Shane Beard
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  • United Kingdom
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Shane Beard's Discussions

PUVA treatment

Started Aug 31, 2009 0 Replies

Ive just started having PUVA treatment (ultraviolet light sessions) has anyone had any sucsess from this as my dermatoligist seems to think theres an 80% chance of full re-growth.

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Profile Information

Relationship Status:
Single
About Me:
Hello everyone! I first noticed in Jan 2009 that i had a small round bald patch on my beard. This didnt really bother me even though it was getting bigger at a rate of knotts!

But in june 2009 my EX gf noticed a bald spot on my head and i began to panic. I shaved my hair off and noticed lots of other bald spots had appeared too. These spots have now become islands....and if my head was an atlas the bald spots are Europe,Africa and the Canarie Islands!!!!!

Ive just started PUVA treatment (7 seconds whoopie) so im clinging onto the hope that that may kickstart something because im really not coping well with this!

Id like to hear from anyone although im not at a computer 24/7 i will get back to anyone.
Do you have alopecia?
Alopecia areata
Are you age 18 or older?
Yes - I am 18 or older

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Shane Beard's Blog

Intense head itching

Posted on December 23, 2014 at 3:30am 35 Comments

My hair has been back two years and have never forgotten how awful it was living with alopecia.

Which is why I'm worrying because all of a sudden I'm getting an intensely itchy scalp followed by a bald patch.

I can handle the odd bald patch but is this the start of another awful period in my life?

It does come back sometimes!

Posted on February 18, 2013 at 7:12pm 1 Comment

Hey everyone, just dropping in to let everyone know that my hair did come back. Not perfectly, but beggars cant be choosers hey! Took 2 years though and still haven't got my facial back

The 24 month update

Posted on February 5, 2011 at 9:51pm 7 Comments

Well its been almost 2 years since i spotted my first patch (on my beard), still havent come to terms with it, still wearing a hat everyday, still staying indoors as much as possible, and still praying someone will find a cure for this awfull disease.



i have had some regrowth over the last 6 months but still getting new patches, although i do have more hair than i did 6 months ago. i know cos ive took 100s of photos and im constantly comparing them!



i feel like ive wasted… Continue

Every Cloud

Posted on July 13, 2010 at 2:41pm 1 Comment

I hate Alopecia, every single thing about it.........................apart from it helped me meet a fantastic lady, who hopefully will become a great friend. Bald, beautifull and crazy!

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At 2:50pm on July 1, 2010, Robbi said…
Yes, the joys of the unpredictability of alopecia! lol
At 2:24pm on July 1, 2010, Robbi said…
Hi, Shane, thanks for the friend request! I like your comparison of alopecia's effects to the world atlas! Very true & I think it's important to be able to laugh sometimes through this condition. Take care~
At 5:50pm on September 18, 2009, Robert said…
Hi Shane

That's good to know that you can get the PUVA treatment on the NHS. I'm going to see the NHS derm on Monday so I'm hoping that he prescribes something more effective than a very mild steroid cream this time.

Keep us update of your progress - good luck!!!
At 11:10am on September 7, 2009, Robert said…
Hi Steve

How is the PUVA treatment working out for you? Did you get it through the NHS dermatologist?
At 1:49am on September 2, 2009, Cheryl, Co-founder said…
Hi Shane, I wanted to welcome you to Alopecia World. I can honestly say that we are a great community here and I hope you enjoy the time you spend with us.

Cheryl
co-founder
At 1:09am on August 31, 2009, JeffreySF said…
Hi Shane,

Welcome to Alopecia World.

Jeffrey
At 2:08pm on August 29, 2009, Tracy and Amanda said…
Hi Shane,
How are you?
Tracy
 
 
 

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