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Comment by PC on Thursday

Saturday, February 18, 1:30pm-3:30pm

Chino, California
Alopecia Areata
Support Group Meeting

Change of venue
City of Chino Community Center Building
5543 “B” Street
Chino, CA 91710

RSVP
Patricia Carter
909.464.0528
Pcarter57@msn.com

Comment by Terri on December 7, 2011 at 10:39pm

Hi Deana... this is my second winter being completely bald and I still wear silk scarves throughout the winter. Current temp outside here in Edmonton Alberta is -12c. I do have some fabulous wigs but I love the versatility that scarves give. There is actually a video on AW showing all the wonderful ways you can tie a scarf. I also like adding flowers or pins to the scarfs for added bling. I did buy a new hat that I found at a hat store "Chapel" very vintage inspired.
http://www.alopeciaworld.com/video/many-ways-to-wear-a-scarf-or

Comment by Deana DG on December 7, 2011 at 9:22pm

Thanks Terri, for the summer I want to do a scarf or bandana but I want something i can tie in to a nice bow in the front....add the girly effect, but for the winter I have not found a hat I like that is also pretty. I tend to just wear my husbands tan wool hat when I go running or if I'm cold around the house. I just don't know if I could find a wool hat that I like enough to sport all winter bit I love wearing wigs. I find it fun to change it up and having worn one for so long I don't find them uncomfortable to wear. What do you prefer in the winter?

Comment by Terri on December 7, 2011 at 9:11pm

welcome Deana....I also decide whatever head covering I want to wear on the day. With the colder weather Im covering up again, but I prefer silk scarfs. There are so many colours to chose from.

Comment by Deana DG on December 7, 2011 at 8:33pm

Hi all, I am new to AW but have AU since I am 9. Like most of you have said it's just the way of life I know and have always known. I wear wigs when I go out because I feel it makes others comfortable and having worn one for over 20 years I find them comfortable but I rip it off as soon as I get home. I just love the freedom of deciding if I want to wear it or leave it. I do exercise and swim outside in the summer without it but I live in New England and the winters are cold, so I guess you could say I wear it as a stylish hat...lol. Anyway I am just so happy to have found this sight after all these years and I am hoping to be able to go to the NAAF in 2012 I have never been. Thank you all for sharing. I love it here!

Comment by RICHARD on September 19, 2011 at 10:44pm

I started to lose my hair when I WAS 9 and then i got hit by a car then my family lost our house so we were constantly moving all around L.A. so school was hard friends were few and life was generally unfair, but now im an ADULT and if any one can help with life lessons your listening to HIM now- feel free to email me about anything, either YOURSELF your CHILDREN your Friends Loved ones or just wanna jumble a bunch of fonts together- and drop to me. IM HERE!

Comment by Terri on August 28, 2011 at 10:42pm

Thank you for sharing your story Anna. You are truly inspiring. I was 8 when I first started losing my hair, and now at 36 I'm in my second complete bald glory. And doing fabulous. I love the idea of everyone showing off their alopecia for the month. A great way to bring about support.

Comment by Anna Hall on August 28, 2011 at 10:03pm

Hello all. So I developed AU at 9 months of age and did not grow any hair back until I turned 5, at which time I developed AA. Two years later I was full blown AT and by the age of 15 I had reverted back to AU, where I have been residing ever since. I am now 28 years of age and life is good.

As a whole I haven't been very uncomfortable with not having hair, I think that has a lot to do with how great my parents and sister were with me. While growing up I knew that I was different from the other kids but my family never made a big deal about it and so neither did I. My mom would allow me to wear scarves and hats when I was younger if I wanted to but never a wig. She always said that she didn't want me to become dependent on them, and that once I was comfortable with the way I was we could start talking about purchasing a wig for spacial occasions.

Sure I've had my share of rough times due to this condition but I always told myself that I had it no worse then others and better then most. I did go through a bit of a dark time in Jr. high in which I was petrified to be seen without my hat on, but that fear ended the day some boy on my school bus snatched my hat off as I was getting off the bus. As I swung around and socked him in the stomach I saw his shocked embarrassment with the realization of what he had uncovered. I snatched my hat out of his already crumpling hand and debarked the bus fighting back my tears. While in my rush to get off I over heard kids chastising the boy and others saying sorry to me. It was during my emotional walk home that I realized that I didn't need to hide myself any longer, because while I will encounter a few people that will brutalize me emotionally there will always be many more people that will comfort and support me.

So now here I am 28 years old newly married to my wonderful hubby and life is good. My Aleopecia (and it is mine) is a single part of my whole. I wear wigs when I feel like a change or to go to work (they keep it so darn cold in that building) otherwise I just enjoy the comfort of smooth and soft all day long! I hope my introduction to this group can be helpful to some, insightful to others, and a comfort to all. I look forward to reading about all of your own personal stories. Also I would like to invite all of the people in this group that haven't or don't know how to go out without wearing wigs or hats that September is National Aleopecia Awareness Month and the perfect opportunity to make yourself and others more aware of this condition by not wearing any head covers all month long! You will all be surprised just how great of a response you will receive and how wonderful you feel about yourselves at the end of the month!

Comment by JeffreySF on February 19, 2011 at 11:05am

Woo Hoo Cya there.

Comment by PC on February 19, 2011 at 2:10am

No I have not but i do plan to attend this year

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