May 2013 Blog Posts (75)

I have no hair! Now what?

“It’s a wig!” I’m all too happy to tell you this upon our first meeting. I really don’t mind informing you of that whatsoever. I’ve always felt a bit like I’m a made-up, false Hollywood façade. You know the kind of fake building facades that you might find on a Hollywood Studio backlot? Wearing a wig and being complimented on my hair makes me feel like this.

But I’ve jumped way ahead. So, let me back up a bit…

To begin, I was diagnosed with Androgenetic Alopecia nearly 13 years…

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Added by KimH1266 on May 31, 2013 at 12:30pm — No Comments

I am new to Alopecia World, I am here hoping to cope

Too many typos: type on my smartphone...my fingers hurt :(



On May 29, 2013 my doctor confirmed alopecia areata... For the past 3months I began to realized an unusual amount of hair shedding wayyyy to much than your regular day by day hair falling. I will break down in tears while showering, thinking the worse was happening to me I imagine writing a will for my sons, planning my death, and wondering what type of cancer I had. Last month, I decided to take a deeper look at my scalp. I… Continue

Added by Astrids Extras on May 31, 2013 at 2:30am — 8 Comments

I just decided...

It's now... after another dermatologist opinion and tired of this stressing hair loss i decided... Tired of waking up everyday and saw them at my pillow, tired of being afraid of touching my hair, washing it and brushing it, tired of being sad about my bald spots i'll save it! In a few minutes i'll become bald! thanks everyone from all the support, best regards, Cátia

Added by Catia on May 30, 2013 at 10:30am — 22 Comments

Reactions to my alopecia

I'm feeling pretty frustrated right now, so sorry for ranting. I'm just really confused by all of the reactions to my hair loss. My mother is acting like it's the end of the world and keeps telling me how sorry she is, even my dad keeps muttering things like, "it's not fair," and then my friends (the few who know) are acting like I'm a huge, to quote them directly, "drama bomb." I excitedly told my friend that I got a hair piece, and she responded by saying, "Yeah, I know. What's the big…

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Added by Madeline on May 30, 2013 at 12:46am — 44 Comments

Day 1 with squaric acid treatment

Today is day one, May 29th 2013. I am to apply it every night to my head for 2 weeks and then every other night following. I sure hope this works, I would love to have something work! I try to be tuff, keep a stiff upper lip and say I don't care that I have no hair, but I do.... I want to have something....even if it is short I don't mind. I guess time will tell, wish me luck!

Added by Tamera on May 29, 2013 at 9:30pm — 1 Comment

Hope and anger

Hope and a lot of anger are the new emotions that are running through me after I finally ditched the dermatologist I was seeing. He was very dismissive with regards to outside opinions or suggestions. He diagnosed me alopecia areata. He would not take a biopsy of my scalp to rule out any other possibilities. I endured his ignorance for a little over 3 months and with it more steroid injections to my face, neck and scalp than I care to remember. I made an appointment with a new Dr. this past…

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Added by michael on May 29, 2013 at 2:30pm — 3 Comments

First step: getting a short haircut

So that's it: I'll be bald in the future.

I have androgenetic alopecia and after much searching, go to several doctors, do a lot of things to keep the hair on the head I realized that it is not worth having all this psychological (and financial!!) distress just to maintain aesthetics. It may work for others but not for me.

I'm 25, I've always had long hair, but after a time of confrontation with alopecia I decided that the best thing is to adapt to the inevitable! My alopecia is at…

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Added by Carol Martins on May 29, 2013 at 12:37pm — 6 Comments

Question papiers d’identités? -- Questions about Identity Papers

Question à tous et toutes ? je dois refaire mes papiers d'identités dois-je faire une photo avec ou sans ma perruque ?

Added by coccinelle on May 29, 2013 at 11:00am — 2 Comments

Hair negotiations

Lately it seems the hardest part of the day is getting out of bed – not because I don’t want to get up, but because bed is safe. Getting out of bed means a couple of things – 1. It means that I will inevitably look at the pillow and space around my head to see if I have shed any hairs, and 2. It means I will need to get in the shower and go through the more-often-than-not painful process of seeing what falls out post-shower.



I used to be more concerned about the hairs in the bed…

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Added by Jennifer on May 28, 2013 at 6:10pm — 6 Comments

Acceptance and being HAPPY

Hello everyone I'm 19 and i got diagnosed with alopecia about 5 months ago. I've lost about 50% of my hair now.

As it was i was already uncomfortable around people with a full head of hair, i went to therapy for social anxiety about a year ago, the hair loss has not made that much easier.

