Newly Diagnosed with Alopecia

Information

Newly Diagnosed with Alopecia

This group is for people who are new to alopecia. It's a place to learn the essentials of coping and how to continue living life to the fullest despite the condition. More experienced alopecians are also invited to offer support and guidance.

Members: 517
Latest Activity: Sep 12

Tips for Coping with Alopecia from Day One

1. Love yourself unconditionally, with or without hair.

2. Consult a physician when you think your hair loss has become excessive or abnormal.

3. Get a second or third opinion if you need confirmation of a physician’s diagnosis.

4. Educate yourself about alopecia (hair loss), its many possible causes, traditional and alternative treatments, treatment costs, possible side-effects, and other options (e.g., wigs, scarves, etc.).

5. Remember that bald is beautiful, too.

6. Seek the advice of your physician and people who love and care about you before making decisions about treatments or lifestyle changes.

7. Join an alopecia support group to receive insight and inspiration from others who are living with hair loss.

8. Give others who may also be concerned (e.g., your employer, school, or church) appropriate information about your condition.

9. Maintain your emotional well-being by learning positive strategies for coping with depression, rejection, ridicule, stress, anxiety, and other negative feelings and experiences. Also develop conflict management skills, and other strong interpersonal skills, which you can use when dealing with people who choose to remain ignorant or insensitive. In other words, see a professional counselor, if you must.

10. Live life to the fullest, which includes allowing yourself to truly love and be loved and taking full advantage of the new opportunities alopecia opens to you.

Cheryl Carvery and richard jones (rj) encourage you to share these 10 helpful suggestions with others who are dealing with alopecia.

Discussion Forum

Sad

Started by bobbi. Last reply by Gabi Bastos Jul 29. 5 Replies

How do I do this?

Started by MelodyAutumn. Last reply by Weston D Jan 12. 3 Replies

just diagnosed and scared...

Started by Catia. Last reply by Weston D Jan 11. 4 Replies

Question About AA and Eyelashes

Started by Michelle. Last reply by Kathryn Jun 11, 2013. 6 Replies

It's been a (long) Year

Started by Marissa. Last reply by Fay May 28, 2013. 5 Replies

New to this World

Started by Jackie E.. Last reply by Catia May 28, 2013. 9 Replies

Trying to learn how to move forward

Started by Lindsay Rossi. Last reply by Lindsay Rossi Apr 12, 2013. 3 Replies

Unpigmented regrowth?

Started by Jaclyn. Last reply by Annette Mar 30, 2013. 9 Replies

I'm New and I'm Scared

Started by Annie. Last reply by ali Mar 28, 2013. 13 Replies

This girl is on fire!

Started by Erin. Last reply by Erin Mar 22, 2013. 2 Replies

Question about Clobetasol Topical Solution......

Started by NoUseForAName. Last reply by MaddiiBoo Mar 17, 2013. 5 Replies

Just diagnosed

Started by Kteacher. Last reply by Angie Jan 7, 2013. 7 Replies

Just trying to learn how to cope, newly diagnosed

Started by rugsfromme2u. Last reply by Kteacher Jan 1, 2013. 15 Replies

new to the group

Started by sam. Last reply by Stephanie Dec 17, 2012. 1 Reply

Scarring Alopecia

Started by Barbi Cooper. Last reply by Stephanie Dec 17, 2012. 15 Replies

Burning Scalp

Started by Phyllis Wallace. Last reply by Phyllis Wallace Oct 26, 2012. 10 Replies

Comment Wall

Comment

You need to be a member of Newly Diagnosed with Alopecia to add comments!

Comment by MamaDavis on July 31, 2014 at 10:56am
Is there any way to tell if this AA will progress into AT or AU??? Within in 3 weeks of noticing my first spot, I'm petrified how fast more and more spots are appearing.
Comment by Anna on June 10, 2014 at 1:33am

Hi,

I am new to this site and have recently been diagnosed with FFA. I have been dealing with the eye brow/hair loss for a few years now and it has become progressivly worse and harder to hide.  It is very comforting to read all the comments and feel like I am not alone. 

Comment by Alicia on May 16, 2014 at 9:56am
My name is Alicia. I was diagnosed just 2 weeks ago, but my hair loss is not new. For years I could hide my hair loss on the crown of my head, but when I began loosing my hair in the front I sought help. Now I wear wigs, headbands and hats. My new issue is covering my alopecia in the summer heat. I am also new to this website so I'm looking for a group or discussion that's a fit for me.
Comment by Sophia on May 11, 2014 at 4:09pm

Thanks a lot Cheryl! :) 

Now I'm a little bit scared about that situation, sometimes I'm optimist and sometimes I'm really sad.. but I hope that with time that problem become secondary..

Comment by Cheryl, Co-founder on May 2, 2014 at 10:33pm

Hi Sophia,  Alopecia is hard.  Sometimes you just have to give yourself some time to adjust to the changes.  I find that with time eventually alopecia really can become secondary in your life as you go on with your life.  Just make sure that you find a way to do all the things that you love to do.

Comment by Sophia on April 21, 2014 at 3:36pm

Hi, I'm Sophia, I'm 27 and I'm new here on this group.

I have an androgenic alopecia from last august.

My hair continues to become less and thinner every day, and nothing regrowth.

I'm very sad about that but I think to can talk with other people that understand the problem will surely help me (sorry for my very bad english :)  )

Comment by Jessica on April 11, 2014 at 10:15pm
So I have androgenic alopecia found out in November 2012. Every day I notice my hair is thinner and thinner. I hate getting ready for the day because my sink fills up with hair. It saddens me, the dermatologists told me there's nothing worth wasting my money on to try and fix it. I still cant figure out how to make wigs stay on or look natural. Still depressing someone even asked if it was contagious and I felt like I was being judged.
Comment by Annie on April 11, 2014 at 9:25pm
Thank you so much for asking, Cheryl!
I'm doing really well. I've finished my steroid treatment and I have been very blessed to have full regrowth in the area I lost my hair in. I am feeling way more confident, and realize that as scary and upsetting as it was to be diagnosed, I am lucky to have the rest of my health. Going through this experience has taught me a lot.
Comment by Cheryl, Co-founder on April 11, 2014 at 9:07pm

Hi Everyone,

I know that a lot of you are no longer "new to alopecia", so I was just wonder, now that time has gone by how are you doing?

Comment by Rayna Linder on April 10, 2014 at 1:28am
Hi Jennifer. I'm sorry you were diagnosed with Alopecia A. It's scary at first but then it gets a lil easier.
 

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