Cheryl, Co-founder

Newly Diagnosed with Alopecia

Information

Newly Diagnosed with Alopecia

This group is for people who are new to alopecia. It's a place to learn the essentials of coping and how to continue living life to the fullest despite the condition. More experienced alopecians are also invited to offer support and guidance.

Members: 383
Latest Activity: yesterday

Tips for Coping with Alopecia from Day One

1. Love yourself unconditionally, with or without hair.

2. Consult a physician when you think your hair loss has become excessive or abnormal.

3. Get a second or third opinion if you need confirmation of a physician’s diagnosis.

4. Educate yourself about alopecia (hair loss), its many possible causes, traditional and alternative treatments, treatment costs, possible side-effects, and other options (e.g., wigs, scarves, etc.).

5. Remember that bald is beautiful, too.

6. Seek the advice of your physician and people who love and care about you before making decisions about treatments or lifestyle changes.

7. Join an alopecia support group to receive insight and inspiration from others who are living with hair loss.

8. Give others who may also be concerned (e.g., your employer, school, or church) appropriate information about your condition.

9. Maintain your emotional well-being by learning positive strategies for coping with depression, rejection, ridicule, stress, anxiety, and other negative feelings and experiences. Also develop conflict management skills, and other strong interpersonal skills, which you can use when dealing with people who choose to remain ignorant or insensitive. In other words, see a professional counselor, if you must.

10. Live life to the fullest, which includes allowing yourself to truly love and be loved and taking full advantage of the new opportunities alopecia opens to you.

Cheryl Carvery and richard jones (rj) encourage you to share these 10 helpful suggestions with others who are dealing with alopecia.

Discussion Forum

aggiewife22

Hey I'm new

Started by aggiewife22. Last reply by ShoCorona Jan 3. 4 Replies

Phyllis Wallace

Burning Scalp

Started by Phyllis Wallace. Last reply by Figarosmom Dec 6, 2011. 5 Replies

NoUseForAName

Question about Clobetasol Topical Solution......

Started by NoUseForAName. Last reply by Angie P Aug 18, 2011. 2 Replies

jj

Not sure I want treatment

Started by jj. Last reply by holyhairlossbatman!! Jul 17, 2011. 25 Replies

Barbi Cooper

Is Bald really beautiful?

Started by Barbi Cooper. Last reply by Bald Tan May 8, 2011. 2 Replies

Cynthia Smith

Anti-Rejection Pills

Started by Cynthia Smith. Last reply by onekeylady Apr 24, 2011. 4 Replies

Cheryl, Co-founder

Dealing with peoples glances

Started by Cheryl, Co-founder. Last reply by Cheryl, Co-founder Apr 23, 2011. 8 Replies

Cynthia Smith

What I Learned & What to Do

Started by Cynthia Smith Apr 21, 2011. 0 Replies

Krystin Burke

Rogaine

Started by Krystin Burke. Last reply by Natalie Carmen Rosas Mar 18, 2011. 3 Replies

carly

newly diagnosed by GP

Started by carly. Last reply by carly Mar 10, 2011. 3 Replies

Jaime

How to get a proper diagnosis

Started by Jaime. Last reply by Leah England Oct 26, 2010. 3 Replies

Connie Reed

scalp is bruning?

Started by Connie Reed. Last reply by Leah England Oct 26, 2010. 6 Replies

KathyH

New here and seeking advice

Started by KathyH. Last reply by samantha ellingham Oct 24, 2010. 3 Replies

dorna wright

Too old to start this adventure?

Started by dorna wright. Last reply by dorna wright Oct 13, 2010. 3 Replies

nicole blake

My head is itching so badly i can not stand

Started by nicole blake. Last reply by Kimberly Duncan Sep 12, 2010. 5 Replies

jj

Increased sebum production?

Started by jj. Last reply by Amber Sep 10, 2010. 3 Replies

Barbi Cooper

Scarring Alopecia

Started by Barbi Cooper. Last reply by Angie P Sep 10, 2010. 4 Replies

Comment Wall

Comment

You need to be a member of Newly Diagnosed with Alopecia to add comments!

