Replies to This Discussion

Permalink Reply by Carol on July 16, 2008 at 11:10am

You're not alone with this one! My mother especially was ashamed of me because of my hair. She felt ripped off that she adopted this baby and once the one year warranty gave up, I lost my hair. Because of her poor attitude, I too was scarred for many years. It took many inspirational alopecians to make me accept myself and a few years thereafter to accept that I have alopecia. To this day I still blame things on my alopecia when I know I shouldn't. I make my own destiny, don't you?

There comes a time when you have to put your past behind you. For me, that meant leaving my mom behind, then getting her out of my head. I don't think about my past much, what good will it do me now anyways? Focus on your future and what needs to be done rather than the hurt you've had to deal with. You know you're strong, get out there and prove it! :)

Permalink Reply by Lori D. on July 16, 2008 at 5:08pm

Thanks for responding Carol. I've just often wondered if there were other parents like mine...even though it would make sense that mine weren't the only ones that, well, weren't very nice...I just never knew of any, never read of any..so thank you. My parents are both still in my life...to a certain degree..I've built walls, boundaries, if you will. Being comfortable enough to go without a wig has been a struggle. When I first moved in with my then- future husband, I actually wore a wig to bed!! Since then, I've graduated...now it's a do-rag...He thinks nothing of the alopecia, it's all me. For me, it's been like brushing my teeth, just a routine...but I've been thinking more about going in my yard with just a scarf..it's so hot in the summer..IIt's been 37 years of wig-wearing..

Permalink Reply by Carol on July 17, 2008 at 8:27am

You must have some incredible patience! I wore my wig to bed for four years after meeting my husband because I felt he wasn't comfortable (he kinda wasn't too) and one day just said to hell with it all and went bald. I went postal if you will. I'm glad you've graduated to scarfs, wigs are nasty in this heat! One day when no one is home, run out into the backyard without your wig on and do two things. Sit in the sun and feel the nice warmth of the sun beaming down upon your head, don't get a sunburn though :)
Then, sit in the shade and embrace the cool breeze blowing over your head. You just may convince yourself that it is nice to wear nothing at all from time to time. Good luck! :)

Permalink Reply by Garden Girl on August 4, 2008 at 1:25am

I lost my hair at 15. When I was 17 (and contemplating suicide) I heard my parents say they should send me to a "good" college because no one would ever want to marry me. Needless to say, making peace with their comment has been an important step on my healing journey.

Permalink Reply by tamgirl on August 5, 2008 at 6:42am

My dad was real scared off my future. He thought that if he would make me a tough girl, that i wouldnt get hurt.
so when i was in my teenage years, he told me to study something like accountantcy, so i can work in an office. he said to me that it would be a place were i would get work, cuz no clients would see me.
those were hard words and at that time i believed them, I studied what he suggest me to.
When i was 18 and were doing a practise job at a big office, i started to bloom and felt more confident about myself. My boss there told me that all his daughters were studying things they loved to and he ask why i didnt do that. he said there would be a great future for me at the office, but he also said that i should enjoy my youth and do a study which i liked.
I followed my heart and got out of home and started to study social work. My lack of hair never got in the way with searching for jobs. So i proved my dad wrong.

i understand what my dad was telling me and trying to make me a strong woman, at some points he was right, but he forgot how sensitive i was and didnt support me in my heartwishes.
The other day i had a talk with my dad about it and said, look where i am now. he said he was sorry and explained himself. A few weeks ago he found an alopecia spot himself, the vain man who dyed his hair black for years. He now said to me that hair doesnt mean anything anymore and that he has a strong daughter, so he can do the same.

But by all his hard lessons, i often doubted if he would be ashamed of me, but then again, the two of us look alike and we couldnt get along cuz of that. From time to time, i have a little doubt back in my mind, but i dont let it lead me.

lori, i totally understand that your parrents affected your life, to bad all our parrents do, in good and bad ways. I am glad you can look back and see that you become a strong woman and you are learning to deal with it.

Permalink Reply by Cat on August 8, 2008 at 2:32am

I still have a fair amount of hair, and I had even more when I was younger. I had enough loss that teachers, classmates, and even strangers noticed and commented, but my parents pretended nothing was wrong. If I brought it up, they'd say it was just the way I styled my hair and if I just kept my hair short it would be fine. By 14, I didn't really have that option, and I just went around with a combover and bald streaks showing!

