AmieS
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  • Santa Fe, NM
  • United States
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New here, VERY depressed!

Started this discussion. Last reply by Tess May 15, 2017. 18 Replies

Hello, My name is obviously, Amie. I guess you would say I'm at mid point, maybe a bit closer to being bald. I found a large bald spot on the back of my head about 5 months ago and now I'm getting…Continue

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Tess replied to AmieS's discussion New here, VERY depressed!
"Hello Amie, I can't tell you how sorry I am to hear what you are going through. I'm completely bald - so I can say with certainty that I understand. Please don't leave the group forums. I went to another site "her alopecia"…"
May 15, 2017
AileenC replied to AmieS's discussion New here, VERY depressed!
"Hello Amie I am sitting at the PC crying just now due to the terrible roller coaster I am on. Diagnosed with Alopecia Areata 3 weeks ago. I have a fairly noticeable bald patch on the side of my head and it is getting bigger every time I wash my…"
May 12, 2017
Amanda Banana replied to AmieS's discussion New here, VERY depressed!
"Great reply. I wish I could "like" this!"
May 6, 2017
Pat replied to AmieS's discussion New here, VERY depressed!
"Hi Amie, it's understandable you are feeling so low...losing one's hair is traumatic. As a long time alopecian I can only say that coming to terms with hairless is a process and each one of us seems to handle it our own way. I can relate…"
May 5, 2017
Bonnie Piper replied to AmieS's discussion New here, VERY depressed!
"Hi Amie I am new to this site and just wanted to say I am so sorry. The same thing happened to me about 3 years ago. It started with a tiny little round bald spot no bigger than my little finger nail and then whoosh within 6 months all gone -…"
May 5, 2017
OneBaldMother replied to AmieS's discussion New here, VERY depressed!
"Hi Amie, Sometimes I hesitate to respond to people looking for help with coping because about 3.5 years after my diagnosis, I am honestly still not totally at peace with alopecia.  I remember being very depressed and as I reflect on where I am…"
Apr 30, 2017
AmieS replied to AmieS's discussion New here, VERY depressed!
"I've seen every type of doctor there is. They all say the same thing - basically there is nothing to prevent or stop Alopecia. You can try this/that, etc. Maybe some hair will grow back, but don't count on it.  I'm just here to…"
Apr 30, 2017
AmieS replied to AmieS's discussion New here, VERY depressed!
"I've seen everyone there is - and I don't have insurance. I've talked to my employer, who is very sweet. I agree - I'd rather people know about my condition than trying to hide it.  Thanks for your reply!!"
Apr 30, 2017
AmieS replied to AmieS's discussion New here, VERY depressed!
"I agree. I've been to every type of doctor/practioner there is. There literally is nothing to stop or prevent Alopecia. The only advice I'm looking for is how to cope with this!!  Thanks!"
Apr 30, 2017
AmieS replied to AmieS's discussion New here, VERY depressed!
"Thanks, but I've done all of those things. I'm also taking Bamboo Extract w/70% silica, as well as Biotin, using CBD oil. I've seen DOM's, acupuncture, homeopathic practioners, you name it. They all say the same thing - try this,…"
Apr 30, 2017
Amanda Banana left a comment for AmieS
"I will double check a little later what the tube says. I do remember it starting with an F lol And my prescription is to apply it twice a day and hoping for results after 4 weeks. Full price it is worth $44 Canadian here, and our dollar sucks right…"
Apr 30, 2017
Cheryl, Co-founder and AmieS are now friends
Apr 29, 2017
Sad1995 replied to AmieS's discussion New here, VERY depressed!
"Stop giving people stupid advice. Gluten and sugar have nothing to do with alopecia."
Apr 29, 2017
CCV replied to AmieS's discussion New here, VERY depressed!
"Hi Aimé! That was me last year. My bald spot at the back is my head appeared in March and by the end of April, I had lost 90% of my hair. I shaved it off on Mother's day because I couldn't handle the sight on my comb, pillow and…"
Apr 29, 2017
Tom replied to AmieS's discussion New here, VERY depressed!
"Welcome Amie I've had AU for forty years so I have been where you are now. I know your depressed I would suggest finding a Good Dermatologist and find out what treatments would work for you. You could wear a wig to work. They have beautiful…"
Apr 29, 2017
Tricia replied to AmieS's discussion New here, VERY depressed!
"Hi Amie, I'm barely active here or anywhere else for that matter but did see your comment just now in the chat. My advice to you is to see a dermatologist who can treat your alopecia and fight for every strand of hair that you have.  When…"
Apr 29, 2017

Profile Information

Relationship Status:
Single
About Me:
About 3 years ago I literally woke up with curly hair one morning. I freaked out and had a job managing 2nd homes for people, so I just wore a baseball cap for 6 months. Finally I went to a stylist who highlighted my hair and showed me how to just let my hair do what it wants. For the first time in my life I LOVED my hair! Then a few months ago I noticed in the back that a large area was going bald. Again, I freaked out, but it was covered and that was the only area. Then all of a sudden I started seeing the other side of the back of my head getting bald. Then in the last few weeks bald spots are showing up on the top of my head. So far I can still cover them very carefully for work. But, I know time isn't on my side now and it's just a matter of trying to make it through each day. Some nights I just sit and cry, other nights I find my strength and want to be a role model. I hate it when people say "it's just hair" well, it's more than that!! I've been trying so hard to find a place to go where I can talk with other people about this. I don't know what to do. At what point do you shave your head, get a wig, become strong again and embrace what is going on. It's so weird that my own body is attacking my hair. I used that profile pic because I LOVED my hair in it! I normally never post a pic of me.

I live in Santa Fe, NM with my Golden Retriever, Jake, who is my life and thankfully doesn't care about my hair!! I'm going to be 60 in September - YIKES!! I love the outdoors and our mountains. I love to hike, go white water rafting, chill with friends while drinking margaritas.
Do you have alopecia?
Alopecia areata
Are you age 18 or older?
Yes - I am 18 or older

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At 12:42am on April 30, 2017, Amanda Banana said…

I will double check a little later what the tube says. I do remember it starting with an F lol And my prescription is to apply it twice a day and hoping for results after 4 weeks. Full price it is worth $44 Canadian here, and our dollar sucks right now lol and it is like the size of a big tube of toothpaste. My doctor said if we don't see progress after 8 weeks, to come back in and we'll go from there. I'm assuming that would mean the injections or something stronger.

I also work at a front desk. But luckily most of my work is accounts payable, emails, and phones. I don't get too many people that come in the front doors. And I am lucky in that I work for a pretty laid back company. And my spot is still mostly coverable unless i wear my hair up...

At 3:16pm on April 28, 2017, Amanda Banana said…

Just wanted to come to your page and say Hi!

Unrelated to the site, I wanted to mention that when I was in middle-school and High school, I didn't like my name, so my nickname became Amie for many years. I liked it a lot!

I'm sorry you are going through this. I am trying a steroid cream right now, but it has only been a week. Have you tried any creams or injections? Sometimes I wonder, why now? How come I didn't have this earlier in my life and only starts now? I had one spot grow about the size of a large baseball, but grew back on it's own after I was a few months pregnant! This time it's getting bigger and bigger, so this is my first time trying to cream. Mine starts at the corner by my neck and grows towards the center of the back of my head in a circle. I hope it stops...

Well, nice to "meet" you!

Amanda

 
 
 

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