Featured Blog Posts (3,211)

New member

Hello everyone, I just wanted to introduce myself. I am very happy I found this group so I have people to talk to who actually knows what it is like to talk to people with alopecia and the way it effects you mentally and physically. Lots of beautiful people on the sight and I look forward to meeting everyone.

Added by Ken Johnson on September 10, 2013 at 10:27am — 6 Comments

This mom needs direction

Hello everyone. Amazing people on an extraordinary site! Wow is all I can for each and everyone's journey.



My daughter is 20 and comes from a family farm, A premed student at private Christian college in Nebraska, she is on an Academic Scholarship, she runs, loves her horses and riding, her family is her rock, her boyfriend attends the same college is on a track scholarship ( he looks like he belongs on an Abercocmbie and Fitch poster and he is just a darling and is also studying… Continue

Added by Candace on September 10, 2013 at 10:07am — 5 Comments

At what point did you decide to shave your head?

I have had AA for 2 months now. I have lost a lot of hair but by the grace of God he gave me a head full so it still looks like I have a ton of hair. I can cover my spots with my remaining hair but I have to zig zag my part and hair spray it like a helmet so the wind doesn't blow it to reveal my spots. The spots on top are coin size so "it isn't that bad" but I hate fixing my hair. It is torture. I do have a spot as big as my palm in the very back...and growing but that is covered. So do I…

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Added by Mindy on September 9, 2013 at 3:32pm — 13 Comments

3:33 am

I have to be up for work at 9:30, yet here I am wide awake at 3:33am. Too much on my mind to sleep. I feel there is no one I can honestly talk to that can truly understand. I've looked thru the forums on this website, looking for something that seemed familiar... but came out empty handed. I tried starting my own topic, but 3 days later it has had views but no responses. Perhaps I am being too impatient, but when there seems to be no support on a website that is meant to offer support, one…

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Added by Matt on September 7, 2013 at 4:51am — 3 Comments

Having alopecia

When I think of the word Alopecia, I feel an intense feeling of loss. It’s more than a loss of hair; it’s a loss of self-worth. The discouragement it brings takes every breath of courage and suffocates it. I wanted to write about this disease so people will grasp the severity of what’s happening to over 5 million people in this world.

I started losing patches of hair when I was six. At this time I lived in a different country, Wales. I remember the kids teasing me, saying that a dog had…

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Added by Emily on September 6, 2013 at 8:30am — 6 Comments

The ugliest doll in the shop

Today at my blog, I wrote all about the Cabbage Patch Kid I got as a child and how, 30 years later, it's helped me to come to terms with my Alopecia.

http://theycallmemummy.com/2013/09/05/the-ugliest-doll-in-the-shop/

I'd be so thrilled if it helped someone to read this.

With love!
Michelle

Added by Michelle L on September 6, 2013 at 5:30am — 2 Comments

Vitamins and diseases

I have wondered if a study has been done into what conditions Alopecia sufferers develop in later life, as Alopecia may be an early indication of something going awry. And how many Alopecia sufferers take vitamin and mineral supplements? I have been taking zinc, chromium and Vit D for a few years. I have just discontinued these but it is too early to see if it improves things. I know accumulation of certain vitamins and minerals can be toxic.

Added by Sweet Pea on September 6, 2013 at 4:30am — No Comments

News! Alopecia evolution

Hi everyone! hope this blog find you all ok, maybe confuse or a litlte bit frustrated but ok...! I'm writing, because i've some good news that I want toshare with you... I was diagnosed with alopecia on May, by June i shaved my head, by end of July my lost was about 70%, i lost some parts of my eyebrows and the grow was instable on my pubic area. I decided not to do the corticoinjecions, i decided not to continue with the quimical medication. I began acupuncture, meditation, yoga and began…

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Added by Catia on September 5, 2013 at 12:30pm — 2 Comments

Back-to-school list for alopecians

Small mirror in a case for the purse or backpack

Sharpener for eyebrow pencils and liner pencils

Eyebrow pencil and/or brow powder (get demo at fine cosmetics counter)

Eye liner

Wig salon appointment to try on styles, see colors indoors and in sunlight with hand-mirror, find wig with ear-tabs that work with glasses

Hat store trip to try on styles (bring favorite outfit and coat to match)

Make-up appointment at mall or home party to see how to enhance…

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Added by Tallgirl on September 3, 2013 at 9:00pm — No Comments

Rogaine, clobetasol, plaquenil or steroid injections?

