Alopecia World
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Anthéa
hello,
it's already difficult to find words to explain what i feel face to the alopecia of anthéa but IN ENGLISH, wouuuh!!
so anthéa began to lose her hairs two years ago. she never had lots of hairs and it was very curly (her dad is from ivory coast). at the beginning, her doctor thought it could be due to the separation of their parents. but she continued to lose her hairs, and her eye brows and eyelashes, but little by little. since, october 2007, she's bald (i hate this word and in french, even more? i never use it). when she was younger, she had eczema and allergies.
today, it's better. but she is often "enrhumée" (nose).
the doctors in Paris, in the hospital for children, have tried different treatments but there is no change. anthéa has a different treatment every six months. for the moment, she has two creams, one of this cream is Protopic, as miranda was talking about.
this is the medical side.
from the psychological side ( is " psychological " an english word?? lol), i'm scared. anthéa often asks me when her hairs grow up, and i can't anwer! she has a strong personnality so i think she could defend (?) herself if she'll meet stupid people. at school, the other kids know she has no hairs. but, in september, she will go to the elementary school and there will be many other kids who won't know. my son, alexis, 11 years old, won't be in this school anymore and couldn't protect her. however, as i said, she's really strong!
last thing for tonight: when she 's outside the house, she wears something to hide her head. she doesn't want people to see her without her hairs.
byee
it's already difficult to find words to explain what i feel face to the alopecia of anthéa but IN ENGLISH, wouuuh!!
so anthéa began to lose her hairs two years ago. she never had lots of hairs and it was very curly (her dad is from ivory coast). at the beginning, her doctor thought it could be due to the separation of their parents. but she continued to lose her hairs, and her eye brows and eyelashes, but little by little. since, october 2007, she's bald (i hate this word and in french, even more? i never use it). when she was younger, she had eczema and allergies.
today, it's better. but she is often "enrhumée" (nose).
the doctors in Paris, in the hospital for children, have tried different treatments but there is no change. anthéa has a different treatment every six months. for the moment, she has two creams, one of this cream is Protopic, as miranda was talking about.
this is the medical side.
from the psychological side ( is " psychological " an english word?? lol), i'm scared. anthéa often asks me when her hairs grow up, and i can't anwer! she has a strong personnality so i think she could defend (?) herself if she'll meet stupid people. at school, the other kids know she has no hairs. but, in september, she will go to the elementary school and there will be many other kids who won't know. my son, alexis, 11 years old, won't be in this school anymore and couldn't protect her. however, as i said, she's really strong!
last thing for tonight: when she 's outside the house, she wears something to hide her head. she doesn't want people to see her without her hairs.
byee
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Comment by Di on March 30, 2008 at 7:21am
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Hello Isabelle Your English is great! And Anthea is beautiful like my bald twelve year old, she also had curly long hair not very thick but curly long and beautiful, and now none anywhere! she had eczema also we had a course of quaterzone medication and her hair grew back but only on the very top then once she stopped the medication it fell out again her hair loss was very rapid, she wears a wig to school her friends are terrific but she also is afraid of the whole school knowing about her condition I am working on how we go about that with her teacher at the moment, now she is in secondary school. Be strong I know it's not easy but hope is what keeps our spirits up. take care Di x
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Comment by Veronique on January 16, 2010 at 10:15pm -
Ton histoire me touche. Je pense qu'en effet ce sera difficile pour ta fille et que tu dois la préparer à faire face à toute sorte de personnes, des bonnes comme des moins bonnes, mais que tout ce qu'elle entend (si les gens la blesse) n'a rien à voir avec ce qu'elle vaut. Tout les enfants différents risquent d'attirer l'attention, mais si elle croit en elle et qu'elle sait montrer aux autres ce qu'elle vaut, ils risquent de la respecter. Il y avait un petit garçon comme ça à mon école où je travaille, il était en 2e année et les enfants n'en faisait vraiment pas de cas. Parfois on imagine les enfants vraiment méchants, mais ils ne le sont tous et pas tout le temps. Le mieux est de la préparer à d'éventuels possibilités et de parler avec elle de comment elle se sent et de l'écouter et l'encourager. Laisse moi savoir comment a été sa première année d'école puisque je vois que ce message date de 2010!
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Comment by Isabelle and Anthéa on January 17, 2010 at 3:42am -
cela faisait bien longtemps que je n'étais pas venue sur le site...
alors en fait, plus d'inquiétude qu'autre chose. Anthéa est allée dans la classe de mon amie instit qui a veillé à ce qu'aucun gamin n'embete Anthéa
en ce qui concerne les gamins des autres classes et bien là aussi j'ai vu l'évolution d'Anthéa par rapport aux réactions.
l'annnée dernière, quand un gamin lui enlevait son bandana, elle pleurait
cette année, c'est différent:
"tu sais maman, bin y en a un qui a enlevé mon bandana et bien je n'ai pas pleuré et puis tu sais les autres enfants, bah ils n'ont pas rigolé non plus"
ce qui est bien c'est qu'elle a un caractère très fort et elle est très joyeuse comme petite fille; elle a beaucoup d'amies et d'après ce qu'on m'a dit, elle les "protège"
voilà les dernières news ^^
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