"Unfortunately, I didn't get mega pictures. My friends had their iphones and we are currently trying to compile a list. I'll get some out there soonish."
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Deeann
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- United States
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Deeann commented on Tanya's group Vancouver Alopecia Areata Support Group"I have a few thoughts to add, along with experience I've had with formal alopecia groups. I have attended NAAF conferences for the past 5 years, and for me - I get the most from meeting new people, hearing their stories, and offering help if…"
Deeann commented on Tanya's group Vancouver Alopecia Areata Support Group"Elizabeth: Welcome. There are so many great people to talk to in this group. Although it's tough in the beginning, having people to talk to about it really...helps. We've been kicking around some dates to meet again. Keep your eye on the…"
Deeann commented on Tanya's group Vancouver Alopecia Areata Support Group"Silkhead: thanks so much for working on the calendar."
Deeann commented on Tanya's group Vancouver Alopecia Areata Support Group"Connie: Are you back from your first trip already?"
Deeann commented on Tanya's group Vancouver Alopecia Areata Support Group"I can probably do the first week in May, but not the 11th here in Seattle (bummer). May's super busy, but do what works best for the majority, and I'll work super hard to make it. Love....getting together with you all. See you soon."
Deeann replied to Kara's discussion Dr Jerry Shapiro in NYC"Kara: So, so sorry you had this experience. Although my experience with Dr. Shapiro has only been second hand, I have heard just awful things about his "bedside manner." It sounds as if you are handling things in stride, and I wish you the…"
Profile Information
- Relationship Status:
- Married
- About Me:
- I'm 36 and live in Washington State. I have had some form of alopecia for the past 29 years or so, but have been AU for the last 3 years. I have been married for 12 years, and have 2 children ages 4 and 8.
It is wonderful to hear of all the authors who are writing or have written about their experiences with alopecia. I am also working on a book that has been developing very slowly over the past several years. I was looking for an opportunity to reach others with alopecia, and this message board arrived at the perfect time. I am looking forward to talking to those of you who are interested in contributing your stories.
- Do you have alopecia?
- Alopecia universalis
- Are you age 18 or older?
- Yes
Comment Wall (32 comments)
- At 9:54pm on August 20, 2011,
Julia said… - Thanks for checking on me:) I had so much going on...how was it?
- At 7:47pm on July 4, 2011,
Jules1984 said…
- Thanks for the comment.... it really means alot. I tried to get in touch with Evie and mom... but I still haven't heard anything from them. I would really like to meet up with them sometime!
- At 9:50pm on May 22, 2010,
Scaredandhopeful said… - I'd love to help :)
- At 1:58pm on January 28, 2010,
Annette Thompson said… - Hi Deeann,
I wil send an email to you as well. Next week I have Tuesday off, and then
the weekend. Let me know what might work for you. I am excited to
meet someone else with alopecia. Take care!
- At 11:42am on January 25, 2010,
JeffreySF said… - Hi Deeann,
I'm sorry I didnt recognize you. How are you?
I've got several Blogs on my page. Maybe they will give you some ideas for your writing.
Do you think you will be going to NAAF this year?
Hugz,
Jeffrey
- At 11:17pm on January 24, 2010, JeffreySF said…
- Hi Deeann,
Hows the book coming along?
I'd love to tell a story or two!
Jeffrey
- At 10:03pm on January 24, 2010, Annette Thompson said…
- Hi Deeann,
How are things in Mt Vernon? Got some new head coverings this
week so am experimenting with not wearing my wigs all the time-- with
mixed success. I have some days off in the next month. Would you like to try and meet?
- At 1:47am on January 19, 2010, Annette Thompson said…
- Hi Deeann--thank you for your warm welcome! It would be nice to meet someone else who has dealt with alopecia for years.....I work full time but could meet around that, maybe Everett? I don't know Mount Vernon that well.
- At 12:40pm on December 10, 2009,
Lauren Simpson said… - I cant wait to meet you when you get back in town. I will email you so you can have my personal email too.
- At 6:41pm on December 8, 2009, Lauren Simpson said…
- Thanks that would be awesome.
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