"I was diagnosed with AA at the age of 12.No one in my family understood that their actually is a disease that causes your hair to fall out. I was told by my stepmother (who was the maternal figure in my life) and my aunt to find something else to do…"
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Lori D.
- Female
- Plymouth, MA.
- United States
- Blog Posts
- Discussions (19)
- Events
- Groups (6)
- Photos (24)
- Photo Albums (1)
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Lori D.'s Groups
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Lori D.'s Page
Latest Activity
Jasmine Harrell replied to Lori D.'s discussion How did your parents react/treat you when you developed Alopecia? in the group Adults who have grown up with alopecia
KFlame replied to Lori D.'s discussion How did your parents react/treat you when you developed Alopecia? in the group Adults who have grown up with alopecia"I think in some ways I was lucky with my parents, I remember as a child going for appointments getting all this smelly stuff my mum putting it on my head a lot of nights… it came and went patches here and there, but no real fuss was…"
Maryanne left a comment for Lori D."Hi, Lori
I'm new to this site and just joined the MA group. Your story and photos are inspiring. I've been working on alopecia in therapy and I'm ready to start having the time of my life as well. When I lost my hair 20 years ago I…"
Lili commented on Lori D.'s group Alopecians from Mass."I only have female pattern baldness, but still it's cool this group is here... hope I'm welcome! You know what's weird? These days, in the area I live in, I almost *never* see people with female baldness let alone alopecia areata. In…"
Profile Information
- Relationship Status:
- Married
- About Me:
- When I was 6, I got a mild case of AA; just a tiny bald spot. Two years later, after another traumatic event took place in my life, it developed into AU. About nine years later, it changed to AT, where it has been for 26 years. I tried the steroid shots and had a biopsy. I have cicatricial alopecia..poor prognosis. Strangely enough, I've had some scalp growth. First it was peach fuzz, then I had long white wirey hairs on both sides of my head, then dark hair grew..I have to trim it to wear a wig. I have body hair, (minus the legs-but who cares about that anyway); I have most facial hair, (including some very charming hairs that insist on growing out of what I'll call a beauty mark, ok, ok, so it's a mole), and I don't have nose hair. I've always worn a synthetic wig. My parents were totally ashamed of me so I dealt with a lot of negativity at home and at school. I was never taken to a specialist or even a dermatologist. My first visit to a derm was sometime in my thirties. I've had a lot of unhealthy relationships but 8 years of therapy have helped me in many ways; including my self esteem-thereby my choices in the relationship dept. were improved. I married a wonderful man in 2006. We do a lot of exciting activities together. I'm really having the time of my life. He is absolutely my soul mate. And I met him online!!! Looking forward to many supportive exchanges on this great site.
- Do you have alopecia?
- Scarring alopecia
- Are you age 18 or older?
- Yes
Lori D.'s Photos
Comment Wall (26 comments)
- At 5:17pm on December 17, 2011, Maryanne said…
Hi, Lori
I'm new to this site and just joined the MA group. Your story and photos are inspiring. I've been working on alopecia in therapy and I'm ready to start having the time of my life as well. When I lost my hair 20 years ago I also lost my sense of humor (and I had a great one!) and recently I've been able to laugh about my alopecia with close friends so I feel I'm making progress. It's also a big step for me to break through isolation and join a group like this. You seem to be enjoying your life and it's good for me to see that. Just wanted to say "thank you."
peace,
Maryanne
- At 9:19pm on May 11, 2009,
richard said… - thanks,
are there any group meetings in boston? i am thinkin of starting one like they have in wellesley, does boston needs a group? what do u think? would people want to come once a week?
- At 12:22am on April 26, 2009,
Dotty said… - Hi Lori,
How's things my friend? I wanted to let you know that we are planning an "Alopecia beauty day" at a boutique in Chelmsford on June 7th as our first official awareness event for our newly incorporated non-profit Alopecia company. They are opening the boutique just for us and we can try on clothes, take lots of pics, and just have fun together. I got at least 40 dress up costumes for the kids. They will look so adorable. We are going to do a buffet brunch at the hotel nearby first and then go to the boutique. I hope you can make it we missed you at the last one!!! I know it will be great!!! Miss you much. Say hi to the family. Please let me know so we can do a head count for the restaurant reservations.
Love and Hugs,
Dotty
- At 11:17pm on January 26, 2009,
Shannon said… - Hi Lori! Thanks so much for your message. It was great to hear from you. I haven't been on here forever but need to get back involved. I'm loving your photos--you look so pretty at the falls. Take care and we'll keep in touch!
- At 7:16pm on January 21, 2009,
dollydreadful said… - I hate the dentist - hope they didnt hurt you !! :) going to looka t pic of Jake
- At 2:54pm on January 20, 2009,
Maygen said… - Thank you! Wow....look at all that snow! In Texas we don't get to see much of that! Bummer!
- At 3:17pm on January 16, 2009, dollydreadful said…
- hi lori did you have a pic of jake up? didn't see it - sheis 13 the scallywag:) she is very sweet her name is ophelia my boyfriend cals her cleo and witchy poo LOL
- At 10:31pm on December 22, 2008,
Jennifer said… - hi Lori, Your story touches my heart. I'm glad you finally found a great person in your life. YOU LOOK GREAT in those pictures!!!
- At 10:33pm on October 28, 2008,
ChasingOrion said… - Hey! I'm in Mass as well (although not from there). I'm currently attending school in Boston. =)
- At 8:19pm on October 2, 2008,
Rose Marie' said… - Hi Lori D
I'm a pretty lucky Mum to have such a lovely daughter too. Thanks for your compliments. :)
I see you are friends with the lovely dotty - isn't she wonderful. I guess the reason I'm here is to learn as much as I can about people's experiences. You know reading people's profiles is really helpful.
Catch you again soon.
Rosy
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