know. I've also been through this in many stages (from a few bald spots to losing it all-- and I've got some great beauty tricks for each stage of the way!) Take care of yourself now....and know that you're not in this alone!!!
At 9:08pm on June 8, 2009, LeslieAnn Butler said…
Hello and welcome, Nikki!
I know how scary and hard alopecia can be; I have had it for about 30 years. After I became the spokesperson for the National Alopecia Areata Foundation, a lot of women were needing my help and support, so I wrote a book called, "If Your Hair Falls Out, Keep Dancing!" You can find out more on my page -- and it's available on this site under "Bookshelf." Let me know if there's anything else I can do!
LeslieAnn
 
 
 

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