Adults who have grown up with alopecia


Adults who have grown up with alopecia

This is a group for people who had alopecia nearly all their lives. The people who grew up with alopecia as children and still have it now as adults.

Members: 290
Latest Activity: on Thursday

Discussion Forum


Started by Donna. Last reply by Donna Mar 17, 2012. 3 Replies

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Comment by Hopeful1 on Wednesday

Hi Margaret!  I did not want to misquote Ms. Hepburn.  The Beauty Of A Woman is not in the clothes that she wears, the figure that she carries or the way she combs her hair.  The beauty of a woman is seen in her eyes, because that is the doorway to her heart, the place where love resides. True beauty in a woman is reflected in her soul. It's the caring that she lovingly gives the passion that she shows and the beauty of a woman only grows with passing years." Powerful words that I often reflect back to.  If the guy I like can look beyond the physical appearance and really see the true beauty lies within.  Unfortunately, not everyone looks at it in that way.  You found the diamond in the rough.  I hope to find mine one day!  I leave it in God's hands.

Comment by Hopeful1 on Wednesday

Hi Margaret! Thank you for sharing your story.  Congratulations on being married for over 40 years.  Not many can say that this day and age.  My parents were married almost 54 years.  My father passed away a little over a year ago.  I quit my job to take care of him at home with my Mom.  He was full dependency.  Grateful he lived way pass the time Hospice gave him. Grateful for the time I was able to spend with him taking care of him.  At times it was not easy.  He was my heart. He was the greatest father anyone could ever ask for. Great provider. I have no regrets.  I have had grown people at work taunt me about wearing a wig. Can you believe that.  One girl stood behind me and noticed that the track(as she put it) was hanging.  So I pretended it was a weave and went to the bathroom to fix it.  Since then she told another girl on the job and they kept threatening to pull my hair.  It was as if I was in school all over again.  You can imagine what I felt.  I do not mix with people. Keep pretty much to myself.  There was a nice guy who for years helped me when I needed things done.  I fell for him.  When he stared at me I just get so uncomfortable and would look away and be all business.  He was with law enforcement. I feel that he would figure out my secret and could not bare it.  He became so frustrated with me and called me stuck up.  When I finally worked up enough nerve to tell him he stood me up.  I found out on facebook he  already found someone else. That hurt my heart. But, I remembered someone on Alopecia World posted "I am not my hair, I am not my skin, I am the soul within".  Powerful!  I then reflect back to what Audrey Hepburn said, "The Beauty Of A Woman - 

Comment by Margaret Brennan on Wednesday
I had AA until age nineteen, started t age two, then I lost it all. Between the torment in grammar school and being treated not so nice in high school by a bunch of snobby Westchester County girls I really felt hopeless. But I was very outgoing and I believe that saved me. I met a very nice man in a community theatre group and we have been married for over forty years and have four wonderful children who tend to be more sensitive to the needs of others. I still am in my own closet of torture and only come out to those I really trust or at the NAAF conferences, our support group really helped to free me up since until that time I really did not know other people had this disease. Get your self to a support group., it will help you tremendously.
Comment by Hopeful1 on Wednesday

I am looking forward to attending a support group in NYC in the near future.  Just missed one in August, 2015.  It really helps being able to talk about it with others who understand and are experiencing the same situation and emotions.  I to wish this was around when I was a kid. I was taunted relentlessly in school by a few, one girl in particular.  It wasn't fun!

Comment by Hopeful1 on Wednesday

Elisa!  I am the same exact way.  My alopecia started when I was 13 years old with a spot. Then had to wear wigs at 15 years of age. Then it grew back. Then complete loss in my 20's. I have been dealing with this for over 20+ years.  I find it hard to open up and share my secret with others.  Aside from immediate family knowing only 4 friends know. 

Comment by elisa on September 8, 2015 at 6:18pm
Hello i have had Alopecia all my life i Have so many wigs this is my first time talking about it I'm so shy and introverted people don't understand I stay to myself a lot
Comment by Margaret Brennan on May 12, 2015 at 7:41am
I think this is some one trying to sell something. Vitamins do not make your hair grow... I have been down this road over my seventy years with this disease. Spent money on all the hocus pokus.
Comment by Deeann on October 19, 2013 at 4:19am

Hello all.  I've had AU for the past 8 years, and AA since I was 7.  I've been working on a book for several years, and it's really starting to take shape.  

I've just finished my website for "Head-On, Stories of Alopecia", and it can be seen at  I'm looking for stories from men, women and children to add to the phenomenal ones I've already received.  

The alopecia community has always been so supportive of one another, and my hope is that word of this project will spread like wildfire. I look forward to hearing your story.

Comment by TallGuy on January 8, 2013 at 2:40am

Have been almost entirely hairless for most of my life.

Had AA from the time I was 5. Inherited from my mom's side. My folks were determined that this not define me, also got me enrolled in some cutting edge programs at the time - for example I was patient #16 in the UpJohn 5% Minoxodil trial, first kid in country accepted. Finally shaved everything off at 17 and haven't looked back. Learned from some wonderful people that have come in and out of my life over the years...inspired me, gave me strength and helped form me into the strong, confident 35 year old person I am today.

Comment by PC on October 12, 2012 at 8:29pm

The Chino Support will have a booth at the Citizens Business Bank Arena food truck event in Ontario on 10-20-12.. In an effort to bring awareness to the Inland Empire community we will be passing out information and brackets. From 11am to 6 pm, address 4000 E. Ontario Center Parkway, Ontario CA 91764. Please join us to help get the word out.


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