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Alopecia Totalis

Join today to meet, support and share information and resources with others who are also living with the complete loss of scalp hair.

Website: http://www.AlopeciaWorld.NET
Members: 181
Latest Activity: Jan 10

Discussion Forum

Medication

Started by Solita. Last reply by Solita Jan 10. 7 Replies

im having such a hard time coping...

Started by Maria Reeve. Last reply by Paige A Schuck Sep 21, 2010. 9 Replies

hot weather

Started by Alexis. Last reply by Mary Hynes Jul 28, 2010. 8 Replies

Comment Wall

Comment

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Comment by Fabienne on January 23, 2009 at 1:57am
Hi, I'm Fabienne (7) I'm from Mexico. I'm very glad my mother found this site where i will find people like me. I won't be different anymore
Comment by Christina on December 8, 2008 at 3:02pm
Hello All!
My name is Christina and i am 32 years old and i have AT. I have lived whit this seens i was 11 years old, I always have a wig outside when i meet people and whit my freinds.Sorry for my bad english!
I always say too me that i am beatiful as i am.
I think you all are beatiful and strong and i love this side, her i can find new people to talk to ho have At.

Christina
Comment by Christina on November 13, 2008 at 3:51am
Hello all people!
Comment by Cheryl on November 10, 2008 at 9:38pm
Hello to everyone. At the moment I have AT. I have gone from AU at age 5 to AA at age 12 to AT. Strange how it varies. Now, I have been living with AT for 6 years with no change. I do have two eyebrows which is somewhat new. I had only one eyebrow for many years.
Comment by Mukti on November 9, 2008 at 12:15pm
Hi All,

I have AT....some fuzzy patches on the head. Also I have no eyebrows and eyelashes. I tried to pencil in eyebrows once and it looks like I had a caterpillar sitting on my forehead...so I quit doing that. Sometimes I will see a hair or two grow there but then it falls out! No big deal. It is quite an adjustment to being bald. I've had my ups and downs. I think I'm doing well now.
Comment by nikki on October 12, 2008 at 3:29pm
hi there everybody ,well i havent got alopecia ,im here for my daughter chloe who as alopecia totalis ,im here to support her ,and chat to ppl myself abt it ,also anybody who wants to chat to me abt bein a mother and dealing with a daughter wiv alopecia feel free ,and thanku for everybody thats as welcomed me to the site ,my daughter is in my friends list if anybody wants to lok at her profile
Comment by Margo on October 11, 2008 at 11:53pm
Hi everybody!
I don't really know what I have so I'm joining this group regardless. The medical community has not given me ANY information so basically I've diagnosed myself with Atotalis/universalis whatever! I lost all my body hair (eyebrows,eyelashes, natural brazilian...) It's been almost 1yr and it was very sudden/quick. Ultimately very reptilian looking! WoW how suddenly our self image can be crushed! It's been a very bumpy road and I'm guessing we all need eachother for support and validation that we are great people! Asking for help!
Comment by Lori D. on October 2, 2008 at 5:37am
I have the scarring type, CCCA and AT as well. At least I think so. I was diagnosed with CCCA but I have growth over most of my scalp. In certain areas it grows faster and is more dense...on the top of my scalp it is sparse but there is a little dark growth. I do have facial hair (minus nose hair), and on my arms and legs there are only enough tiny white hairs so that if I shine a light I can see them...so still, never shaved my legs..but yes to the underarms.
Comment by Carol on September 27, 2008 at 7:06pm
I was having a hard time deciding which form of alopecia I have but I suppose AT describes me best right now??? I was AU, no hair anywhere but now there's a good patch growing on my scalp, eyebrows/lashes and certain unmentionable areas. No leg or arm hair though so I'll just sit in the middle with you guys for now if that's ok LOL. :)
Comment by Sara on September 26, 2008 at 11:36am
Bogie... I have had AT for almost 20 years now and have only been 'shiny' bald for about 2 of that when I was universalis. When my body hair grew back I developed the white fuzz or vellus hair. I have recently started growing a little bit of brown 'fuzz' towards the front of my scalp... through all of this I still say that I have AT!
 

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