Hi Toni, I posted some event info on the MASS board. We are having a Family day on July 19th. It is for the kids and their families. sponsored by the childrens alopeica project..Cindy

Hi Toni, if you are ever interested I started CAP meetings in MA. We are having a family day in july at a park in Attleboro..if you are interested in attending feel free to contact me..you can find my info on the childrens alopeica project website..or cindy@childrensalopeicaproject.org..
Cindy

Hi Toni, I wanted to let you know that I am starting CAP meetings next month in Hopkinton. Our first meeting is March 21 1-3pm. There are several children yours son's age coming and I know of a family with a boy who is also in K coming from the south shore. If you go to CAP's website you find some info and email to me for directions. We would love to see you all..Cindy

Hi Toni, I wanted to confirm that you wanted to join us for lunch on the 31st. can you please email me at kweensgurl@aol.com with the number of people planning to attend. I am going to send out an confirmation email once I know the restaurant can accommodate us. We are going to be a big group which is awesome. Thanks Cindy

Toni, I can understand why you don't like Children's. I hope your son can have the results we are seeing with the squaric acid. Don't hesitate to email me if you have any questions about it. Hopefully, you will be able to join us in January. Enjoy the snow!!Cindy

Hi Toni, it is nice to hear from you. Samantha is doing the squaric acid now and started regrowth after about 6 months..Are you still going to Tufts? Sam is going to Children's in Boston and we love her doctor. I am sorry to hear that your son's hair hasn't stayed, but I hope the squaric works for him. You need to hang tight with it and don't let road blocks stop you, just work with them. I am happy to share our experience with you if you'd like. We have had a few road blocks but with the doctors support we have been able to work through it and Sam has been willing to continue and handle it. In March I am planning to start CAP meetings. After the new year I will have a place set. Are you on the CAP mailing? They are having their first kids conference in PA in Aug....I have met a family in S. Weymouth that has a son Toni's age. We are planning to meet up again at some point and you are welcome to join us. Feel free to contact me..

Hi Toni, my name is Cindy and I had wrote on your wall some time back. If you check this board I wanted to let you know that a group of families with kids and adults with Alopecia are getting together for lunch in Boston on Jan 31st. The details are on the Mass board, but your welcome to email me. My daughter is also 6, turning 7 soon...

Hi Toni, I was just reading your post under treatments. I have a 6 yr old daughter and live in Mass too..I can't believe your doing shots. How does your son handle it? I know my daughter would not tolerate it. She is being seen at Children's Hospital and is doing squaric acid. She is now having regrowth, but we have a long way to go. I would love to chat more. Is your son in 1st grade? Cindy

Hi Toni! Thanks so much for your informative response. The kids have their next appointment on 11/3, and I will definetly ask about the cream. It seems that there should be no reason I can't get this prescription for them. It's so frusterating that it was not offered in the first place! Take care & I hope to chat with you again soon!