Newly Diagnosed with Alopecia

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Comment by Cheryl, Co-founder on March 12, 2010 at 12:57pm

Machal, when I am dealing with people like that I just keep my conversation short and let them think what they want to think.

Comment by Leah Larson on March 12, 2010 at 11:27am

you're right and I will remember to do that next time! Thanks for the kind words, advice, support and friendship!

Comment by Stephanie on March 12, 2010 at 11:26am

I know, we tend to feel we need to fill in the conversation when someone is curious. I just stop talking and no one has actually come out and asked me. Truth is, so long as you feel and look great, who cares? :)
Have you ever heard that if someone asks you something you don't want to answer you are supposed to say, "Why do you ask?" It puts THEM on the defensive and basically shows them that the question is inappropriate. Most people just back off. Good luck. I'm sure you'll look fabulous and all the other girls will envy you!

Comment by Leah Larson on March 12, 2010 at 11:16am

yes, I agree, but easier said than done. As soon as it's styled, I will post a new photo! I'm excited, yet anxious and nervous!

Comment by Stephanie on March 12, 2010 at 11:11am

When people ask me if I've changed my hair I just say yes as it is true. If they compliment me I say thank you. No need to offer up any other information unless you want to.
Congrats on the weight loss, by the way, and I hope you post a photo of you in your new wig, Leah.

Comment by Leah Larson on March 12, 2010 at 9:52am

I'm in a predicament since I was at one job when all of my hair fell out, so most knew and who didn't know I was wearing different wigs everyday as "accessories", I didn't care. For the past year I've been at a new job and haven't told anyone here. I wore a different wig the other day, trying to get them prepared for my new "vacuum prosthesis" and got most comments from men! I guess if they haven't figured it out by then, they will with my "big reveal" in April. My piece is in and gets styled on the 17th, but I'm 20 pounds away from my weight loss goal and will come walking in looking like a different person, which will help with my confidence level! I know we should worry about what others think, but people are nosy, some rude and I'd rather not deal with everyone knowing my business!

Comment by Amber on March 12, 2010 at 1:54am

Leah, I agree. I hate seeing minimal regrowth, while more of it sheds and is thinning. Ugh.

Comment by Amber on March 12, 2010 at 1:54am

I hate the stress comment, too. It's beyond annoying and quite frankly, wrong. My hair loss is hormonal. Apolecia areata, totalis and universialis is from a auntoimmune disorder where your immunie system attacks and rejects the hair follicles. Doctors don't know much about hair loss, and they are reluctant (it seems) to learn more and they lean on old wives tales.

Comment by Stephanie on March 9, 2010 at 10:12am

That is obnoxious! A lot of my friends think my hair will grow back too but in their case I think they are being hopeful for me. In your case, being accused of paranoia is unkind and frankly ignorant. I would suggest they google AU and leave it at that. I think it's okay to ask them to refrain from bringing it up with you. Another thought is what Mary does (pretty sure it's Mary). She hands out cards that give a simple explanation of Alopecia. Good luck and welcome!

Comment by Leah Larson on March 9, 2010 at 10:08am

The stress of it growing back and falling out again is terrible. I don't miss running to the doctor monthly for painful shots, not knowing how bad it would eventually get....although I never expected I'd turn Totalis, let alone Universalis! Look on paulayoung.com and order a cute wig with a comfortable liner. You won't miss having to wash and style your hair everyday! It's devastating at first, but everything happens for a reason and you have a lot of support via this site! Let me know how I can be of assistance through your transformation.

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