It's Hair Loss Support At Its Best
I recently saw an ad for a local trial for the two jak inhibitors listed in the topic. These are not xeljanz or jakafi, they are selectively jak3 and jak 1 inhibitors respectively.
My son is not eligible as he's too young and hasn't had the condition long enough, but it is very promising to see new development on new drugs happening!
Yes, I saw that too and it is being done in the Palm Springs area of California where I live. I went to meet the medical personal were is was being conducted and plan to stay in touch with them,
sort of related, but how did you do on the trial for Tralokinumab last year? last report showed you felt it was starting to work for you
Month 6 update - the study got extended! The link above has been updated with the new duration. I thought it was a 6 month extension but the link says it could go up to a year. This is great. I finished 6 months and then had a month off the drug. After the month off, they re-randomize within the track you were originally in (either JAK1 or JAK3).
In the month that I had off, hair growth continued but the eczema came back within a week of stopping the drug. I asked the doctors if others saw the same with regard to hair growth and they mentioned that some people continued growing and others stopped growing but nobody they saw seemed to have noticeable hair loss in that period. B
So I am back on either drug or placebo now, and in another two weeks, I’ll go back for a check up. Those who got placebo and have more than 50% hair loss will receive drug. Those who are on drug will continue. If I’m on placebo, it is likely that I will get drug when I go back.
In in terms of growth - I’m at full eyelashes on both eyes and lashes beginning to fill in on the lower lid. Eyebrows continue to fill in, but still very light (they were pretty light back when I had hair...). Arm and leg hair are now noticeable. The patch on the back of my head has filled in some more and I’ve buzzed it twice now, it has grown back to about an inch and a half long and covers about 1/4 to 1/3 of the back on my head. The fuzz on my head is now real pigmented hair, it’s pretty diffuse but it’s dark brown and the longest hairs are about 3/4” long.
Still no no sign of any side effects.
Anyone else in this study?
thanks for the update and for subjecting yourself to the trial
Thanks for sharing the update! That's great that the study got extended. I'm not in in a study but have been taking Xeljanz for 2 years. It's grown back most of my hair but does not seem to help with my severe eczema. Would be great to find a drug that works for both alopecia and eczema!
That’s great that Xeljanz is working for you! For whatever I am on, I would take it for the eczema alone, it is like a miracle. I don’t think they are testing it for eczema in my study but I make sure to mention it every time I visit so that they capture it and hopefully use it for that also, if it gets approved.
Hey Bekind; how did your january checkup go? growth still progressing?