J.B.
  • 36, Male
  • Madison, WI
  • United States
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J.B.'s Discussions

Squaric acid suddenly unavailable

Started this discussion. Last reply by shannon l meek Oct 4, 2010. 3 Replies

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Latest Activity

Susan Innes left a comment for J.B.
"Hello J.B.- A Wisconsin group has just been formed on AW; we'd love to have you join us. We're hoping this will make it easier for the newly diagnosed in this area. Susan"
Nov 30, 2011
Craig commented on J.B.'s blog post Alternative Therapies?
"why do people feel there needs to be further research on this? People have been living with parasites since the beginning of mankind. There actually is quite a bit of studying already though, if you need it. Just research. These worms simply…"
Apr 19, 2011
Craig commented on J.B.'s blog post Alternative Therapies?
"Is there any new news on this? I would definately try it, but the worms cost $3k and cannot be shipped to the US, due to FDA regulations. Anyone want to sponsor me to fly to England and get the treatment? haha...but seriously, I would do it, and…"
Apr 15, 2011
JeffreySF left a comment for J.B.
"Hi JB, Saw you were online so stopped in to say hello. How are things going with you? All is good here. I am about at 80% regrowth right now. Jeffrey"
Oct 9, 2010
shannon l meek replied to J.B.'s discussion Squaric acid suddenly unavailable
"Cleveland Pharmacy number is 216-636-0761. I just got half of this filled on Thursday and they had to mix more but should get in the mail by Wednesday of this week. So you have had good luck with? How long until you started to see growth? Did you…"
Oct 4, 2010
J.B. replied to J.B.'s discussion Squaric acid suddenly unavailable
"Looking online, there are several associated pharmacies. Do you know the name or phone number?"
Oct 4, 2010
shannon l meek replied to J.B.'s discussion Squaric acid suddenly unavailable
"I just got a script from Cleveland Clinic and they fill it right there at pharmacy"
Oct 4, 2010
J.B. replied to Richard Eady's discussion Swimmer with alopecia
"Also I might add, that in many cases, for lower level competition, if there is a medical reason, which alopecia would be, that alone justifies the use, regardless if its banned status."
Oct 2, 2010

Profile Information

Relationship Status:
Married
About Me:
Recently diagnosed with AA and vitiligo. Lost most scalp hair, with uneven patches. Facial hair thin/white, with patches of normal, dark hair. Eyebrows thinned/white. I am pretty much Totalis now. I have a few small patches of hair on the back and sides, but thats it.
Newish update: Complete scalp regrowth save two very small spots, thanks to squaric acid.
Do you have alopecia?
Alopecia totalis
Are you age 18 or older?
Yes - I am 18 or older

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J.B.'s Blog

Alternative Therapies?

Posted on March 29, 2009 at 11:44am 6 Comments

I recently heard of Helminthic therapy for other autoimmune issues. I am wondering if anyone else has heard of it, and especially if anyone else has tried it specifically for hair loss. I am considering it more as a way to reduce chances of other related immune issues (no diagnosed issues besides Alopecia and Vitiligo). I wonder what if anything it will do regarding hairloss, as I am finally in the realm of Totalis, and I don't want spotty regrowth. I actually don't mind the scalp hair loss now… Continue

Comment Wall (16 comments)

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At 7:40pm on November 30, 2011, Susan Innes said…

Hello J.B.- A Wisconsin group has just been formed on AW; we'd love to have you join us. We're hoping this will make it easier for the newly diagnosed in this area. Susan

At 9:01pm on October 9, 2010, JeffreySF said…
Hi JB,
Saw you were online so stopped in to say hello.
How are things going with you?
All is good here. I am about at 80% regrowth right now.
Jeffrey
At 12:27am on January 29, 2010, JeffreySF said…
Happy Birthday!!!

Jeffrey
At 9:00pm on February 20, 2009, JeffreySF said…
Hey JB,

How's everything going?
All is good here with me. Getting ready for the NAAF Conf.

Jeff
At 4:34pm on January 16, 2009, Cherylnz said…
Hi J.B.
Welcome to Alopecia World
At 2:58pm on January 11, 2009, Jessica said…
Hey J.B.

Looks like we have the same hair style. It's very nice to meet you and would love to chat sometime. Is that your baby in the pic? So very cute, I have 3 kids 8,3, and 1

jessica
At 11:50am on January 11, 2009, Stephanie said…
Hi JB,

Welcome this a great place to meet people. I know it's been a big help for me. Let me know if I can help you out this anything.

Steph
At 1:02am on January 11, 2009, Eileen Simpson said…
Hi JB welcome and I hope you will find this a good place to people like us. I know I have and I am very thankful for this site.
Eileen
At 8:16am on January 10, 2009, tamgirl said…
welcome JB, thx for the invite

-Tam
At 1:19am on January 10, 2009, JeffreySF said…
Hey JB,

Relaxing is good. Woof Woof Meow Meow.

Jeff
 
 
 
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