Patchesforlife
  • Female
  • Wheaton, IL
  • United States
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Patchesforlife's Discussions

Pregnancy and alopecia

Started this discussion. Last reply by Patchesforlife Apr 19. 1 Reply

I am currently pregnant and I wanted to hear stories from you guys if you havr had alopecia before getting pregnant, after or was pregnancy the reason you have alopecia.. looking forward for your…Continue

Is there anyone using this website who hasn't lost all their hair?

Started this discussion. Last reply by AliceD May 13. 41 Replies

Hi All,I am writing to ask whether there is anyone here using this website who has NOT lost all their hair i.e. had severe form of alopecia areata such as universalis or totalis. It seems to me there…Continue

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Latest Activity

AliceD replied to Patchesforlife's discussion Is there anyone using this website who hasn't lost all their hair?
"I haven't lost all my hair."
May 13
AliceD replied to Patchesforlife's discussion Is there anyone using this website who hasn't lost all their hair?
"Hi, I have bald patches.."
May 13
Rascalx2 replied to Patchesforlife's discussion Is there anyone using this website who hasn't lost all their hair?
"Hey Patches for life, I lost it all, but I have to say I don't think I would even be on this if I did nt...I often wonder if people have grown it all back and don't visit this site anymore"
May 13
Patchesforlife replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"No-one understands what you are saying!"
May 11
Amanda Banana and Patchesforlife are now friends
May 9
Dominique Cleopatra replied to Patchesforlife's discussion Is there anyone using this website who hasn't lost all their hair?
"Patches here! Lol"
May 8
eolson10482 replied to Patchesforlife's discussion Is there anyone using this website who hasn't lost all their hair?
"I have never had hair on my arms or legs. When I was about 5 I had balding spots on the back of my neck and my mom said she just put a cream there and it grew back. About a year or 2 ago my eyelashes and eyebrows started falling out and I got…"
May 8
Patches replied to Patchesforlife's discussion Is there anyone using this website who hasn't lost all their hair?
"It's really stressful. We all know how you feel, for sure. The lack of control, the feeling that you are losing a part of your identity, worrying about how other people will react. I don't have any great wise insights. I try to tell…"
May 8
Patches replied to Patchesforlife's discussion Is there anyone using this website who hasn't lost all their hair?
"Ah. For some reason, I interpreted "turning" AU as reversing. I see you meant progressing to AU. Yes it is definitely possible. It also might not happen. Everyone is different. Most people don't progress that far. Again, this site is…"
May 8
RestlessBear replied to Patchesforlife's discussion Is there anyone using this website who hasn't lost all their hair?
"I am a 26 year old female who noticed a bald patch on the top of my head four months ago. It has gotten bigger since I first noticed it and is now about the size of two 50 cent pieces. I have not lost hair anywhere else, my hair is long and black…"
May 7
Patchesforlife replied to Patchesforlife's discussion Is there anyone using this website who hasn't lost all their hair?
"On another note..reversing AU through xelnanz seems to be successful.."
May 7
Patchesforlife replied to Patchesforlife's discussion Is there anyone using this website who hasn't lost all their hair?
"My doctor said it is rare but doesnt seem to be according to this site"
May 7
Patches replied to Patchesforlife's discussion Is there anyone using this website who hasn't lost all their hair?
"Sure. It happens. People on the site have talked about it. We have also seen it in people in the Xeljanz trials. But we know it doesn't happen often. I don't have AU, I hope I don't progress to AU, and I don't think I will. But…"
May 6
Patchesforlife replied to Patchesforlife's discussion Is there anyone using this website who hasn't lost all their hair?
"Do you thibk turning AU is a possibiltit?"
May 6
Patches replied to Patchesforlife's discussion Is there anyone using this website who hasn't lost all their hair?
"People whose spots filled in aren't on this website, because they don't need the support. This website is great because it helps us connect with other people who understand what we are going through, but it can also be a scary place…"
May 6
Patchesforlife replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Is this site a hoax?"
May 2

Profile Information

Do you have alopecia?
Alopecia areata
Are you age 18 or older?
Yes - I am 18 or older

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