Mar S's Page

Mar S commented on Alopecia World's group Alopecia Universalis

"Jeffrey, the Vitamin D is interesting. I know it's being used for a lot of autoimmune diseases. May I ask how much you are taking?"

May 15

Mar S commented on KFlame's blog post Nails

"Just to add, the funny thing was that is was my dermatologist's nurse who told me about the Biotin while I was getting the shots. When I asked my derm about it, he said "oh yeah, we did studies about 20 years ago hoping Biotin would regrow…"

Feb 22

Mar S commented on KFlame's blog post Nails

"Since I was getting the steroid shots at the same time I started the Biotin, I don't know if one helped the other. I'd say it took several months before they really got back to "normal." What I did notice was that my toenails got…"

Feb 22

Mar S commented on Alopecia World's group Alopecia Universalis

"Bald patches which I didn't see at first due to my long hair. It took a while, then once the hair started falling out, it came out in clumps. A few months later, the body hair fell out. Eyebrows and eyelashes were the last to go. Then the nails…"

Feb 22

Mar S commented on KFlame's blog post Nails

"I take Biotin (5 mg) each day (thank you JeffreySF!) My nails were literally falling off the nail beds and I was getting corticosteroid shots in my nail beds. While that helped, the Biotin is what really strengthened them. I've stopped the…"

Feb 21

Mar S commented on Alopecia World's group Alopecia Universalis

"My tattooed eyebrows lasted 2 years before having to redo them. The eyeliner doesn't seem to last for me, the inner eyeliner keeps disappearing, so I have to fill in with matching eyeliner. Strongly recommend doing the eyebrows, once done you…"

Mar 31, 2011

Mar S replied to carly's discussion Alopecia Universalis?? in the group Alopecia Universalis

"I lost my scalp hair first, at first slowly in patches, then when it thinned out so badly it just came out in chunks. Body hair was next, then eyelashes and eyebrows at the same time. I tried injections in the eyebrows (that really hurt) but they…"

Mar 10, 2011

Mar S commented on Alopecia World's group Alopecia Universalis

"Monique, thanks for posting this link. Doesn't surprise me though, I have a family history of RA and psoriasis, and I always thought the RA and AU were somehow linked. it will be interesting to see if the research can find a treatment, although…"

Jul 1, 2010

Mar S commented on Alopecia World's group Alopecia Universalis

"Lynn, are you on the right or the left? You look so much alike! I think you both are beautiful. Wish I looked that good when I take off my wig! Good thoughts for your sister (and you)."

May 28, 2010

kerry edwards left a comment for Mar S

"hi iam kerry just reading sum of the blogs wow,I try to stay postive, but you get your bad days.But Ive not expeiencne nail lost yet, Please god I hpoe i dont, but i have alopecia since I was 10ys old,and had un about when I was 27yrs old, I am now…"

Apr 21, 2010

Mar S commented on Alopecia World's group Alopecia Universalis

"lol @ Amber--I was in the doctor's waiting room last week and a woman came up to me and said I have very shiny hair! She just stood there looking at me, so I just said uh huh,thanks and thought I guess it must be time to wash the wig, it's…"

Mar 23, 2010

Mar S commented on Alopecia World's group Alopecia Universalis

"True enough. The drs and researchers don't know enough about the immune system and why it gets "confused" when it comes to alopecia. I gave up on the doctors too, nothing can be done. However, if the nails are affected, mine came back…"

Feb 12, 2010

Mar S replied to Stephanie's discussion Fingernails in the group Alopecia Universalis

"I started taking Biotin about 6 months ago and it has made a huge difference in my nails. I was getting corticosteroid injections in my nails, as they were so bad they were splitting off the nail bed. It's been 2 months without injections and…"

Dec 15, 2009

Mar S commented on Alopecia World's group Alopecia Universalis

"Jeffrey, are you using something for the eyelash regrowth or are they coming in on their own? That's good news to hear someone is having some regrowth."

Oct 9, 2009

Mar S commented on Alopecia World's group Alopecia Universalis

"I would love to know if anyone with AU has tried Latisse and if it worked, and most important, if the eyelashes didn't fall out after they grew. Considering how AU is described as the immune system attacking the hair follicles, my guess would…"

Oct 7, 2009

Mar S replied to Jesus Chick and Mom-Abre's discussion Any tips or experiences with losing your eyelashes?

"I have AU and got the permanent makeup done as well. The eyebrows came out great, it's nice not to have to deal with them, and I'm a terrible artist. I got the eyeliner done, but it didn't come out as well. The top eyeliner was OK,…"

May 20, 2009

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