Vancouver Alopecia Areata Support Group

Information

Vancouver Alopecia Areata Support Group

Hello Vancouverites! Connecting is one of the best ways to feel happier and become more informed! Come as you are, whether you are shy or outgoing. This is a genuine and fun group where all of us - new to alopecia or experienced, hair-wearer or au natural, seeking treatment or not - all come together and be supportive, informative, and positive for one another. After 4+ years of running this group, I can say for sure that you'll feel better after a meetup! :)

Come to our monthly meetups, or, start by joining this group and be in the loop of upcoming meetups! Sometimes I include alopecia news / remedy / stories too.

If your kid / teen has alopecia, please contact us and we'll put you in touch with other parents! It'll be, I believe, quite awesome for your child :)

Location: Vancouver
Members: 90
Latest Activity: Jan 12, 2020

Upcoming Meetups

This group gets together monthly at one of the members' homes - a cozy, positive, and fun environment, for those with alopecia. We are here to support one another, and every meetup has been amazingly mood-lifting.

Join us here and we'll send next meeting details to you in a group email!

You can always get a hold of us via AW messaging or at alopecia.vancouver[at]gmail.com

We are affiliated with CANAAF (Canadian Alopecia Areata Foundation).

Next meet up: We meet about once a month. Please email Tanya at the emil address above!

Comment Wall

Comment

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Comment by Tanya on January 24, 2018 at 3:35am

That's awesome! Thank you Mandeep :)

Comment by Mandeep on January 23, 2018 at 7:24pm

Hi Nita,

You can claim the wigs part of your taxes under medical (you will need a doctors note).

Comment by Nitter on January 23, 2018 at 2:46pm

Thank you so much Sandra!! That is very helpful to know. We are self employed, so no extended benefits here. Everything we are doing for her now is out of pocket. I did see that form on Canaaf website, but I don't think we would qualify for assistance. So I think we are going to start shopping around for wigs to get an idea for her. Thank you so so much for all the quick info ladies! We are new to all of this, so you have already been so helpful!

Thanks

Nita

Comment by Sandra Fournier on January 23, 2018 at 11:26am

Hi Nita/Everyone,

Yes, our healthcare system is not great for covering our wigs, even for children.  If you have personal health insurance coverage through work, I'd challenge your insurance company to cover some of the expense. I know of women who have had some success doing this.  I know it's not a lot, but you can also claim your wigs worn due to Alopecia on your personal income tax each year as a medical expense.  You may require a Doctors note, but each little bit helps.  Finally, this may not be the case for your family, but I wanted to mention that www.canaaf.org has set up a fund for teens whose families need financial assistance for their wig. There is an application process, but I wanted to share.Take Care, Sandra 

Comment by Nitter on January 23, 2018 at 10:11am

Thank you so much Tanya :) please feel free to pass my info on to other families with children that are going thru the same thing. I would love for my daughter to meet other kids like her, so she can make new friends and not feel alone in this journey. 

Thanks

Nita

Comment by Tanya on January 23, 2018 at 5:39am

Hi Nitter,

Good question...let me find out more by asking people on our alopecia group who are parents of kids with alopecia!

Tanya

Comment by Nitter on January 23, 2018 at 1:20am

Hello? So healthcare doesn't cover for wigs for children? My 11yr old has alopecia and has lost most of her hair. We can't cover it up anymore, and we are starting to look into wigs and shaving the remaining hair off. 

Comment by Deeann on August 31, 2017 at 1:52pm

Who are your doctors (GPs and Dermatologists)? Still working on my speech for the DNA, and finding very few Dermatology clinics that list alopecia as a specialty. Although, I do see a lot of cosmetic dermatology places. 

Comment by Deeann on August 25, 2017 at 2:07pm

Thanks Jen. I appreciate the information.

Comment by Jen on August 25, 2017 at 12:46pm

In Canada as far as I know there is no public funding for a wig unless if you have private insurance and even then it is not much and a one time lifetime maximum ? Maybe it is different for a patient with cancer.  It can take a few months to get an apt- depends on the dermatologist and how busy their practice is.

I guess if GP finds other problems is thyroid or other Auto immune they would then refer to another type of specialist -but not for alopecia alone- maybe others have had different experiences.. 

 

Members (90)

 
 
 

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