darius
  • Male
  • Palos Park, IL
  • United States
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  • Cocopuffz17
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darius's Discussions

Our story so far...

Started this discussion. Last reply by darius Jan 6. 1 Reply

My 12 year old son was diagnosed with Alapecia about 1.5 years ago and has lost maybe 40% on his head, total on arms and legs, most eye lashes and eyebrows. After about 6 months of unsuccessful…Continue

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Latest Activity

darius replied to nzahir's discussion Who is on Litfulo (ritlecitinib) and Should I Take It?
"We managed to get my son (he is now 20) on Litfulo 50mg from Pfizer as first patient in Chicago area and one of the first in US. We had to wait for the insurance to get it setup in their system after it was approved and production started. He has…"
Jan 6
darius replied to darius's discussion Our story so far...
"After a long process to get authorized for a discount program , my son tried Olimiant for about 6 months. Unfortunately it did not work and we managed to get him on Litfulo 50mg from Pfizer as first patient in Chicago area and one of the first in…"
Jan 6
darius is now friends with Tomy Pereira, HairJourney and Cocopuffz17
Jan 6
darius replied to babashanti's discussion Olumiant and what to ask my doctor?
"Thanks for sharing and all great point. Let me add a few details from my notes. Do not have the original article link. But here is some more info…"
Feb 7, 2023
darius replied to Cheryl, Co-founder's discussion OLUMIANT Alopecia Community Watch – The Good, The Bad and The Ugly!
"Correction, the information I had on France and Switzerland is not correct. Just got confirmation that the 2mg 30 day supply in Switzerland is $1,150 and apparently we would need to arrange for an in person doctor visit so add to that the…"
Feb 6, 2023
darius replied to babashanti's discussion Olumiant and what to ask my doctor?
"Hi, I would say find a dermatologist that specialized ion Alopecia. Initially we went to several dermatologists with my son and most had no clue. I did a lot of internet research and started educating myself as to the genetic origins and the…"
Feb 6, 2023
darius replied to Cheryl, Co-founder's discussion OLUMIANT Alopecia Community Watch – The Good, The Bad and The Ugly!
"CVS Specialty pharmacy cost is $2,622 for a 30-day 2mg supply :( I had my family members check and in France its $300 and Switzerland $600. Still checking if its available and cost in Poland and Mexico. "
Feb 3, 2023
darius replied to Cheryl, Co-founder's discussion OLUMIANT Alopecia Community Watch – The Good, The Bad and The Ugly!
"My son 19 was prescribed OLUMIANT 4mg and the insurance Pre Authorization was rejected stating the recommended dosage was 2mg. Now this was just denied stating that "Defused Pattern" was not covered. Anyone aware of any assistance programs…"
Feb 3, 2023
darius replied to NicoleT's discussion Update: 1 year on Tobacitinib!
"Hi, my son is 19 and he was prescribed Olumiant 4mg / day but insurance rejected Pre Authorization stating that FDA guideline is 2mg per day.  "
Feb 3, 2023

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Relationship Status:
Married
Do you have alopecia?
Parent or guardian of child with alopecia
Are you age 18 or older?
Yes - I am 18 or older

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At 8:20pm on February 17, 2015, LeslieAnn Butler said…

Hello and welcome!

How are you and your child today?

 
 
 

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