But lately, I've decided i need to stop feeling sorry for myself. If tears could bring back my hair i would have had a full head of hair a long time ago and then enough to make a wig for everyone…

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Added by Vane on May 28, 2013 at 3:04pm — 4 Comments

Day 20 - LET THERE BE FUZZ!

yessss!! FUZZZ!!!

Haven't been able to see a dermatologist, cause he KEEPS CANCELLING ON ME! UGH!

If you are ever in Newfoundland, do not EVER go to Dermatologist Dr.Tomi, he apparently has a history of cancelling on his patients ALL the time! Other clinics and doctors actually GUESSED his name when I said my doc keeps cancelling! pathetic! Maybe he has a legit reason but still frustrating for his patients...

I am trying to see another one...so hard to book an…

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Added by User306 on May 28, 2013 at 1:38pm — 3 Comments

One year and going strong

A year ago I was diagnosed with alopecia. All at once I lost all of my hair.

Since then, I have had one more episode, and lost the hair around my temples. I have single handedly brought back the "flock of seagulls" doo.

I've learned that it is frustrating not to know when or why I will suddenly loose my hair, but also learned about inner strength and beauty versus outward appearance.

Thanks everyone for sharing your stories and experiences.

H

Added by HilEspi on May 28, 2013 at 12:50pm — No Comments

Shows that you shouldn't watch if you have alopecia

I am having a bit of a problem at the moment. Usually I'm ok with my alopecia, especially since the weather has cooled down and I can wear wigs again without feeling like I'm going to melt away.

But recently, like so many others, I've become addicted to Game of Thrones and The Borgias, two wonderful HBO shows that I think everyone should watch if they like quality drama (and especially if they like pretty costumes and great swordfights).

Everyone, that is, except alopecians. OH…

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Added by Holly on May 28, 2013 at 8:09am — 5 Comments

Just diagnosed and worried

Hi everyone, i'm Catia, i'm 24 years old and i'm from Portugal... first of all it's really nice and confortable to realise that there are many people with this problem and it really help us to understand what we are felling about ourselfs... I'm still not completely acepting that i'm losing my hair and that i can be bald... 2 months ago i found one big spot without hair on my head, i was surprised but not very worried to be honest. I went to see my family doctor, she told me with was a…

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Added by Catia on May 27, 2013 at 3:00pm — 3 Comments

Does anyone have AA that seems to move around?

Does anyone have AA that seems to move around? I lost my hair in the back a year ago, that filled in (mostly), then I lost hair at my temples and behind my ears and on top of head, that is filling in but have lost hair all around it now. Just wondering if anyone else has this same pattern happen and their experiences.

Added by Kara on May 27, 2013 at 11:41am — 3 Comments

Melting eyebrows

I live in Arizona and pencil my eyebrows in. Has anyone found a product that actually lasts and does not melt off. I wear bangs so that I can hide my eyebrows as much as possible. I am noticing that it is making the front of my hair oily. Any suggestions on that also.

Added by sully on May 26, 2013 at 12:30am — 7 Comments

AlopeciaBoy Network is being revamped

My Ken Doll episodes were very cool, and my taking care of our bodies section was very important as well, so i kind of went offline for a year or so when I moved to Calgary, but i think the AlopeciaBoy site should go back up, and I should put all the pages back up!

Added by Nathan Paul Prince on May 25, 2013 at 2:39pm — 1 Comment

Eyelashes and eyebrows for men. Any reccomendations?

Hello everyone. I've been googling for fake eyelashes and eyebrows for men, but i can't find anything, almost everything is for women.
Please recommend and share your experiences with fake eyelashes and eyebrows.

I have AU and already had tried tattoo my eyebrows some years ago, hated it, they looked unnatural, so i'm thinking about a eyebrow wig. Any advice would be welcomed.

Added by Nik4 on May 22, 2013 at 8:36pm — 7 Comments

College interior design alopecia center thesis project

I DID IT. I made the decision. After harping on and on about whether this topic was "too personal", "too emotional", "to close to home" for me to choose it for my Thesis project....I chose it.

A little backstory, I'm going to college for interior design & I've just finished my junior year of college on Monday. Senior year of my school's interior design program is predominantly dedicated to the BIGGEST project of our entire four year bachelors of interior design degree... THESIS.…

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Added by Essence on May 22, 2013 at 5:30pm — 5 Comments

Help to raise awareness

Hi I'm Natalie

I am 25yo old and I have Alopecia Universalis for many years I've had to hide my alopecia, for the reason that not many people are aware of the condition, so I would like to raise awareness about the condition and raise some funds for the Australia Alopecia Areata Foundation AAAF.

I will be participating in the Stadium Stomp without my wig, which i wear every day.

I've registered to participate in Stadium Stomp, Australia's longest consecutive stair climb to…

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Added by Natalie Martin on May 22, 2013 at 4:00pm — 3 Comments

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