Adults who have grown up with alopecia

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Adults who have grown up with alopecia

This is a group for people who had alopecia nearly all their lives. The people who grew up with alopecia as children and still have it now as adults.

Members: 284
Latest Activity: on Friday

Discussion Forum

Progression

Started by Donna. Last reply by Donna Mar 17, 2012. 3 Replies

Still seeking treatment?

Started by Carol. Last reply by KFlame Feb 8, 2012. 23 Replies

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Comment by Deeann on October 19, 2013 at 4:19am

Hello all.  I've had AU for the past 8 years, and AA since I was 7.  I've been working on a book for several years, and it's really starting to take shape.  

I've just finished my website for "Head-On, Stories of Alopecia", and it can be seen at www.baldgirlsrock.com.  I'm looking for stories from men, women and children to add to the phenomenal ones I've already received.  

The alopecia community has always been so supportive of one another, and my hope is that word of this project will spread like wildfire. I look forward to hearing your story.




Comment by TallGuy on January 8, 2013 at 2:40am

Have been almost entirely hairless for most of my life.

Had AA from the time I was 5. Inherited from my mom's side. My folks were determined that this not define me, also got me enrolled in some cutting edge programs at the time - for example I was patient #16 in the UpJohn 5% Minoxodil trial, first kid in country accepted. Finally shaved everything off at 17 and haven't looked back. Learned from some wonderful people that have come in and out of my life over the years...inspired me, gave me strength and helped form me into the strong, confident 35 year old person I am today.

Comment by PC on October 12, 2012 at 8:29pm

The Chino Support will have a booth at the Citizens Business Bank Arena food truck event in Ontario on 10-20-12.. In an effort to bring awareness to the Inland Empire community we will be passing out information and brackets. From 11am to 6 pm, address 4000 E. Ontario Center Parkway, Ontario CA 91764. Please join us to help get the word out.

Comment by mardy on July 23, 2012 at 1:12am

this is so me and the thing is it doesn't get any better you just learn to deal with it.. it's great to have a group like this.. wish it was around when i was a kid..so glad kids now have support groups to help them out.. when i was a kid they weren't sure how to even treat it i was like a guniea pig poking and proding it was like the unspeakable in my family a hidden secret...

Comment by PC on February 26, 2012 at 10:06pm

Saturday March 10, 2012
2:00pm-4:00pm
PICNIC IN THE PARK
Chino California Alopecia Areata
Support Group Meeting

Victoria Arbors Park
7429 Arbor Lane
Rancho Cucamonga, CA 91739

The support group is an ideal place to come and talk with others about living with alopecia areata. It is the place to gain knowledge from those who have had years of experience. With time comes the ability to deal and cope with your own hair loss or that of a loved one. We are very fortunate that so many are willing to bring to the meetings their wisdom and advice to share in a direct but compassionate manner
that reflects understanding and concern. The support group experience has its rewards for all who attend.

RSVP
When you RSVP, let me know what dish you will bring.
Patricia Carter
909.464.0528
Pcarter57@msn.com

Comment by PC on February 9, 2012 at 1:14am

Saturday, February 18, 1:30pm-3:30pm

Chino, California
Alopecia Areata
Support Group Meeting

Change of venue
City of Chino Community Center Building
5543 “B” Street
Chino, CA 91710

RSVP
Patricia Carter
909.464.0528
Pcarter57@msn.com

Comment by Bald and Fabulous AKA Terri on December 7, 2011 at 10:39pm

Hi Deana... this is my second winter being completely bald and I still wear silk scarves throughout the winter. Current temp outside here in Edmonton Alberta is -12c. I do have some fabulous wigs but I love the versatility that scarves give. There is actually a video on AW showing all the wonderful ways you can tie a scarf. I also like adding flowers or pins to the scarfs for added bling. I did buy a new hat that I found at a hat store "Chapel" very vintage inspired.
http://www.alopeciaworld.com/video/many-ways-to-wear-a-scarf-or

Comment by Deana DG on December 7, 2011 at 9:22pm
Thanks Terri, for the summer I want to do a scarf or bandana but I want something i can tie in to a nice bow in the front....add the girly effect, but for the winter I have not found a hat I like that is also pretty. I tend to just wear my husbands tan wool hat when I go running or if I'm cold around the house. I just don't know if I could find a wool hat that I like enough to sport all winter bit I love wearing wigs. I find it fun to change it up and having worn one for so long I don't find them uncomfortable to wear. What do you prefer in the winter?
Comment by Bald and Fabulous AKA Terri on December 7, 2011 at 9:11pm

welcome Deana....I also decide whatever head covering I want to wear on the day. With the colder weather Im covering up again, but I prefer silk scarfs. There are so many colours to chose from.

Comment by Deana DG on December 7, 2011 at 8:33pm
Hi all, I am new to AW but have AU since I am 9. Like most of you have said it's just the way of life I know and have always known. I wear wigs when I go out because I feel it makes others comfortable and having worn one for over 20 years I find them comfortable but I rip it off as soon as I get home. I just love the freedom of deciding if I want to wear it or leave it. I do exercise and swim outside in the summer without it but I live in New England and the winters are cold, so I guess you could say I wear it as a stylish hat...lol. Anyway I am just so happy to have found this sight after all these years and I am hoping to be able to go to the NAAF in 2012 I have never been. Thank you all for sharing. I love it here!
 

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