"Hey Natasha.... I am not sure how often you get on here but I wanted to say hi!! We are also in DSM IA and my daughter has Alopecia. Are you aware there is a really good support group that meets in Johnston. I have been to several of the meetings…"
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Natasha
- Female
- Des Moines, IA
- United States
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Clarissa Ellen Becker French replied to Natasha's discussion the next generation in the group Alopecia Universalis"I am more concerned about the other autoimmune aspects and if I passed on a tendency for all those...baldness is nothing compared to some of those. Does anyone have genetic tendencys for autoimmune diseases? and has Alopecia as a outward symptom?…"
Clarissa Ellen Becker French replied to Natasha's discussion the next generation in the group Alopecia Universalis"I am more concerned about the other autoimmune aspects and if I passed on a tendency for all those...baldness is nothing compared to some of those. Does anyone have genetic tendencys for autoimmune diseases? and has Alopecia as a outward symptom?…"
Royce D Eggleston replied to Natasha's discussion the next generation in the group Alopecia Universalis"My 15 year old biological daughter discovered a bald spot on her head recently and busted up with tears I would be lying if I would say I'm not suffering with feelings of guilt and worry, I thought by now my off springs would be fine. It…"
Jason Olsofka replied to Natasha's discussion the next generation in the group Alopecia Universalis"I am 33 and mu uncle who is 71 now had au from 3-5 and his hair grew back and he still has some.I have had AU for 12 years and I have 3 kids 13/9 and 6 and they are all fine.My hair hasnt grown back and I have long accepted that it will not but I do…"
Profile Information
- Relationship Status:
- In a Relationship
- About Me:
- Hey..my name is Natasha and I have AU(Alopecia Universalis). I lost my hair when I was 2 years old. I am now 26. I have been this way for basically all my life. I have never before thought about reaching out to others like me. It didnt even occur to me that I could. I choose to be really open and in your face about my condition. I do not wear wigs unless I just feel like doing something different. I made that decision when I was 10 years old. I had moved to another city and was going to start a new school and my foster mother asked me if I wanted to just be myself instead of wearing wigs. I remember struggling with my decision. I thought about how embarrasing it was when some mean kid would pull my wig off just for fun. I decided to just grab the bull by the horns and be me. It was hard that first day of school. Most kids stayed away from me and the others bombarded me with irritating questions. But I made it through. Not that it wasnt hard….but trying to blend in and wear a wig and having it pulled off at the skating ring in front of the whole world was much harder than just putting it out there for the world to see. So it is what it is. People stare at you but you learn to ignore it or if your like me you learn to like it. I use to get down and do the whole why me thing but that just made me hate myself because there are so many kids that had it so much worse. When your different you just have to learn to accept what is and love you for you. Seeing this website and seeing that there are other people like me makes me feel not so different. Seeing that there are young people who just developed this makes me want to reach out and share my storthemselves and ignore the closedmindness of others.
- Do you have alopecia?
- Alopecia universalis
- Are you age 18 or older?
- Yes
- Your Website (Leave blank if you don't have one):
- http://myspace.com/faerievixen82
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Comment Wall (13 comments)
- At 10:55pm on June 2, 2010,
Marte Carlson said… - Hey Natasha.... I am not sure how often you get on here but I wanted to say hi!! We are also in DSM IA and my daughter has Alopecia. Are you aware there is a really good support group that meets in Johnston. I have been to several of the meetings with my daughter. Its kinda nice to find people from our own area to connect with!!!
Hope to hear from you!!
Marte
- At 9:45pm on February 12, 2009,
Amanda said… - yea i know they really cant, but at least they try...and yea i love this place :))
- At 4:29pm on January 20, 2009,
Danielle said… - hello. honestly it's good to actually meet someone that is actually like me.. in many ways. i lost my hair when i was 2 as well, i don't wear wigs, and the few times that i did i went the same teasing and taunting, such as the wig pullings and other ridiculous things. obviously, i have AU, but i'm not 26.. haha. i'm actually 10 years younger. but i was just stopping by to say hello.. and it was nice to just see that there's someone a lot like me.
- At 3:41pm on January 16, 2009,
Cherylnz said…
- Hi Natasha
Welcome to Alopecia World
- At 8:07pm on January 12, 2009,
Lenita said… - HI Natasha, I too have alopecia universalis and i've had it too since i was 2 yrs old. Im now 25 and i give it to you, you're alot braver than me. I struggled in school because of it. I wore bandanas until i was in the 4th grade and then i began wearing wigs. I've got plently of stories of my wig being knocked off in school but i overcame it. I couldn't have done what you done, show off my bald head to everyone. Even at home around my family, i don't wear my wig but i wear a bandana because i don't feel comfortable without something covering my head . But overall i think you're braver than i would ever be and you're right there are alot worse things than just being bald.
- At 5:18pm on January 12, 2009,
Lyndsey said… - Thanks for adding me as a friend. It's nice to know others who have the same problems.
- At 4:10am on January 12, 2009,
Roger said… - Welcome.
Roger.
- At 7:19am on January 11, 2009,
3wwasha said… - Hello,
Welcome to Alopecia World.
Aysha
- At 4:35am on January 11, 2009,
Linda said… - I love your Attitude about Alopecia, welcome to AlopeciaWorld Natasha!
- At 1:21am on January 11, 2009,
JeffreySF said… - Hi Natasha,
Welcome to Alopecia World.
I love your energy and spirit.
Alopecia World is a great place. I've only had alopecia a year and without this place I know I wouldnt be as happy as I am today.
Welcome
Jeff
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