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Jennifer and Alieena
- Female
- Gaston, South Carolina
- United States
- Blog Posts (4)
- Discussions (1)
- Events
- Groups (6)
- Photos (19)
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Jennifer and Alieena's Groups
Jennifer and Alieena's Page
Latest Activity
Jennifer and Alieena added a gift to their profile page
Jennifer and Alieena commented on Kayreyn's group 'Carolina Alopecians'
Hi Aimee DePetris, we live in Columbia, Sc. Where were the support groups in sc that you went to? we have not had any luck finding any.
Tracy and Amanda left a comment for Jennifer and Alieena
Hi Jennifer,
I read your profile on your daughter and it sounds like my daughters same story. Even the pics of your daughter look similar to my daughters hair. She will be 7 in 2 weeks and she has had alopecia since she was 4. She is starting to be…
***update****
After getting Alieena out of the bath last night, I started to dry her hair and to my surprise on the top of her head to the side along the biggest patch edge, there is new hair growing, and as well as on the big patch on the side behind her ear. I dont know if its the spray we are useing or what but I will get the name of it tonight and post it for everyone along with a picture of the regrowth. Yes I am probably over excited and I know that it might not grow back in that it might just fall out…See More
Blog post by Jennifer and Alieena
Profile Information
- Relationship Status:
- Married
- About Me:
- My name is Alieena i am 5yrs old, my birthday is Aug 27, 2003. I have Alopecia Areata. I love animals, mostly horses, but any animal will do. I enjoy horse back riding, swimming, and playing. I have a stuffed cat that I have had since the day I was born and its my best friend I take Kitty everywhere. Kitty makes me brave, she goes to the doctors with me and sits in my lap. (hi my name is Jennifer I am Alieenas mother thank you so much for having a site like this, its going to help so much.)
***UPDATE***
Alieena is doing well. We have decided not to go back to the doctors and just see what happens. In the spots where she had bold patches lots of hair has started to regrow. But with regrowth there has been a few more spots that have fallen out. But her hopes and spirts are high, I have decided that I cant protect her from the world that she will have to face it one day, so she starts Gymnastics on Tuesdays, and we go to the gym Mon, Wed, and Fri nights and she plays with the children in the daycare. She is doing so much better. I will have some new pics posted soon.
*****NEW UPDATE****
Today Alieena graduated from Kindergarten! Man is she getting so big. Her AA is getting better, and worse at the same time. Some of the first patches that fell out have started to grow back in, but then there are some new patches that have fallen out. Its like when some part starts to grow in another falls out x2. I will try to post some new pics soon.
- Do you have alopecia?
- Alopecia areata
- Are you age 18 or older?
- No - I am not 18 or older
Jennifer and Alieena's Photos
Jennifer and Alieena's Blog
***update****
Posted on June 12, 2009 at 10:11am 0 Comments 0 Favorites
After getting Alieena out of the bath last night, I started to dry her hair and to my surprise on the top of her head to the side along the biggest patch edge, there is new hair growing, and as well as on the big patch on the side behind her ear. I dont know if its the spray we are useing or what but I will get the name of it tonight and post it for everyone along with a picture of the regrowth. Yes I am probably over excited and I know that it might not grow back in that it might just fall out… Continue
Thank you for your comments
Posted on June 3, 2009 at 9:45am 1 Comment 0 Favorites
Thanks to everyone for your comments. I am VERY proud of Alieena. From day one when we first found out I had a sit down with her and pretty much told her honey, you are very special and no one can change that, and I have explained to her in great detail what it is she has and that it might be a forever thing, and I have told her time and again when she starts getting a little down about her missing hair that she had to be strong and remember she is beautiful and that God made her special. I… Continue
Cruel to the unknown. but why?
Posted on June 1, 2009 at 4:42pm 6 Comments 0 Favorites
Ok ok, same old question with still not a good enough answer. Why are people ignorant to the unknown? And let me rephrase that I dont mean ignorant to be mean but what I really mean is why do people have to be so cruel? Let me tell you I am a strong person with a very stubborn personality when it comes to my daughter, but what mother isn't? Here are a few of our daily bumps and Im sure you all will agree with me on this. Alieenas AA is getting better but at the same time getting worse. The… Continue
Second Opinion.
Posted on June 26, 2008 at 2:57pm 8 Comments 0 Favorites
Ok I know that a second opinion is not going to come out as the doc saying it’s all just a bad dream that is not such thing as Alopecia. But I have decided to get a second opinion because of the first derm we went to. The nerve of some people, this derm as so SO rude you wouldn’t believe it. Our first visit was no help at all, the doc walked in and said "yep its alopecia. looked at me and said I just wanted you to know that because she is under the age of 18 and she has alopecia there is a 100%… Continue
Comment Wall (20 comments)
- At 11:13am on March 14, 2011,
Tallgirl said… - May be coming to your state late May...let's talk!
- At 9:28am on October 30, 2009, Jennifer and Alieena added a gift to their profile…
- At 7:23pm on June 16, 2009,
Tracy and Amanda said…
- Hi Jennifer,
I read your profile on your daughter and it sounds like my daughters same story. Even the pics of your daughter look similar to my daughters hair. She will be 7 in 2 weeks and she has had alopecia since she was 4. She is starting to be more conscious of it this past year. Right now she can hide it easily but I worry if and when it gets worse and we wont be able to hide it anymore. Luckily she is involved in a lot of activities and really does not have time to worry. Your daughter is precious. It really helps to talk this out with other parents going through this.
Tracy
- At 7:14pm on June 5, 2009,
Cindy and Samantha said… - Hi Jennifer...go to www.hairclub.com and click on kids club. There will be a phone number to call to get the application. You need a doctors signature and that is because of the adhesive used. just call your ped for them to sign it. Once you have the paper work call you local hair club for men and make an apt. It takes about 12 weeks to get the wig. Sam likes them and they did a great job matching her color...Sam also wears headbands with hair sewn into them from www.hatswithhair.com. she prefers them in the summer. however, now that her hair is fairly grown in I don't think she will be wearing them much once school finishes...Please write if you have any questions. ARe you doing any treatment?
- At 4:10am on June 4, 2009,
Cindy and Samantha said…
- Hi Jennifer and Alieena. My name is Cindy and I have a 7 yr old daughter. She too lost her hair during K last year. Your daughter sounds like a gem. Sam is now regrowing, but she wears a wig through the hair club for men. I suggest checking it out if you decide to get one. They have a kids club that offers 3 free hair replacements a year. Cindy
- At 2:12pm on June 2, 2009,
childrenwithhairloss said… - If she need a hair replacement check out www.childrenwithhairloss.us
- At 11:48am on February 20, 2009,
myranda said… - thats good and i was just wondering what is that on the front of her head in the pic ithard to c
- At 8:05pm on February 18, 2009,
myranda said…
- hey how are things going
- At 11:21pm on November 26, 2008,
Lori said… - Wow, I can't believe that doctor was such a jerk- I really think he needs to retire ASAP! It is interesting how every one thinks differently- when we went to a derm I didn't want any sugar coating--- I wanted the black and white... where as you would have been content with the gray area... interesting... but yeah you can always tell which docs have children and which don't. I hope you have a great Holiday (I am just assuming that you celebrate Thanksgiving.)
- At 1:33pm on June 30, 2008,
Trina said… - jennifer,
i read your blog and was appauled at the way this dr treated you. I mean the nerve of people. No one has the final say so on what happens. Just stay strong and keep faith
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