It's Hair Loss Support At Its Best
March 1, 2019 marked my 1 year Tofacitinib.
Either Xeljanz and or Generic Tofacinix from Beacon Pharma in Bangladesh.
Started on 10mg per day and bumped up to 15 mg per day in August of 2018.
I saw my doc at Columbia University in NYC on my 1 year mark.
He drew my labs and everything came back great!
I've currently been on 3 pills per day of Tofacinix (approx 15mg per day with probable slight dosage variation due to it being a generic)
My doc has me starting to wean off the meds, here is his plan for me:
I went down to 2 pills per day (10 mg per day) starting March 1,2019
After 3 months, if no shedding, no patches, he wants me to go down to 1 pill per day.
After 3 months, if no shedding, no patches, he wants me to try to go off completely.
Update on Pfizer Xeljanz co-pay coupon. The Co-Pay coupon is now 3 months FREE
You can use it once per year. It wasn't free for me last year, but it is now!
I called in and activated the coupon with Pfizer and next day walked out of the pharmacy in NYC with 180 free pills of Xeljanz. So I will be on the name brand for 3 months and then will switch back to my stockpile of Beacon generic.
No side effects. Current pics below. Last time I buzzed was Dec 16, 2018
Also a baseline pic from March 1, 2018
Thanks for all of your support guys and wishing everyone here healing in whatever way it comes.
Love of love,
Thank you so much for the update and for taking the time to post your progress. We want to start our 16 yo on xeljanz, but the cost is prohibitive. We are trying to get it from Beacon. Do you still feel that ordering from them is safe? Are you having any issues with shipping? Which company do you use? Thank you!
Beacon is great and quality is excellent. Some people have been recently reporting having a bit of a lag in communications response time with them. I suspect they are very busy due to have such a nice generic and USA not offering it yet.
Are you in the states? If so EMS is the shipper to use with no customs clearance issues.
Yes. In fact we just saw a doctor in New York on Thursday. She was the first to offer us some hope. Now, we need to get xeljanz ASAP!
Ok amazing. Did they give you the copay coupon?
Its 3 months free.
Message me for any questions!!
hello nicole I would be you I did not stop rest 10mg as long as your health is good with the drug you all recover I do not want your hair falls again.
I think I have the solution for the hair to stay as soon as I have 100% of my hair I stop xeljanz, and I redo a course of interleukin 2 it seems that it puts the immune system back in order. I have already done in clinical trials hundreds of hair never fell in 1 years that I finished the cure but I had little results but the hair never fell.It will take at least 2 years for I test my theory. I'll let you know
Thank you Kevin. I may message you. Keep me posted.
kevin did you ever find out if you were on the placebo dose of interleukin 2 or on the actual drug?
kevin avez-vous déjà découvert si vous preniez la dose placebo d'interleukine 2 ou le médicament en question?
Tried the co pay card last November at CVS in Los Angeles they faxed it to their specialty pharmacy and after 1 month of at least 10 phones calls gave up they refused to give it to me and said they never heard of it before.Even though I used the card at CVS about 3years ago with no problem.
My doc works with a funny little pharmacy they have partnered with to use the copay coupon.
maybe ask your doc?
and this year its free. last year it was like $300
Really appreciate the update and congrats on the amazing progress! You've been a huge inspiration and resource to people like myself who only discovered treatment options like tofacitinib from this site. I would have also had no clue on obtaining the generic version from overseas without your help. :)))
I've been on 10 mg for about 6 weeks now, tempted to bump it up to 15 mg like you did since I'm on the Beacon generics. I might stay on 10 mg for 3 months and see what happens. thoughts?
Question for you, how often did you get your bloodwork checked by the doctor?
To sorry for the Delayed response here.
As far as upping the dosage, my doctor likes to wait until about five months to increase from 10 mg to 15. But that being said we know that the Beacon might be a slightly less dosage than the name brand so even if you bumped to 3pills it still might be closer to 13 mg per day.
As for blood work,my doctor looked at it when I started ( I had a recent labs to show him because I have been trying to figure out what was wrong with me) to make sure I was healthy to start the meds and then he didn’t look at my blood again for a year and everything was fine.
So in short, Columbia does the bloodwork annually.
That’s awesome!!! So happy for you!!!