Permalink Reply by Missy on August 9, 2008 at 10:55pm

oh woo im sorry to every one whoes parents were ashamed or embaressed! that blows my mine my mom dad and brother were all there for me any way i needed them. i coved my blad spots for about 6 years and only let a few ppl know and then went i was ia 10 th grader in high school it was to much work to cover all the damn spots so i shaved my head i knew it was comming but my little bro (2 years younger) took it the hardest i almost think he cryed more than i did. but now not have any hair for about 6-7 years man i would not take it back for any thing. Truely sorry for every ones parents being ashamed or embaressed, you can come be my kid and i wouldnt be ashamed but i would make you get a job and pay some bill lol

Permalink Reply by sgomez on August 16, 2008 at 3:23am

Sorry in advance for taking up a whole page! I actaully have awesome parents!!! and two awesome sisters!!! My parents never for one moment ever made me feel ashamed or disappointed because of my alopecia. They totally emraced my baldness, and always tried to bring up the positive aspects of being bald. They would always make a big fuss whenever I got a new wig. I loved getting a new wig! Money was really tight back then so a new wig was a very special occasion. I still remember the excitement of taking that shiny new wig out of the netting and putting it on. My parents would give me compliments for days! I really didn't appreciate it back then, because I was sruggling so much. They would say stuff like, "oh, Sarah, you are so lucky that you can just take your hair off on a hot day! I wish I could do that!" or "I like the way you look bald." My dad was always there to give me a hug, and my mom was always there to listen when I had a bad day at school. I'm sure I tired the heck out of her, but she always listened. My parents also found me some good group counseling, and later on in my teen years, and very lovely and compassionate psychologist. My sister was so envious of my bald head that she cried for a whole day begging my mom to shave her head. She wanted to be bald like me. Of course I thought she was nuts! but secretly I was kinda flattered. She never did get her wish.
I feel for you all who didn't have very understanding families. I can't imagine what you have had to indure because of that, not to mention just surviving school and other social situations.

Carol, you have come such along way in your short life! I didn't know that you sruggled so much in the past. I was under the impression that you were always so comfortable w/ your alopecia. You have great courage and strength, and such honesty.

Lori D., Go for it!! It was just a year ago that I wouln't even go in my backyard bald. Now, not only do I go to my backyard bald, but I also started wearing a bandana to the gym. Sometimes I even change from wig to bandana in the locker room. It gets easier w/ time :-)

Tamgirl, Good for you!!! so you followed your heart, and you made peace w/ your dad. I'm sure you tought him so much more than he ever taught you. You are so inspiring!!

Cate, It just astounds me how fixated we are on appearances. It's not like you're terminally ill or anything! Trust me girlfriend, your parents were so wrong. I really don't think that men mind as much as we think they do. My husband was so ok w/ my bald head, even before I was. It was never really an issue for him. Just learn to forgive your parents completely. Holding on to bitterness is not a good thing.

Catfancy,
You must have felt so helpless. I'm sorry that your parents chose to keep you in denial instead of aknowledging the obvious. Maybe they felt so helpless too. I can see that you have come a long way, and you are such a groovy chic. and a brainer to boot. One of my life's goals is to be a genius. I'm still working on it! lol! What's the secret?

Missy,
You're too cute!!

Permalink Reply by Carol on August 19, 2008 at 5:12pm

Thank you for your kind comments. I certainly have come a long way and it's because of this experience that I want to help others. Hence the support group I started and the book I would like to write. I will have plenty of time in my near future to devote to fellow alopecians too which I am looking very forward to. So far most of the parents I've come across have had great attitudes towards their children with alopecia but I will be available for them if they ever need advice or help speaking with someone. Sometime one has to take the hard road in life and pave the way for others who follow.

Permalink Reply by Holly on February 15, 2009 at 1:26am

Wow you are amazing! I'm sure you know this already. You are so lucky to have parents so in tune with you and your feelings! Hope I find as much security in the future! I am working towards it but finding road blocks at every turn...still looking though!!

Permalink Reply by Lori D. on August 17, 2008 at 7:15pm

Thank you all for your supportive responses. As always, this site leaves me feeling more "normal", and less alone. Know what I mean?

Permalink Reply by Cat on August 30, 2008 at 6:38pm

Yes, Lori...yeah! I'm coming to terms with things a bit better now that I realize that certain aspects of my adolescence were screwed up. I never wore wigs until I was 21 because my parents said that I'd look "silly" and that kids would rip my wig off my head and laugh at me. I changed schools a few times, and I could have started wearing wigs on several occasions. Even if I'd been "found out" in a wig, I doubt I'd have been laughed at much more than I was as the odd balding girl. I never thought of myself as a strong person, but I guess I am.

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