Karaholly
  • Female
  • Newport Beach, CA
  • United States
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Karaholly's Discussions

xeljanz in thailand or hong kong?

Started Nov 19 0 Replies

hello everyone! my insurance has denied my coverage for xeljanz, even though it has been working for me. i am going to thailand next month and was wondering if anyone knew about any pharmacies that…Continue

Xeljanz is working for me

Started this discussion. Last reply by Halina Svetana Nov 20. 3 Replies

Hi everyone my name is Kara. I've been suffering from AA for five years now. I started xeljanz and recently hit the three month mark and literally on the 90 day mark, I started noticing a drastic…Continue

finding xeljanz

Started Aug 22 0 Replies

does anybody know where I can buy xeljanz at a good price? I have one three month supply and our wedding is the day after I am scheduled to run out of my medicine. I am trying so hard to find a…Continue

Im starting Xeljanz for alopecia areata

Started this discussion. Last reply by Karaholly Sep 6. 18 Replies

Hi all you lovely balding beauties! I'm a 31 year old female from Southern California. My AA started 4 years ago and hasn't stopped. My hair has been constantly falling out and growing back over the…Continue

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Latest Activity

Karaholly posted a discussion

xeljanz in thailand or hong kong?

hello everyone! my insurance has denied my coverage for xeljanz, even though it has been working for me. i am going to thailand next month and was wondering if anyone knew about any pharmacies that sell xeljanz in thailand or hong kong for cheaper than here? i have been looking online but i have not found any pharmacies. if anyone knows anyone who lives in thailand or hong kong, any information would be helpful! i hope you all are having a wonderful weekend. i am going to appeal my insurance…See More
Nov 21
Halina Svetana replied to Karaholly's discussion Xeljanz is working for me
"I am curious, does this mean Xeljanz is available now for treatment? not just in trials? I am in Canada.. "
Nov 20
Karaholly replied to HRLIM's discussion Scared and freaking out
"hello! im' sorry you're going through this. i would suggest getting a punch biopsy from your dermatologist, this will let you know for sure if you have it or not, then they can start trying to help you. your doctor can start giving you…"
Nov 19
Karaholly replied to Newjack's discussion I'm having a difficult time with AA.
"hello! i have been suffering from AA for 5 years now... it is a very very difficult problem to deal with and i'm very sorry you're going through it. i noticed hair loss the same way you did. i had a couple spots here and there, then all of…"
Nov 19
Karaholly and Patchesforlife are now friends
Nov 19
Carma Harper replied to Karaholly's discussion Xeljanz is working for me
"I can't the Xeljanz right now b/c my cholesterol is high b/c last year my Dr. took me off statin drugs b/c of the side effects and was concerned that it could also have caused my hair to fall out. so it will be at least 3 months before I can…"
Nov 18
Hopemom replied to Karaholly's discussion Xeljanz is working for me
"So happy for you. Thank you for sharing. Btw, are you going to try topical jak?"
Nov 14
Hopemom liked Karaholly's discussion Xeljanz is working for me
Nov 14
Karaholly posted a discussion

Xeljanz is working for me

Hi everyone my name is Kara. I've been suffering from AA for five years now. I started xeljanz and recently hit the three month mark and literally on the 90 day mark, I started noticing a drastic difference. I got one free three month supply from insurance, which is only given once a year. I had a friend visiting her home in Turkey and she was able to bring me two months supply for 600 each (much better than 1200 here and Canada) but obviously she will not be returning to Turkey anytime soon.…See More
Nov 14

Profile Information

Relationship Status:
Engaged
About Me:
Hi! My name is Kara. I am a 31 year old female. My AA started at 27, 4 years ago. I lost almost all my hair. It's been a devastating journey but I'm staying positive! I have about 1/3 hair loss - 1/2 constantly. Always falling out then coming back but by the time it comes back in the spots, I have new friends all over my head in new areas! I've tried injections, squaric acid treatment, creams, prednisone (made me a crazy person I will NEVER take it again,) etc.. I recently had an appointment with UCI. I got a 3 month supply of Xeljanz 5mg twice a day. Apparently insurance companies will only give one patient one three month supply once a year. I'm hoping when I get married in 3 months I can get more under my new name, then more in the new year, then I need to find a creative way to find more until I can get it again. My dr said I have about a 65% chance of it working. If it doesn't work she said I'm a great candidate for their trial program, but I cannot take xeljanz while doing the trial. I'm hoping the xeljanz will work for me but I am extremely worried about the serious side affects of this medicine, yet I am desperate to have my hair back! I know, it sounds ridiculous, but those of you on here who know what I've been through probably understand. I hope my story and experience with this medicine can help! Good luck to each and every one of you. My heart goes out to all of you!
Do you have alopecia?
Alopecia areata
Are you age 18 or older?
Yes - I am 18 or older

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