Where acceptance is all there is!
Newly Diagnosed with Alopecia
Information
This group is for people who are new to alopecia. It's a place to learn the essentials of coping and how to continue living life to the fullest despite the condition. More experienced alopecians are also invited to offer support and guidance.
Members: 263
Latest Activity: 1 day ago
Tips for Coping with Alopecia from Day One
2. Consult a physician when you think your hair loss has become excessive or abnormal.
3. Get a second or third opinion if you need confirmation of a physician’s diagnosis.
4. Educate yourself about alopecia (hair loss), its many possible causes, traditional and alternative treatments, treatment costs, possible side-effects, and other options (e.g., wigs, scarves, etc.).
5. Remember that bald is beautiful, too.
6. Seek the advice of your physician and people who love and care about you before making decisions about treatments or lifestyle changes.
7. Join an alopecia support group to receive insight and inspiration from others who are living with hair loss.
8. Give others who may also be concerned (e.g., your employer, school, or church) appropriate information about your condition.
9. Maintain your emotional well-being by learning positive strategies for coping with depression, rejection, ridicule, stress, anxiety, and other negative feelings and experiences. Also develop conflict management skills, and other strong interpersonal skills, which you can use when dealing with people who choose to remain ignorant or insensitive. In other words, see a professional counselor, if you must.
10. Live life to the fullest, which includes allowing yourself to truly love and be loved and taking full advantage of the new opportunities alopecia opens to you.
Cheryl Carvery and richard jones (rj) encourage you to share these 10 helpful suggestions with others who are dealing with alopecia.
Discussion Forum
Coping 16 Replies
Started by Cheryl, Co-founder. Last reply by Tanya Bharatan Aug 26.
My head is itching so badly i can not stand 3 Replies
Started by nicole blake. Last reply by Jenna4 Aug 18.
Scarring Alopecia 3 Replies
Started by Barbi Cooper. Last reply by Trina Berry Jul 23.
Dealing with Peoples Glances - Part 2 1 Reply
Started by Cheryl, Co-founder. Last reply by Amber May 12.
How to get a proper diagnosis 2 Replies
Started by Jaime. Last reply by Jaime Apr 21.
In the meantime what can we do? 2 Replies
Started by Cheryl, Co-founder. Last reply by Amber Apr 4.
What Happens Next? 2 Replies
Started by Cheryl, Co-founder. Last reply by Gale Moorman Feb 12.
Decisions on treatments, and advice on coping. 3 Replies
Started by Susan S. Last reply by Stephanie Dec. 15, 2009.
newly diagnosed 6 Replies
Started by denise lance. Last reply by Jenny Dec. 2, 2009.
What type of shampoo should I use? 4 Replies
Started by annabell castellanos. Last reply by Stephanie Dec. 2, 2009.
When did you stop taking the meds and just let it go? 4 Replies
Started by Christy Berlemann. Last reply by Stephanie Dec. 2, 2009.
How to tell friends and family about our alopecia 10 Replies
Started by Cheryl, Co-founder. Last reply by Allison Miller Nov. 14, 2009.
scalp is bruning? 3 Replies
Started by Connie Reed. Last reply by Tory Oct. 8, 2009.
Not sure I want treatment 14 Replies
Started by jj. Last reply by Susan S Sep. 15, 2009.
Dealing with peoples glances 6 Replies
Started by Cheryl, Co-founder. Last reply by Pamela Rosse Sep. 2, 2009.
Just diagnosed with alopecia....question about a possible recommended treatment from my doctor. 5 Replies
Started by Kristen. Last reply by BaldGirlsDoLunch.org Sep. 1, 2009.
diagnosed 2 months ago.... 6 Replies
Started by Grace F. Last reply by Grace F Sep. 1, 2009.
Its all gone now 2 Replies
Started by Eileen Simpson. Last reply by Eileen Simpson Dec. 27, 2008.
Increased sebum production? 2 Replies
Started by jj. Last reply by Nicole Dec. 19, 2008.
Iscrizione a un gruppo e apertura blog.
Started by Carla Dec. 4, 2008.
Comment Wall
Comment
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Comment by Tanya Bharatan on August 26, 2010 at 11:31am - Hey Cheryl I hope you don't mind if I cheat abit LOL .. stealing members from your group. Well I know some of you guys here have trouble dealing with alopecia. right? welll I created a group called funny act of alopecia. Its show alopecia in a new light. The funny side of it alll. its step 5 and 7 in tips of coping with alopecia. Hopefully the group can lift your spirits for a while and make you smile. you know you guys are beautiful people. Smiling only adds to that beauty. If it doesn'thelp ya I'm sorrry I tried... You can send this court jester to the guillotine.LOL
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Comment by Amber on April 4, 2010 at 6:00pm - I agree with Cheryl, and also, while keeping the conversation short, also smile, as that may take the stress and ease away, from the asker, as yourself, too.
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Comment by Cheryl, Co-founder on March 12, 2010 at 12:57pm - Machal, when I am dealing with people like that I just keep my conversation short and let them think what they want to think.
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Comment by Leah Larson on March 12, 2010 at 11:27am - you're right and I will remember to do that next time! Thanks for the kind words, advice, support and friendship!
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Comment by Stephanie on March 12, 2010 at 11:26am -
I know, we tend to feel we need to fill in the conversation when someone is curious. I just stop talking and no one has actually come out and asked me. Truth is, so long as you feel and look great, who cares? :)
Have you ever heard that if someone asks you something you don't want to answer you are supposed to say, "Why do you ask?" It puts THEM on the defensive and basically shows them that the question is inappropriate. Most people just back off. Good luck. I'm sure you'll look fabulous and all the other girls will envy you!
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Comment by Leah Larson on March 12, 2010 at 11:16am
- yes, I agree, but easier said than done. As soon as it's styled, I will post a new photo! I'm excited, yet anxious and nervous!
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Comment by Stephanie on March 12, 2010 at 11:11am
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When people ask me if I've changed my hair I just say yes as it is true. If they compliment me I say thank you. No need to offer up any other information unless you want to.
Congrats on the weight loss, by the way, and I hope you post a photo of you in your new wig, Leah.
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Comment by Leah Larson on March 12, 2010 at 9:52am
- I'm in a predicament since I was at one job when all of my hair fell out, so most knew and who didn't know I was wearing different wigs everyday as "accessories", I didn't care. For the past year I've been at a new job and haven't told anyone here. I wore a different wig the other day, trying to get them prepared for my new "vacuum prosthesis" and got most comments from men! I guess if they haven't figured it out by then, they will with my "big reveal" in April. My piece is in and gets styled on the 17th, but I'm 20 pounds away from my weight loss goal and will come walking in looking like a different person, which will help with my confidence level! I know we should worry about what others think, but people are nosy, some rude and I'd rather not deal with everyone knowing my business!
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Comment by Amber on March 12, 2010 at 1:54am
- Leah, I agree. I hate seeing minimal regrowth, while more of it sheds and is thinning. Ugh.
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Comment by Amber on March 12, 2010 at 1:54am
- I hate the stress comment, too. It's beyond annoying and quite frankly, wrong. My hair loss is hormonal. Apolecia areata, totalis and universialis is from a auntoimmune disorder where your immunie system attacks and rejects the hair follicles. Doctors don't know much about hair loss, and they are reluctant (it seems) to learn more and they lean on old wives tales.
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