Bruce Comment by Bruce on December 1, 2011 at 1:15pm

After years of relatively mild hair loss on my chest, my Alopecia moved uptown to my head with a vengeance. Within two weeks of finding a spot the size of a dime behind my ear, I had to shave my entire head, including brows. That was three weeks ago and I'm starting to get used to it and I'm over most of the freaking out. I was able to get by for years basically by buzzing my chest with clippers and staying in denial. I hadn't even told most of my family and friends. They sure know now!

I just wanted to say hello to all the other newbies.

pauline vargas Comment by pauline vargas on November 4, 2011 at 8:53pm
I have alopecia since I was 8 and I am 31 now. This is the first time that I shave my head and started using wigs. I had a acid treatment done and I had a bad side affect, had to go to the emergency room my face and neck looked like I got hit with a baseball bat. I could not breath and my scalp was on fire. I am taking a break from treatments, I need help accepting myself.
Stephanie Comment by Stephanie on November 4, 2011 at 10:06am
Try the powder and sealer from Bald Girls Do lunch. No one noticed that I had no brows.
KimF4L Comment by KimF4L on November 4, 2011 at 9:57am
looking for eyebrows that REALLY look realistic, not just from afar but when you are up close. Any suggestions? I have tried a few already
Children's Alopecia Project Comment by Children's Alopecia Project on April 20, 2011 at 6:04pm
The Children's Alopecia Project is having ALOPECIAPALOOZA 2011 outside of Cincinnati, Ohio this year from August 18 to August 21, 2011.

A camp devoted specifically to children with alopecia and their family. We want to help build self-esteem, provide support and raise awareness. It's what we do evey single day, not one a year. It's the reason we are here!

I am Jeff Woytovich and my wife has had Alopecia Areata since 1976 and my 13 year old daughter has had Alopecia Universalis since she was 5 years old. This is why I founded CAP and why I care. I have experience the ups and downs, the snake oil, and everything else you have experienced. I wanted more for my child so she had the tools to be the best. I could not find it, so CAP was born!!

ALOPECIAPALOOZA is FREE to all CAP Kids. (children with alopecia) Heck, everything CAP does is free for the CAP Kids, we never charge them. If you would like information how family members can attend for free please email Betsy at betsywoytovich@yahoo.com, make sure you tell her you want to regisiter on the website too (again, free.)

Check out these sites:

www.ChildrensAlopeciaProject.org
www.facebook.com/ChildrensAlopeciaProject
http://www.youtube.com/watch?v=lhKiNMK-wc8
www.alopeciapalooza2011.charityhappenings.org
Elizabeth Plowman Comment by Elizabeth Plowman on April 13, 2011 at 9:51pm
just shaved my head for the first time!! my hair was pretty much gone, but my hair folicules are intact and i have no scarring!!! so that is a positive side!!! but now its the waiting period! how long has it taken some of you to have hair grow back significantly?? just curious!!
terry Koepsel Comment by terry Koepsel on April 4, 2011 at 12:23pm
I've been using lotion feel strange but i remind my self Im not putting it in my hair just on my skin. Im also thinking I should use a sun protector as well, not big into hats, and summer is on its way.
Ryan Gage Comment by Ryan Gage on April 4, 2011 at 11:35am
someone suggested that I just use conditioner to help keep my newly bald head nice and moist, it seems to be helping, itching has cut down! Has anyone herd or had any success with changing your diet to mostly natural foods? A family friend suggested I see a expensive specialist that will give me vitamins and change my diet to try and switch back the immune system.
Angie Comment by Angie on March 28, 2011 at 8:30pm
I know what you mean, but I believe in positive thinking! Do your best to eat healthy and keep the stress level managed. This will give your hair the best chance possible to grow and stay with you. I wish you the best.

Ang.
Vicki H Comment by Vicki H on March 28, 2011 at 5:47pm
Hi Angie,
thanks so much for your comment, you've made my day (in a calm, controlled way as I try not to get too hopeful). Vic x
 

Members (383)

Cheryl, Co-founder Stephanie Amber Carol Angie P jj Leah England Auntie Sheila Angie Susan S Eileen Simpson rugsfromme2u Jenn Mandy Figarosmom m&mqueen dorna wright Jenny Grace F Tory George Blackwood JeffreySF Dana Cynthia Smith Barbi Cooper Allison Miller Nants the Rebellion Dog DesertAngel kelly godfrey KimF4L
 
 
 
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