Anna (Elly's Mom)
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Anna (Elly's Mom)'s Friends

  • Tracy and Amanda
  • Peggy Knight
  • Olivia Rusk

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Latest Activity

Amanda Crichton replied to Anna (Elly's Mom)'s discussion Daughter newly diagnosed... At a loss. in the group Parents of Children with Hairloss
"Hi Anna, Sorry to hear about what your family are going through...it's tough isn't it! There was an organization here in NZ are few years back called parent to parent, that put you in touch with other families with the same condition your…"
Dec 29, 2010
Anna (Elly's Mom) is now friends with Peggy Knight and Olivia Rusk
Dec 11, 2010
Anna (Elly's Mom) and Tracy and Amanda are now friends
Nov 28, 2010
Anna (Elly's Mom) updated their profile
Nov 26, 2010
Anna (Elly's Mom) updated their profile photo
Nov 26, 2010
Anna (Elly's Mom) added a discussion to the group Parents of Children with Hairloss
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Daughter newly diagnosed... At a loss.

Hello all, my name is Anna. My 23-month-old daughter was recently diagnosed with a rare, incurable, genetic disorder called Monilethrix. It causes brittle, coarse hair that breaks easily and can't grow past a certain length. She was born without hair or eyebrows, and had nothing until about 14 months. When she did finally start growing hair, she maintained a large bald spot on the back of her head. We- along with everyone else- assumed she was rubbing her head in her sleep. As she got older I…See More
Nov 25, 2010
Anna (Elly's Mom) joined Miranda's group
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Parents of Children with Hairloss

Here you can talk amongst other parents about treatments, highs, and lows.
Nov 25, 2010
Anna (Elly's Mom) is now a member of Alopecia World
Nov 25, 2010

Profile Information

Relationship Status:
Married
About Me:
My daughter was recently diagnosed with a rare, incurable genetic condition called Monilethrix. It causes hair to break easily and creates patches of hair loss. She has a large bald patch on the back of her head, very sparse eyebrows, and no body hair from the neck down. Being such a rare disorder, there are no support groups specifically geared towards it. I'm hoping to find support here.
Do you have alopecia?
Parent or guardian of child with alopecia
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall (1 comment)

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At 7:07pm on November 26, 2010, LeslieAnn Butler said…
Hello and welcome, Anna!
How are you and Elly doing today?
Leslie Ann
 
 
 
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shimmyshimmyya posted discussions
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Surraugeny Sanders replied to kathy ferguson's discussion Horrible quote from HBO show "VEEP" last night
3 hours ago
Priya posted a status
"Never Be a Prisoner of our Past, Be an Architect of our Future. Do not repent the past, do not worry for future, concentrate on our present."
4 hours ago
CHARLENE WILSON (Chayenne's Mom) posted photos
5 hours ago

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