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becky b joined Ohio's group
CHILDREN BORN WITH ALOPECIA AND DEALING WITH THE CHALLENGES
Dealing wtih Alopecia is difficult enough for adults however children that have dealt with it since birth have an even more difficult time with it. In addition, it is very rare that a child is born with Alopecia. Looking for others....See More
Kate joined Ohio's groupCHILDREN BORN WITH ALOPECIA AND DEALING WITH THE CHALLENGES
Dealing wtih Alopecia is difficult enough for adults however children that have dealt with it since birth have an even more difficult time with it. In addition, it is very rare that a child is born with Alopecia. Looking for others....See More
lauren joined Ohio's groupCHILDREN BORN WITH ALOPECIA AND DEALING WITH THE CHALLENGES
Dealing wtih Alopecia is difficult enough for adults however children that have dealt with it since birth have an even more difficult time with it. In addition, it is very rare that a child is born with Alopecia. Looking for others....See More
Liz joined Ohio's groupCHILDREN BORN WITH ALOPECIA AND DEALING WITH THE CHALLENGES
Dealing wtih Alopecia is difficult enough for adults however children that have dealt with it since birth have an even more difficult time with it. In addition, it is very rare that a child is born with Alopecia. Looking for others....See More
"Samantha, thank you for your words of advice, appreciate it. We have had fun over the years "painting and drawing" on his head. I have pics of him when he was about 4 yrs old with a face painted on the back of his head and he wore his…"
Samantha White commented on Ohio's group CHILDREN BORN WITH ALOPECIA AND DEALING WITH THE CHALLENGES"Cindy.... I think a good way for your son to have a bit more self esteem is to have him and the other kids have fun with the idea of him having alopecia. For example, when I was in my teen years, I still do this to this day, I would have the other…"
"Samantha....good for you!! My son is 11 yrs old and it so hard to make him understand that it is what is inside that matters. I can only hope and pray that he handles his situation as well as you have. I know as he gets older (teen yrs) he will go…"
Samantha White commented on Ohio's group CHILDREN BORN WITH ALOPECIA AND DEALING WITH THE CHALLENGES"I have had alopecia since I was 18 months old I am now 20 years old and I have no hair anywhere on my body. I have only tried wearing a wig once in my life and I have to say it was the worst three days of my life. I tried wearing the wig when I was…"
Samantha White joined Ohio's groupCHILDREN BORN WITH ALOPECIA AND DEALING WITH THE CHALLENGES
Dealing wtih Alopecia is difficult enough for adults however children that have dealt with it since birth have an even more difficult time with it. In addition, it is very rare that a child is born with Alopecia. Looking for others....See More
CHILDREN BORN WITH ALOPECIA AND DEALING WITH THE CHALLENGES
Dealing wtih Alopecia is difficult enough for adults however children that have dealt with it since birth have an even more difficult time with it. In addition, it is very rare that a child is born with Alopecia. Looking for others....See More
"Thanks Jessica, Jack has become very curious about his condition over the last year and that is why I want to pursue it and find out if he has alopecia or a genetic disorder such a form of Ectodermal Dysplasia, which is what his Dr believes to be…"
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- I am 44 and I have a 9 year old son that was born with Alopecia however we have been told that it may be contributed to genetics (simular to Ectodermal Dysplasia) however he only has the side of effect of an absence of head hair. We have seen several specilaist and without my husband and I being tested we are not sure if it is genetics, the only other alternative is to have a biopsy done on our sons scalp, which we have been told may not help to be 100% sure as to whether or not it is Alopecia so we choose not to do this, as we do not want to leave him with a scar. I have spent hours upon hours of research only to find out how rare it is for a child to be born with Alopecia. My son is very involved in sports, school activites and plays the piano. He is very confident however I worry about how the alopecia will effect him in his teen years. I am looking for feedback from others that have children born with Alopecia or a genetic issue that has casued their child to never grow hair. (My son does have eyelashes, eyebrows and normal body hair for a 9 yr old).
- Do you have alopecia?
- Parent or guardian of child with alopecia
- Are you age 18 or older?
- Yes - I am 18 or older
Ohio's Blog
LOOKING FOR OTHERS WITH A CHILD BORN WITH ALOPECIA
Posted on April 13, 2009 at 7:30pm 0 Comments 0 Favorites
I am the mother of a beatiful, outgoing and amazing nine year boy who was born with alopecia. I have spent hours upon hours and traveled the country seeing specialist to learn how unique his situaiton truly is (only to become more frustrated). I have been told that it may be genetic, he was born bald and his hair only grows to that of the newborn stage (Anagen Stage). His hair is extremly fine and very blond, almost white, the very little that he has that is. It never grows more then the length… Continue
Comment Wall (12 comments)
- At 1:56pm on January 12, 2010,
jessica said… - I had my biopsy in elementry school. What they were able to find out was that I had absolutly no hair folicals. Genetic testing would be just a simple blood draw. How does your son feel about persuing this? Any thing else I can do to help just let me know.
I wish you the best. God Bless.
- At 7:39pm on January 4, 2010, jessica said…
- Hi Cindy, my brother and I were both born with Alopecia. I am now 35 and he is 36. I must be honest, I think it was a lot easier for my brother because he was a boy. He never really covered it up or had a hard time dealing with it. However I feel it was a lot more difficult for me being a girl. I did cover it up for years with a wig until this past Independence Day. Now I only wear hats but trying to be stylish.
Jessica
- At 6:31pm on December 22, 2009,
Samantha said… - Hi Cindy , Sorry I havent been talking to you .
- At 1:34am on August 20, 2009,
Tracy and Amanda said… - Hi Cindy,
How are you?
Tracy
- At 6:24pm on April 29, 2009, Samantha said…
- Thank you for adding me as a friend. How are you? What do you like to do?
- At 6:24pm on April 17, 2009,
Cindy and Samantha said… - Hi there, my name is Cindy and I have a 7 yr old daughter living with Alopeica. You son is adorable. He looks like a kid that has a lot of confidence and a positive attitude.
- At 2:37pm on April 14, 2009,
Rose Marie' said… - Hi Cindy
Welcome to alopecia world.
I'll look forward to getting to know you a little better in the future.
Rosy
- At 6:59am on April 14, 2009,
3wwasha said… - Hello,
Welcome to Alopecia World.
Aysha
- At 1:36am on April 14, 2009,
Karen said… - Hi Cindy,
I have met a lady here in Australia whose son was born bald too. I spoke to her about it and she told me it is genetics. Her and her husband have both been tested with the docs sending the work overseas as well. Her other children all have hair however the gene pool in her son has come up with alopecia. She said that both her and her husband carry this special gene.
- At 1:20am on April 14, 2009,
Roger said… - Welcome.
Roger.
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