kittspin1
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  • Garland, UT
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I feel horrible for my 2 year old

Started this discussion. Last reply by kittspin1 Jan 3. 2 Replies

I'm a mother of 6 wonderful children 2 boys 4 girls! I was born in and grew up in Utah. I have alopecia on my legs but what girl wouldn't want hairless legs! Anyway my youngest has Alopcia…Continue

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I feel horrible for my 2 year old

I'm a mother of 6 wonderful children 2 boys 4 girls! I was born in and grew up in Utah. I have alopecia on my legs but what girl wouldn't want hairless legs! Anyway my youngest has Alopcia Universalias she lost her hair at 18 months and is now 2 years old, she gets a few hair growths from time to time but it never stays, when she was a baby she had hair and she started loosing it i had just barely been able to put a small ponytail on the top of her head, a few months later i noticed her hair…See More
Jan 11
2 Comments
kittspin1 replied to kittspin1's discussion hi
"thank you i will should the time come"
Jan 3
Karen Smith replied to kittspin1's discussion hi
"Hi, My daughter developed this as a teenager and she is doing well in college. She cheered in highschool with it, dates, and has plenty of friends. The love and support that she has at home will help your daughter. There are mom's of young…"
Jan 2
kittspin1 left a comment for Marissa
"Thank you, I do rather think she is adorable myself! She does and says the cutest things hair is nice but doesn't make her and less beautiful then any of my other children! My second youngest is 4 and is a bit behind mentaly but their pretty…"
Dec 30, 2011
Marissa left a comment for kittspin1
"hi, your little girl is absolutely gorgeous!! i lost my hair when i was 4 years old and i can really tell you i don't even remember how it was to have hair. so yes it is definitely a lot easier to lose your hair when you are so young. We hope…"
Dec 30, 2011
kittspin1 posted a discussion

hi

I'm a mother of 6 wonderful children 2 boys 4 girls! I was born in and grew up in Utah. I have alopecia on my legs but what girl wouldn't want hairless legs! Anyway my youngest has Alopcia Universalias she lost her hair at 18 months and is now 2 years old, she gets a few hair growths from time to time but it never stays, when she was a baby she had hair and she started loosing it i had just barely been able to put a small ponytail on the top of her head, a few months later i noticed her hair…See More
Dec 29, 2011
2 Comments
kittspin1 is now a member of Alopecia World
Dec 29, 2011
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I'm a mother of 6 wonderful children 2 boys 4 girls! I was born in and grew up in Utah. I have alopecia on my legs but what girl wouldn't want hairless legs! Anyway my youngest has Alopcia Universalias she lost her hair at 18 months and is now 2 years old, she gets a few hair growths from time to time but it never stays, when she was a baby she had hair and she started loosing it i had just barely been able to put a small ponytail on the top of her head, a few months later i noticed her hair was getting less and less, when i finaly got to the point i figured out that she wasn't growing it back she had 3 eyelashes left while waiting for her doctor to figure out what she had they all fell out, She is a beautiful little girl and i love her very much! I feel horrible for her and glad she is still to young to notice she is different then other little girls. She actually diagnosed a little over a month ago by a dermatologist, she said it was alopecia universalis totalis she has no hair at all anywhere, Well except the little that comes and goes, I'm hoping she grows out of it as they said she might but if she doesn't i hope i can help her accept and make the best of it even though it will be very hard i am sure.
Do you have alopecia?
Parent or guardian of child with alopecia
Are you age 18 or older?
Yes - I am 18 or older

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At 4:33pm on January 5, 2012, LeslieAnn Butler said…

Hello and welcome!
How are you and your daughter today? Hey, I have AU, too.
Leslie Ann

At 4:44am on December 30, 2011, Marissa said…

hi,

your little girl is absolutely gorgeous!! i lost my hair when i was 4 years old and i can really tell you i don't even remember how it was to have hair. so yes it is definitely a lot easier to lose your hair when you are so young.

We hope she out grows it, that would be awesome. but if she doesn't don't despair!!! just remember to love her and support her! remember to teach her the very important lesson: it's not what's on the outside, but the inside that counts. "
If you love yourself and feel happy inside, your looks won't make a difference...the love and happiness will shine through and she will be an inspiration for others!!!

I only wore a wig when I was little and when it was winter, because my mom was scared that I would get cold! I didn't like it very much, and it was itchy!! but let your daughter decide what she is most comfortable with. support her in her decision!!

And unfortunately there will always be some people and other kids who will say or do something hurtful because she does not have hair. In my experience the children mostly teased when they did not understand. Help your daughter to explain her hair loss in her own words when she is a bit older, this will help her a lot. People are mostly afraid of the unknown, but once they understand they will be more considered.

there will be some people that will just keep on staring...i find a smile in their directions works best! :) others will just keep on feeling uncomfortable and they will not know how to behave in your daughter's presence...don't worry too much about them. It is their problem and their own insecurities. Let them be...for every one person not able to except your daughter just as she is...she will have a least 3 friends who love her just a much!!!

I must tell you that in my own life my friends and family have said over the years that they don't even notice the alopecia any more. For laughs I will sometimes ask a friend to lend me her hair brush and as she hands it to me she says, ah no Marissa!!! :)

ps: when she starts going to school, ask to speak to the principle and the teachers. Also explain to them her alopecia. People can say and do strange and hurtful things when they are not informed.

I wish you all of the best!!

Marissa

 
 
 
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