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Karaholly's Discussions

finding xeljanz

Started Aug 22 0 Replies

does anybody know where I can buy xeljanz at a good price? I have one three month supply and our wedding is the day after I am scheduled to run out of my medicine. I am trying so hard to find a…Continue

Im starting Xeljanz for alopecia areata

Started this discussion. Last reply by Karaholly Sep 6. 18 Replies

Hi all you lovely balding beauties! I'm a 31 year old female from Southern California. My AA started 4 years ago and hasn't stopped. My hair has been constantly falling out and growing back over the…Continue

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About Me:
Hi! My name is Kara. I am a 31 year old female. My AA started at 27, 4 years ago. I lost almost all my hair. It's been a devastating journey but I'm staying positive! I have about 1/3 hair loss - 1/2 constantly. Always falling out then coming back but by the time it comes back in the spots, I have new friends all over my head in new areas! I've tried injections, squaric acid treatment, creams, prednisone (made me a crazy person I will NEVER take it again,) etc.. I recently had an appointment with UCI. I got a 3 month supply of Xeljanz 5mg twice a day. Apparently insurance companies will only give one patient one three month supply once a year. I'm hoping when I get married in 3 months I can get more under my new name, then more in the new year, then I need to find a creative way to find more until I can get it again. My dr said I have about a 65% chance of it working. If it doesn't work she said I'm a great candidate for their trial program, but I cannot take xeljanz while doing the trial. I'm hoping the xeljanz will work for me but I am extremely worried about the serious side affects of this medicine, yet I am desperate to have my hair back! I know, it sounds ridiculous, but those of you on here who know what I've been through probably understand. I hope my story and experience with this medicine can help! Good luck to each and every one of you. My heart goes out to all of you!
Do you have alopecia?
Alopecia areata
Are you age 18 or older?
Yes - I am 18 or older

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