Sybil
Sybil
  • Female
  • Farmingdale, NY
  • United States
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Sybil's Friends

  • Laura
  • Erika Vincent
  • Sherilyn and Tatum
  • Misty Boggs
  • Andy
  • heidy
  • Alyssa  (barbara-mom)
  • Tracy and Amanda
  • Angela Varnum
  • Brianna and Mary (mother)
  • Lillian (Tracy-mom)
  • Angie, Gracie's mom
  • Jodie Jordan
  • Christine Messner
  • Chandler

Sybil's Discussions

Second opinion

Started this discussion. Last reply by Cindy and Samantha Jun 21, 2009. 1 Reply

LUXIQ

Started this discussion. Last reply by Sybil Jun 11, 2009. 4 Replies

Sunday....

Started this discussion. Last reply by Zoey May 10, 2009. 1 Reply

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Sybil's Page

Latest Activity

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Mary left a comment for Sybil
Welcome to the International Alopecia Day Group! Olivia is darling. Did you see the photos from last year's event (under the NBO name before it was changed by group vote) that I put into a video? There were lots of kids at some events.…
Jul 8, 2010
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Kayla and Sybil are now friends Jun 15, 2010
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Sybil and Laura are now friends Jun 14, 2010
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Sybil updated their profile photo Dec 28, 2009
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Sybil replied to Priya's discussion 'Some people are just RUDE! :('
OMG I am so sorry that happened to you. I wish you had pulled off the wig and said YES it's a wig...you have a problem with that?? It keep my head warm.... You should just let them have it THEN see what they say....morons..
Dec 28, 2009
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Sybil is now friends with Erika Vincent and Sherilyn and Tatum Dec 28, 2009
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Sherilyn and Tatum commented on Sybil's photo
Hi! My name is Tatum and i am 7. You are very cute. I would like to be your friend. I have had Alopecia since I was 2.
Sep 27, 2009
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Photos posted by Sybil Jul 12, 2009
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Sybil and Tracy and Amanda are now friends Jul 12, 2009
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Photos posted by Sybil Jun 28, 2009
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Sybil and Misty Boggs are now friends Jun 28, 2009
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Misty Boggs left a comment for Sybil
My 6 year old daughter Has a spot the size of a quarter in her hair. My spots are getter way bigger. This is a frustrating thing...Olivia is beautiful!
Jun 22, 2009
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Cindy and Samantha replied to Sybil's discussion 'Second opinion'
I don't think I would go back to that doctor. He did not seem to choose his words wisely and I would have left devastated if that was me. Don't be afraid to keep taking your daughter to a different doctor if you feel needed. I took Sam to…
Jun 21, 2009
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Second opinion

Well, we had Miss O at another Dr the other day. He was all about covering it up..I wasn't pleased. I asked him what was the big deal? He said it can ruin her self esteem. I told him I want her to be happy with who she is.He also suggested blood work to rule out thyroid..we mayHe wants us to see the head of dermatology at NYU in the city WHO DOES NOT TAKE INSURANCE...yeah...NOHe said that the group we have been seeing is one of the best...so we will stick with themHe gave us several…See More
A discussion started by Sybil was featured Jun 18, 2009
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Second opinion

Well, we had Miss O at another Dr the other day. He was all about covering it up..I wasn't pleased. I asked him what was the big deal? He said it can ruin her self esteem. I told him I want her to be happy with who she is.He also suggested blood work to rule out thyroid..we mayHe wants us to see the head of dermatology at NYU in the city WHO DOES NOT TAKE INSURANCE...yeah...NOHe said that the group we have been seeing is one of the best...so we will stick with themHe gave us several…See More
Discussion posted by Sybil Jun 18, 2009
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Photos posted by Sybil Jun 17, 2009

Profile Information

Relationship Status:
Married
About Me:
Mom to Olivia who was three May 18th. She was just diagnosed with AA shortly after Easter and we're a bit lost.....but getting better with it. We were using LUXIQ foam but stopped it when it dried out her head. I found out it wasn't approved for children anyway.
I spend a lot of time in Facebook and you can find me under my maiden name...SCHAFFRATH
Do you have alopecia?
Parent or guardian of child with alopecia
Are you age 18 or older?
Yes - I am 18 or older

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Comment Wall (24 comments)

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At 9:24am on June 22, 2009, Misty BoggsMisty Boggs said…
My 6 year old daughter Has a spot the size of a quarter in her hair. My spots are getter way bigger. This is a frustrating thing...Olivia is beautiful!
At 10:31am on June 15, 2009, AndyAndy said…
Hello Sybil we still cant believe what is happing to our daughter! I have ordered some Herbal Preparation from Israel, Which I should today. It has to be applied on her head every day for 3 to 5 month so we will see. Give my love to Olivia.
Andy
At 12:57am on June 14, 2009, AndyAndy said…
Hello Just saw all your pictures Olivia is precious !!!
At 6:17pm on May 22, 2009, Cindy and SamanthaCindy and Samantha said…
Hi Sybil, the mom I was telling you about gave me the name of the doctor, but she said she left disappointed the second time she saw him. He did not remember her daughter for the 2nd visit and left upset. If you want the name I will give it to you. let me know..
At 9:25pm on May 20, 2009, Angela VarnumAngela Varnum said…
Hi Sybil..
First Happy Birthday to your beautiful little Olivia! If you ever need a pick-me-up just let me know and I will be there to listen, talk, laugh or cry. I know it is hard. Stay strong!
Angela
At 5:32pm on May 20, 2009, Cindy and SamanthaCindy and Samantha said…
Hi Sybil..How did your Mother's Day go? I emailed the mom to get the doctor info in Garden City but haven't heard back from her. Did she email you? Her name is Megan and daughter is Paige.
At 10:00pm on May 13, 2009, Angie, Gracie's momAngie, Gracie's mom said…
Happy birthday to Olivia on Monday! She shares Grace's name, but my son Jackson's bday is on 5/17--one year older though. Hope you all have a great day! Angie
At 10:44am on May 9, 2009, BaldGirlsDoLunch.orgBaldGirlsDoLunch.org said…
Hi Sybil -

there is a lot of variety in the shirts. Some have logos on the back and some on the front and a few have both. The"see details" for each item shows you the front and the back of the shirt so you can see which it is.

Sounds like I should post a message about that.

Thea
At 9:58am on May 6, 2009, Christine MessnerChristine Messner said…
I know how you feel..My son Kyler just turned 2 and he was diagnose with AA about 14-15 weeks ago and now he's about 70% hair loss. I wish people wouldn't stare..It REALLY bothers me,I feel over protective of him when we are out and about.
At 9:19pm on May 5, 2009, KarenKaren said…
All parents are a bit lost when it comes this. Amber was diagnosed when she was three too. She is now five so we have been dealing with this for 2 years now. It does get easier but that saying that Amber has grown her back so in the mean time, we are just holding our breaths. I remember that I hated taking her to friend's houses or parties because it would mean that I had to explain to people what this is all about. I avoided it constantly but I knew that I had to expose her to this so that she will be able to cope with it herself especially when growing up.

After months of feeling sorry for myself and her...I ventured out and it was not that bad. We got her hair coverings and wigs and all that and allowed her to do whatever she wanted to do with her hair. Tough I know but it took baby steps for me. I think it is a process that we as parents have to all go through. But I always comfort myself by saying...that I rather take alopecia any day than any other children's illnesses that parents have to go through.
 
 
 
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