Kandy15
  • Female
  • Fort Walton Beach, FL
  • United States
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Kandy15 commented on Celia UK's group Frontal Fibrosing Alopecia
"Hello Lovely Ladies, I have been ordering my facial cleanser, day cream, night cream, body lotions, etc. from a website called Be Green.  Once I became aware of the EWG app I started looking up safe products and everything from Be Green is…"
Jul 2
Kandy15 commented on Celia UK's group Frontal Fibrosing Alopecia
"Yes, this site has been quiet so, even though I look every day, I usually don't post.  Facebook has probably taken most posters or maybe we are just resigned to our fate with this stupid FFA.  Not much anyone can say to make us feel…"
Jun 28
Kandy15 commented on Celia UK's group Frontal Fibrosing Alopecia
"Good job Minter! It seems that we are forever trying to figure out ideas of how to help ourselves regarding this stupid disease.  From the research that I have done and the ideas that I have read on this site, I am more informed than the…"
May 16
Kandy15 replied to Irisheyes's discussion Finesteride, Cellcept results? in the group Frontal Fibrosing Alopecia
"My dermatologist put me on 5 mg in January but I seemed to have an allergic reaction to it so I stopped taking it.  When I went to see her about 4 weeks ago I discussed that with her and she told me to break the pills in half because I really…"
Apr 30
Kandy15 commented on Celia UK's group Frontal Fibrosing Alopecia
"Hi Ladies, I totally relate to the feelings about having hair colored, cut and styled.  I haven't been since the beginning of January and am in desperate need of the works.  I absolutely HATE going anymore because I feel like I'm…"
Apr 29
Kandy15 commented on Celia UK's group Frontal Fibrosing Alopecia
"Bloomingdalekid, I so appreciate your positive attitude and how bonded hair had such a good impact on your life.  I am trying very hard to get to the acceptance stage of this disease and what is to come.  It's hard as you well know…"
Apr 17
Kandy15 commented on Celia UK's group Frontal Fibrosing Alopecia
"Hi everyone, I can relate 100% to the feelings of sadness and despair that has been written here.  This morning I am angry!  I vented to myself in the car all the way to work.  I simply DO NOT understand how I ended up with this…"
Apr 17
Kandy15 commented on Celia UK's group Frontal Fibrosing Alopecia
"I have noticed over the past few weeks that I have a few spots on my legs and arms that are little patches of what looks like ringworm. My sister has psoriasis so I asked if this is how it started for her.  She said no but that she gets those…"
Apr 15
Kandy15 commented on Celia UK's group Frontal Fibrosing Alopecia
"Minter, I am so sorry to hear that.  This is the most distressing condition.  I find myself thinking that if I wake up and my hair is mostly gone, then I would be forced to move forward towards getting bonded hair.  I keep trying so…"
Apr 12
Kandy15 commented on Celia UK's group Frontal Fibrosing Alopecia
"Toby, Thanks for the vital information about the treatment plan that your dermatologist has been doing for you.  St. Augustine is 6 hours away from me so I wouldn't be able to make that trip as often as would be necessary.  My…"
Apr 4
Kandy15 commented on Celia UK's group Frontal Fibrosing Alopecia
"Louise, Thank you for validating my feelings,  I know that so many of us feel the same way. Many days I feel as if there is a rock tied around my heart. The only way for me to really sleep is to take sleeping pills too. I use 1/2 of a Unisom…"
Apr 3
Kandy15 commented on Celia UK's group Frontal Fibrosing Alopecia
"Thank you Afraid and Minter for your caring concern. I definitely have up and down days with this condition.  It seems that the weekends are the worst times for me.  On those days I don't fix my hair all up like I would to go to work…"
Mar 25
Kandy15 commented on Celia UK's group Frontal Fibrosing Alopecia
"I am feeling quite anxious again today.  I've had to try to hold tears back because I'm feeling so down.  I've been taking hydroxychloroquine for 3 months now and continue with the clobetasol and I don't see any signs…"
Mar 23
Kandy15 commented on Celia UK's group Frontal Fibrosing Alopecia
"My left eyebrow is missing just on the outer third of it.  Both eyebrows are sparse but still there enough that I have a brow box and darken them to look like I have something.  Thinking microblading may be in my future. My eyelashes are…"
Mar 20
Kandy15 replied to spoilmygurl's discussion Thinking FFA might be my new normal in the group Frontal Fibrosing Alopecia
"Spoilmygurl, Have you had a chance to read through the comment section of this site?  When I first found this forum I went all the way back to the beginning of when it was first started and read for days.  I could see myself and my…"
Mar 14
Kandy15 replied to spoilmygurl's discussion Thinking FFA might be my new normal in the group Frontal Fibrosing Alopecia
"I am so sorry that you have been through such a terrible time over the last several months.  I'm glad that you have found this forum. I have found a lot of support and ideas from all of the brave ladies who share their hearts with what…"
Mar 14

Profile Information

Relationship Status:
Single
About Me:
I am a 61 year old women diagnosed with lichen planopilaris abd frontal fibrosing alopecia.
Do you have alopecia?
Scarring alopecia
Are you age 18 or older?
Yes - I am 18 or older

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At 9:28am on February 2, 2019, Joyce said…

Good Day,

How is everything with you, I picked interest on you after going through
your short profile and deemed it necessary to write you immediately. I have
something very vital to disclose to you, but I found it difficult to express
myself here, since it's a public site.Could you please get back to me on:
(mrsstellaabudheir200@gmail.com ) for the full details.

Have a nice day

Thanks God bless.

Stella.

 
 
 

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