Okay so after reading a vast amount of your blogs I have come to a conclusion. It seems there is no simple answer as to what works best for people suffering with FFA. I started using Rogaine back in February 2013. This was before my doctor started treating me for FFA. Once I had seen my doctor she put me on Clobetasol cream. I know Rogaine take about 5 to 6 months too see any results. I just noticed a few days ago that I started getting very small hairs growing mostly on the sides of my…

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Added by LittleRhody on September 3, 2013 at 8:00pm — 25 Comments

Celebrating three years of liberation

September 3, 2010... this was the year that I took the first steps to liberation. Liberation from myself, liberation from disease and liberation from society's perceptions of what I should look like and how I should be. This date was the day that I shaved my head. 3 years ago I did the one thing that I never thought I would have the courage to do. I picked up a pair of clippers and shaved what remained of my hair. Alopecia Universalis had taken most of it and I finished the task. Its…

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Added by Bald and Fabulous AKA Terri on September 2, 2013 at 8:30pm — 2 Comments

One of my brother's football coaches!

Ok so exactly a week ago me, my sister, my mom, my dad and one of my sisters friends went to bring my brothers football team some Peanut Butter Bars that we made. While we were there one of the coaches asked my brother does your sister have Alopecia? Of course my brother said Yes the coach then continued that's what I though because she looks to healthy to be on Chemo I though it was pretty cool and thought you guys would like to here about it.

Embrace it:

<3/Jessica…

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Added by Jessica Hoschouer on September 2, 2013 at 1:00pm — No Comments

It gets better

I would like to share my story with some readers who might have just recently received a diagnosis of alopecia. This spring I noticed to my horror that I had several bald patches in the front of my scalp. I couldn`t believe it - I actually went and checked it out in several mirrors of my house. I went to work with about a can of hairspray on my head to glue the strands in place and cover the spot.

Over the course of a few days the spots grew bigger and joined up so I was looking at a…

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Added by Second time on September 2, 2013 at 9:00am — No Comments

I am not alone!

I was so excited to find out that the guy I go to school with but don't even know has Alopecia I am so excited to know that I am not the only one who has Alopecia and is going to a new school. Ok so here is what I know about him... His name is Alec, he has Alopecia and he is on the same bus as one of my best friends Emily or Jane Ere as she goes by here on alopecia world. I am so excited to talk to him about it, that is if I can get up enough nerve to do it.

Added by Jessica Hoschouer on September 1, 2013 at 7:00pm — 4 Comments

To do treatment or not?

Okay I just joined this website a couple of days ago. I have seen so many positive and inspiring stories. This is just what I needed. However I have been reading as many of your blogs as I can. It seems that everyone has been given different treatments from their doctors. Some a topical steroid, injections and oral medication. It seems positive. However it seems like the success rate is very small.

My question is do I take steps to proceed further and try to stop what is going on with…

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Added by LittleRhody on September 1, 2013 at 5:30pm — 15 Comments

Frontal fibrosing alopecia

Hi I am brand new to this site. I joined because I was looking for people I can relate to. I recently found out that my doctor thinks I have Frontal Fibrosing Alopecia. I have had so many test in the past four years. That is when I started to notice my hair loss.

The first time I noticed a slight bald patch was after a hair cut appointment. I thought my hairdresser had maybe put the blow dryer on a little too hot. I did not go back to get my hair done for one whole year. The hair…

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Added by LittleRhody on August 31, 2013 at 10:00am — 6 Comments

Losing hair from my left side

Hi everyone..
I seem to be having a peculiar problem.I have been losing hair continuously for 8 months now and it is very limp,thin and the scalp can be seen.However i have noticed that it is thinning much more from the left side of the scalp..I have a slanting wide part and it keeps falling from the left side only.Also the hair i feel pain in the roots,like someone is tugging them.
This is bothering me alot.Has anyone else had the problem?

Added by sup on August 29, 2013 at 11:30pm — 3 Comments

September is Alopecia Awareness Month

What special activities do you have planned for Alopecia Awareness Month? Please be sure to list them on Alopecia World's events calendar. We also welcome you to make suggestions and discuss your plans in the comments section below.



Below is information on what the National Alopecia Areata Foundations has planned for the month.

NAAF - Team Up for Alopecia Areata…

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Added by Cheryl, Co-founder on August 29, 2013 at 5:30am — 4 Comments

Dreams We Sew

Some day,

We'll stop looking for the answers,

And maybe,

Wear our hearts out on our sleeves,

But it's hard to make them see, and—

Just look at who are we,

Don't judge us as you please, we aren't weak,

Oh no.

 

And the dreams we sew,

We'll start to move mountains—

The world will be in the know,

And the more we grow—

The more they will see us, and greet us

We'll…

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Added by Amy-Rose on August 29, 2013 at 12:20am — 5 Comments

Alopecia , you don't hear much about it

i never knew what it was till i experienced it myself and still don't know much about it but this website has helped me alot.... but i was wondering is there a month for Alopecia awareness ?? a friend of mine sent me a pic of a ribbion and asked "does this support Alopecia" (it was royal blue) do we have a ribbon

Added by butta on August 28, 2013 at 9:50pm — 1 Comment

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