Where acceptance is all there is!
Recently, I found myself wondering something. When did I stop thinking about my alopecia?
When I first lost my hair, it was impossible not to think about it. I thought about it all the time. Whenever I washed or brushed the strands I had left, when I stared back at the bald reflection in the mirror that I no longer…
Added by Cheryl, Co-founder on March 9, 2026 at 6:00pm — 4 Comments
I wanted to take a moment and simply check in with everyone.
Life moves fast, and sometimes it’s easy for conversations here to get quiet — but the experiences we’re carrying don’t disappear just because a forum slows down. So if you’re comfortable sharing, I’d love to hear from you:
What’s one thing you wish the alopecia community talked about more openly?
There’s no right answer and no pressure. Just a space to be honest — whether it’s a…
ContinueAdded by Cheryl, Co-founder on November 14, 2025 at 10:12pm — 6 Comments
The "Call to Adventure" in the world of alopecia is undeniably daunting, but it is also a call to self-discovery, resilience, and personal growth. It's a journey that no one chooses, but it can be transformed into a path of empowerment and acceptance. As you navigate the challenges, emotions, and uncertainties that come with living with alopecia, I leave you…
Added by Cheryl, Co-founder on October 3, 2023 at 6:42pm — 1 Comment
Hey there, fellow members of Alopecia World. Today, let's talk about the importance of our community and what it means to us.
Living with alopecia can be incredibly isolating and challenging. But by joining Alopecia World, we have found a place where we can share our experiences, struggles, and victories with others who truly…
ContinueAdded by Cheryl, Co-founder on March 12, 2023 at 4:30pm — 3 Comments
Added by Cheryl, Co-founder on August 6, 2022 at 9:45am — No Comments
Hi everyone,
I am new to this site as off yesterday but not new to alopecia unfortunately. I am a 24 years old male, currently living in the highlands of Scotland and I have had alopecia for roughly 6 years now. At first my alopecia started off as AA and then slowly developed over to AT where it currently still sits. I have had patches off slight regrowth but nothing major. Currently I have lost about 90% off my scalp hair, 50% off my eyelashes and my eyebrows are roughly…
ContinueAdded by Steve on August 10, 2015 at 3:30pm — 2 Comments
Recently, a mother whose beautiful young daughter has alopecia said to me, "I always tell my daughter that you are her twin. I tell her when she grows up, she's going to look like you."
The emotions that statement elicited in me were very strong: I was honored and extremely humbled.
Our reach as alopecians is far beyond us. We may be just living our lives and, at the same time, encouraging a neighbor, a person on our morning commute, or perhaps someone we least…
ContinueAdded by Cheryl, Co-founder on July 31, 2014 at 12:00pm — 10 Comments
Anyways long story short AU since 96. So I've been through a whole lot. I found myself to be a strong person and AU has never really stopped me, the people I've met here tells me they wish they had my spirit.
Feel free to message me I do check this quite often.
Remember you are not alone!
Added by Nammer on July 16, 2014 at 12:00am — No Comments
Hello Alopecia World!
I'm a new mommy (two babies under 2 years old!) and I started losing my hair shortly after a minor car accident while I was pregnant with my son. I gave birth to my daughter last summer and experienced about 90% hair loss following delivery. I'm curious if there are any other moms out there that have had this happen to them? Or anyone that struggles with alopecia and wants to share...
I started writing on wordpress:…
ContinueAdded by alopeciamami on November 18, 2013 at 1:02pm — No Comments
September 3, 2010... this was the year that I took the first steps to liberation. Liberation from myself, liberation from disease and liberation from society's perceptions of what I should look like and how I should be. This date was the day that I shaved my head. 3 years ago I did the one thing that I never thought I would have the courage to do. I picked up a pair of clippers and shaved what remained of my hair. Alopecia Universalis had taken most of it and I finished the task. Its…
ContinueAdded by Bald and Fabulous AKA Terri on September 2, 2013 at 8:30pm — 2 Comments
i know no one with alopecia nd would like to meet some ppl
i stood talking to alot of ppl i thought were
my friends i got very depressed when my hair started to fall
out nd after a while those ppl who o thought
were my friends stopped wanting to hang
around me cause i was going bald
how immature was that smh some days im feeling high nd some
im very low...i just want to meet a few ppl that know what im dealing
with
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AW: For…
ContinueIs there someone in your life that has loved you and accepted you even though you were bald from Alopecia? If so, nominate that person as a Women Behaving Baldly Hairy Hero! Visit us here to submit your nomination.
Added by Laura Hudson on March 20, 2012 at 9:00pm — No Comments
Driving home tonight from work, something struck me. For the first time since I was first diagnosed with alopecia at the tender age of 8(28 years ago) I can actually feel the emotional scars fading. No longer do I feel restricted or ashamed of having alopecia. Yes the scars will always remain but fading they are. From all the years that I hid having alopecia, from the shame and embarrassment I felt, the lack of feeling "normal" or even "beautiful" and feeling totally alone. Of doing the…
ContinueAdded by Bald and Fabulous AKA Terri on February 19, 2012 at 8:00pm — No Comments
I am asking any of you who have decided to give speeches to schools or classes...what questions usually come up? What information do you include in your presentations? I am thinking of doing this, as an alopecian since 1963 and as a teacher now...I think I can help.
Added by Tallgirl on December 28, 2011 at 6:00pm — 3 Comments
I just wanted to start off by saying I wish everyone a very Merry Christmas.
Looking back on the year pass, I amaze myself by how genuinely happy I have been. Yes I still have bad days but dont we all? And yes I still have hair memories. But how can you not when you see commercial after commercial with hair flipping all over the place. We definitely need to see some fabulous bald ladies in commercials. But during those moments I just rub my smooth head and I feel better.…
ContinueAdded by Bald and Fabulous AKA Terri on December 19, 2011 at 9:20pm — No Comments
Added by Bald and Fabulous AKA Terri on September 8, 2011 at 8:00pm — 11 Comments
Added by Diana Carter on July 2, 2011 at 1:35pm — 8 Comments
Added by Kylie Bamberger on May 27, 2011 at 9:00pm — 5 Comments
Added by Elizabeth on November 18, 2010 at 8:00pm — No Comments
Added by Diana Carter on November 14, 2010 at 12:03am — 8 Comments
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