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Ala
- Female
- Chestnut Hill, MA
- United States
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Ala's Groups
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Ala's Page
Latest Activity
kristen & karahgan left a comment for Ala
well for us it's only been 8months since all of this has started, karah started out with a pea size and now it has totally taken over the top of her head and most of the back! it's very hard from time to time, but i try to deal with it! i…
Photos posted by Ala
Cindy and Samantha left a comment for Ala
Hi Ala,
Hopefully you can get the time off and join us, even if you come at 2pm...I maybe moving our meetings to Sun pm's, b/c I have a schedule conflict with Saturday's. But, nothing is definite yet. I did not know you can use latisse…
Ala left a comment for Cindy and Samantha
Hi Cindy,
I love Samantha's new hair. It looks so healthy. She must be really happy.
Maria is doing well, the regrowth is at about 60-70% right now. I'm hopeful, but still scared that she'll relapse. She pretty much has an inch wide…
Cindy and Samantha commented on Ala's photo
Maria is adorble. Where did you get her wig..I love it!!! Keep smiling Maria, you are beautiful!!
Cindy and Samantha left a comment for Ala
Hi Ala, how is your summer going? I hope you get my email about our CAP lunch next month. We would love to meet you. How is your daughter doing? We have a few little girls her age. Cindy
Ala replied to Jessica Lau's discussion 'Lavender & Essential Oils for treatment'
funny thing, i was using jojoba and lavender as well, not the full recipe. The regrowth started in 2 small patches with tiny little hairs that was her natural color. Then slowly the regrowth patches started to expand. The regrowth is much fuller in…
Ala left a comment for Cindy and Samantha
Hi Cindy,
I am very sorry, but we can't make it to the park. It was decided that we stay put here at Tanglewood.
Hope you have a great time.
Ala.
Profile Information
- Relationship Status:
- Married
- About Me:
- My daughter, Maria, who is almost 5, was recently diagnosed with alopecia. It's been extremely hard for a while, but i am dealing with it now. My main goal righ now is to make her as comfortable as i can about her condition.
- Do you have alopecia?
- I do not have alopecia
- Are you age 18 or older?
- Yes - I am 18 or older
Ala's Photos
Comment Wall (22 comments)
- At 1:40pm on July 7, 2010,
lex said… - ur daughter is sooo cute with her hair or not she will still always be that beautiful lil girl that she is
- At 4:17pm on March 6, 2010,
kristen & karahgan said…
- well for us it's only been 8months since all of this has started, karah started out with a pea size and now it has totally taken over the top of her head and most of the back! it's very hard from time to time, but i try to deal with it! i have good days and i have bad! like it's really hard right now bc what is left is going pretty fast and its hard to brush her hair knowing that soon there wont be any to brush! and the fact that she has melt downs from time to time which kill me! we get our wig mid april so we are excited
- At 8:14am on August 15, 2009,
Cindy and Samantha said…
- Hi Ala,
Hopefully you can get the time off and join us, even if you come at 2pm...I maybe moving our meetings to Sun pm's, b/c I have a schedule conflict with Saturday's. But, nothing is definite yet. I did not know you can use latisse for the brows, interesting. We are just continuing with our thing and progress in due time..Sam seems to be getting brows now, but we will see if they stay. in past she gets afew hair that don't say, but this time she has alot more..Cross your fingers!
- At 11:12pm on August 14, 2009,
Kayreyn said…
- Hi Ala,
Your daughter is too cute! She's beautiful. Yes, the sulfasalazine seems to be a safe treatment, and we're hoping that Haylei's hair continues to return. She is monitored closely by her doctor, and he is in full agreement with her treatment, as sulfasalazine is one of the oldest medications. If your daughter can tolerate sulfa based medicine and your willing to see it thru I think it is definitely an option that should be explored. The mother that recommended to us told us to not expect to see anything for at least 6 months, but within a year it should all return (as her daughters did, and she still has all of her hair). We actually are seeing hair starting to return and it hasn't been a full 4 months yet. So we, like you, are both hopeful and prayerful. Let me know if you have any questions, we're here.
- At 6:47pm on August 14, 2009,
Cindy and Samantha said…
- Hi Ala, how is your summer going? I hope you get my email about our CAP lunch next month. We would love to meet you. How is your daughter doing? We have a few little girls her age. Cindy
- At 5:28pm on July 9, 2009,
Cindy and Samantha said…
- Hi Ala, I hope you can make it..Just email if you know ahead of time so I can plan accordingly..But feel free to come on the spare of the moment toWe will resume meeting in Sept in Hopkinton. Cindy
- At 9:14pm on July 7, 2009,
Cindy and Samantha said…
- Hi Ala, how is maria doing? Are you going to be able to make it on the 19th? cindy
- At 8:35am on June 3, 2009,
Cindy and Samantha said…
- Have a great time..Keep july 19th open..I am having a CAP Family Day at a park in Attleboro..Info to come shortly..
- At 7:54pm on June 2, 2009,
Cindy and Samantha said…
- Hi Ala, are you coming on Sunday June 7th to the brunch and fashion event in Chelmsford?
- At 12:36am on April 26, 2009,
Dotty said… - Hi Ala,
How are you? Your daughter is adorable. My name is Dotty and I'm from NH. I wanted welcome you and to let you know that we are planning an "Alopecia beauty day" at a boutique in Chelmsford, MA, on June 7th as our first official awareness event for our newly incorporated non-profit Alopecia company. They are opening the boutique just for us and we can try on clothes, take lots of pics, and just have fun together. I got at least 40 dress up costumes for the kids. They will look so adorable. We are going to do a buffet brunch at the hotel nearby first and then go to the boutique. I hope you can make it. I know it will be great!!! Please let me know so we can do a head count for the restaurant reservations.
Love and Hugs,
Dotty
Latest Activity
Davis McConney-Goode replied to stacey's discussion 'Children with alopecia'
Amanda replied to Brittany's discussion 'Who has similar hair loss...'
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